Missouri Chapter Events

Inaugural Missouri Run/Walk Saturday, March 25th in St Louis - Register Now!

Inaugural Missouri Run/Walk Saturday, March 25th in St Louis - Register Now!

Join us for the inaugural MO Run/Walk to Fight Lymphedema & Lymphatic Diseases in beautiful St. Louis, MO, sponsored by BSN medical (Premier Presenting Sponsor) and Tactile Medical (Presenting Sponsor). Whether you're a serious runner, or just want to get a bit of exercise, this 5K walking/running course in Jefferson Barracks Park is sure to be just what the doctor ordered. The Lymphatic Education & Research Network (LE&RN) has been hosting this event in NY, CA, TX, and WI, and this year we've expanded to MO.

Join hundreds of LE&RN supporters in their fight against lymphedema and lymphatic diseases. We will run or walk on behalf of the estimated 10 million Americans and 140 million worldwide who are fighting this Lymphedemic. LE&RN's mission is to fight lymphatic disease and lymphedema through education, research and advocacy, but it doesen't happen without you.

- To register to run, click the "Register Now" button at the top.

- Want to Join the Fight against lymphedema and other lymphatic diseases? Register to be a fundraiser HERE. 

Event details and schedule

* Check-in/Registration will be from 8-9 am

* Event begins at 9 am

* Beverages and light snacks will be provided

* Course is 5K, but you are free to complete as much as you are comfortable with

* Should you choose to attend but not run or walk, we will have people who stay behind, and you can visit with our sponsors

* It may be chilly, so please dress for the late March weather

* Parents - please stay with your children 

* The park is not closed for us, so please be conscious of the other park attendees

* HAVE FUN!

Amy Green on The Dave Glover Show

Amy Green on The Dave Glover Show

Amy Greene, co-Chair of LE&RN's Missouri Chapter, was interviewed by The Dave Glover Show in St. Louis. Amy educated the radio program's hosts and their listeners about what lymphedema is, who gets it, and what it means for quality of life. She also talked about her nearly life-long activism and her relatively new role as a LE&RN Chapter co-Chair.

Listen to the entire interview here. Follow Amy at LE&RN's Missouri Chapter Facebookhttps://www.facebook.com/LERNMissouri/ page. You can contact Amy and Co-Chair Lauren Scheidegger at MOChapter@LymphaticNetwork.org.

Amy has joined the fight against lymphedema and lymphatic diseases. Join Amy as a LE&RN member today.

10yr old STL Girl with lymphedema created “Lemonade for Lyphedema”

10yr old STL Girl with lymphedema created “Lemonade for Lyphedema”

Missouri Chapter Chair Amy Greene reported a heart-warming story this week. Karson Bluette (pictured at right), a 10-year-old St. Louis girl and lymphedema patient, created "Lemonade for Lymphedema" and raised $90.32 for LE&RN by selling glasses of lemonade at the entrance to her subdivision. Thank you, Karson!

Lymphedema Seminar in St. Louis June 3 - 5, 2016

Lymphedema Seminar in St. Louis June 3 - 5, 2016

Networking and Educational Seminar for Lymphedema Therapists
Washington University, St. Louis, MO
June 3-5, 2016


Lymphedema Seminars provides educational seminars to medical professionals who work with lymphedema. These include physical and occupational therapists, oncology nurses, and oncologists, radiologists and surgeons. Massage therapists, family practice MDs, internists, etc, are also welcome to attend our seminars. Our presenters are the top in their fields and offer state-of-the-art information that yields continuing education credits.
*Seminar fee includes welcome Wine & Hors d’Oeuvres Reception, lectures, networking, coffee, snacks, Sat. & Sun. breakfasts, and Saturday lunch. Accomodations can be made at the Parkway Hotel. Ask for the discounted Lymph Seminars group rate of only $133/night. (parking is an additional $7/night). Call them directly at (314) 256-7777. Visit our website for further information.
Join us and meet LE&RN Missouri Chapter Chairs, Amy Greene and Lauren Scheidegger!
For additional information you can contact us:

Phone:  805-772-3560

Email:  info@lymphseminars.com

Web:  www.lymphseminars.com
Phone:  805-772-3560

Email:  info@lymphseminars.com

Web:  www.lymphseminars.com

A New Study for Breast Cancer Related Lymphedema in Missouri

A New Study for Breast Cancer Related Lymphedema in Missouri

A new study is available through the University of Missouri-Columbia (MU) for breast cancer survivors who have been diagnosed with lymphedema. It uses interactive theatre and printed information compared to printed information alone to test whether an interactive approach is more effective than printed information alone in helping women stick to their lymphedema self-management regimens.

The study will divide participants into two groups. One group will get printed information about lymphedema and the other will get printed information AND attend an interactive theatre performance about lymphedema. There is a baseline on-site (MU) visit at the beginning of the study, with the addition of one group also attending the interactive theatre performance. Other than the baseline visit and the theatre performance, the study is conducted by mail. Eighteen more participants are needed for the study.

For more information and/or scheduling a study appointment, please contact Pamela Ostby, PhD(c), RN, OCN® at 314/255-6677 or you can email leresearch@missouri.edu.

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Living with Lipedema and Dealing with Dercum’s

Living with Lipedema and Dealing with Dercum’s

Living with Lipedema and Dealing with Dercum's Conference

April 8-10, 2016 at the Marriott St. Louis Airport hotel in St. Louis, Missouri

Keynote speaker is world renowned Fat Disorder expert, Karen L. Herbst, MD, PhD. Topics to include, surgical and non-surgical treatment options in managing both Lipedema and Dercum's Disease.

* Please note that this is not a LE&RN Missouri Chapter event but we wanted to share the information. Chapter Co-Chair, Amy Greene, will be attending the conference. Please contact Amy at MOChapter@LymphaticNetwork.org if you are also attending or have specific questions.