New York Support Groups

Here is list of support groups for patients with lymphedema and other lymphatic diseases (and cancer) that LE&RN Chapter volunteers found by searching online and by calling lymphedema centers.  If you know of any other support groups that should be listed here, please email details to us at:  NYChapter@LymphaticNetwork.org

* Please note the following information and comments are subject to change, please check and confirm
  before attempting to attend these meetings.

Lymphedema Awareness Network of Rochester
1048 University Avenue
Rochester, NY
Organizer/Entity: Breast Cancer Coalition of Rochester
Contact: jennifer@bccr.org
Tel: (585)473-8177
Comments:  Meetings take place 5:30-7 p.m. second Wednesday of month

Breast Cancer & Lymphedema Support Groups
Memorial Sloan Kettering Cancer Center
300 East 66th Street, 2nd Floor
New York, NY 10065
Tel: (646)888-8106
These are two separate support groups. Please call to find out updated information. 

John T. Mather Memorial Hospital - Lymphedema Treatment Center Support Group
75 North Country Road
Port Jefferson, NY
Organizer/Entity: John T. Mather Memorial Hospital - LE Treatment Center
Comments: Patients, families welcome. Registration required.

Thompson Health Occupational Therapy Services
350 Parrish Street
Canandaigua, NY
396-6056
Contact: Angela. angela.kiklowicz@thompsonhealth.org
This group welcomes all looking for support in dealing with all types of lymphedema. Those attending are welcome to share their experiences with lymphedema, including forms of treatment and therapy.

Lourdes Regional Cancer Center
169 Riverside Drive
Binghamton, NY
607-798-6161
Contact: Linda Tuyn, NP LTuyn@binghamton.edu
3rd Thursday at 7pm

Hewlett House Mind, Body, Wellness Workshop & Lymphedema Support Group
86 East Rockaway Road
Hewlett, NY
516-374-3190
3rd Monday of each month 1:30-2:30 pm
The goal of this educational support group is to instruct men and women who are cancer survivors how to live with Lymphedema through specialized treatment protocols and addressing other topics such as herbs & nutrition, insurance reimbursement, compression garment fitting, essential oils and other resources. 

Lymphedema Support Group
Vassar Brothers Medical Center

45 Reade Place
Poughkeepsie, NY
For schedule contact the organizer: Marie Vegeto, MS, OTR/L, CLT
marie.vegeto@nuvancehealth.org
845-483-7391
Led by occupational and physical therapists, helping patients and their care-givers coping with lymphedema.

 

Please note, the information LE&RN/Chapters provides is to be used for general information only. LE&RN/ Chapters do not take any responsibility for the advice or information provided, the level of quality or professionalism, service or schedule of the above named support groups.