Related Organizations

The Academy of Lymphatic Studies provides education in Manual Lymph Drainage and Complete Decongestive Therapy (MLD/CDT) and advances the availability, quality, use and support of lymphedema management techniques through standard settings, terminology, education and research.

Adelphi NY Statewide Breast Cancer Hotline and Support Program has a mission to educate, support, empower, and advocate for breast cancer patients, professionals, and the community.

Alberta Lymphedema Network (ALNET) is a provincial multidisciplinary research and education program on lymphedema, and more broadly, the lymphatic system and lymphatic diseases and its establishment was supported by The Dianne and Irving Kipnes Foundation has partnered with the University of Calgary, Cumming School of Medicine, the Calvin, Phoebe and Joan Snyder Institute for Chronic Diseases, the University of Alberta, Faculty of Medicine and Dentistry and Salutaris Centre (Edmonton).

American Society for Reconstructive Microsurgery (ASRM) was established in 1984 and has served "to promote, encourage, foster, and advance the art and science of microsurgery and complex reconstruction” and to establish a forum for teaching, research and free discussion of reconstructive microsurgical methods and principles.

Babylon (NY) Breast Cancer Coalition (BBCC) is a nonprofit volunteer organization dedicated to various breast and gynecological cancer concerns. Founded in 1993, the BBCC continues to be a grass-roots organization, providing an array of patient support services, education and advocacy programs.

Center for Lymphatic and Venous Disorders at Stanford Hospital provides a broad spectrum of diagnostic and therapeutic treatments for adults and children. Lymphatic and venous disorders often have profound functional and psychological implications for patients and their families. Caring for patients with edema is a complex task requiring input from many specialists.

CenterWatch is helping people connect with clinical trials.  First launched in 1994, the Clinical Trials Listings Service assists patients in finding and volunteering for clinical trials. Today, CenterWatch has the largest online database of industry-sponsored global clinical trials actively seeking volunteers.

ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world. Learn more about clinical studies and about this site, including relevant history, policies, and laws.

CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome. CLOVES stands for Congenital, Lipomatous Overgrowth, Vascular malformations, Epidermal nevi and Scoliosis/Skeletal/Spinal anomalies.

Dr. Vodder School International offers the training program that includes the original Dr. Vodder Method of Manual Lymph Drainage ( MLD) and Combined Decongestive Therapy

Fat Disorders Research Society (FDRS) is dedicated to improving the quality of life for all people affected by adipose tissue disorders through research, education, advocacy and collaboration.

Health Resources in Action helps people live healthier lives and create healthy communities through prevention, health promotion, policy and research.

The Hemangioma International Treatment Center (HITC), founded in 2003, provides treatment for children and individuals who suffer from hemangiomas and other vascular malformations.

HEVAS is a Dutch parent and patient organization for hemangiomas and vascular malformations.

The International Lymphedema and Wound Care Institute are lymphedema and wound care specialists offering a training program for lymphedema and wound care certification.

The Intestinal Lymphangiectasia Facebook support group is for families and loved ones of those with Intestinal Lymphangiectasia. Due to the personal nature of the information shared, you will need to request to join this group.

Klose Training offers a variety of online and in-classroom continuing education courses which provide an excellent opportunity to advance your lymphedema treatment skills, acquire knowledge of new therapy techniques, network with other experienced therapists, and earn continuing education credits – including for LANA recertification.

The K-T Support Group offers support and resources for people with Klippel-Trenaunay Syndrome and related conditions.

The KT Foundation strives to help patients and families that are dealing with Klippel-Trenaunay Syndrome.

Lymphology Association of North America (LANA) promote standards for the certification of healthcare professionals who help individuals with lymphedema and/or related disorders manage their lymphedema and to promote lymphedema awareness and the science of lymphology.

The Lipedema Project is a collaborative partnership between the Friedman Center for Lymphedema Research & Treatment at Mount Sinai Beth Israel and Lipedema Simplified, LLC.  The Lipedema Project is a comprehensive transmedia program to increase awareness and provide education, research and treatment for lipedema.

Lipoedema Simplified provides a website that is a portal to information about a relatively common fat disorder that is often mistaken for simple obesity. If you have struggled with fat hips and legs and/or upper arms, and that fat would not go away despite diet and exercise, you may have lipedema.

Little Leakers provides a web site designed for people/kids with Lymphangiectasia (lym·phan·gi·ec·ta·si·a)(Dilation in the wall of a lymphatic vessel.); (Primary/Secondary) (Intestinal/ Pulmonary and/or any other version there of) and/or parents, caregivers, family members and friends.

The Lymphangiomatosis & Gorham's Disease Alliance (LGDA) has a mission to improve the care of patients with lymphangiomatosis and Gorham's disease by promoting research that will identify effective treatments and ultimately a cure for these diseases. The Alliance is committed to providing support to members of the patient community and their families; education for the community, professionals, and the general public; and hope to those affected by these rare lymphatic malformations.

The Lymphatic Malformation Institute is a nonprofit organization whose mission is to improve the clinical care of patients with Lymphangiomatosis and Gorham-Stout Syndrome.

Lymphedema Association of Ontario is working to improve access to quality lymphedema information, resources and services across Ontario and beyond.

Lymphedema Canada Associations and Support Groups provide information to Canadians on the latest research, interviews with health care experts, and information from a broad range of perspectives related to lymphatic disorders.

Lymphedema Clinical Trials: US National Institutes of Health allows searching for lymphedema related studies in the US.

The Lymphedema Family Study at the University of Pittsburgh has a project in which the goal is to identify genes responsible for primary (or inherited) lymphedema, also known as Milroy's and Meige's Disease.

Lymphedema People is a site for people with lymphedema, made by people with lymphedema.

Lymphedema Treatment Act (LTA) is a federal bill that aims to improve insurance coverage for the medically necessary, doctor-prescribed compression supplies that are the cornerstone of lymphedema treatment.

The Lymphology Association of North America (LANA) is a non-profit corporation comprised of healthcare professionals experienced in the management of lymphedema. Having recognized the need for a national certification examination for lymphedema therapists, LANA tests knowledge considered fundamental in the treatment of lymphedema.

Lymphnotes.com is an online information resource for those having, or at risk of developing, lymphedema. This website is also for the family, friends, and therapists who care for these individuals.

MedlinePlus is the National Institutes of Health's Web site for patients and their families and friends. Produced by the National Library of Medicine, the world’s largest medical library, it brings you information about diseases, conditions, and wellness issues in language you can understand. MedlinePlus offers reliable, up-to-date health information, anytime, anywhere, for free.

The National Cancer Institute (NCI) is the federal government's principal agency for cancer research and training.  The NCI coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.

The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency — making important discoveries that improve health and save lives.

The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 to provide education and guidance to lymphedema patients, healthcare professionals, and the general public by disseminating information about risk reduction and the management of primary and secondary lymphedema.

National Organization for Rare Disorders (NORD) provides a unified voice for those courageous individuals with rare disorders , and for the parents and other caregivers seeking to help them, so that they won’t have to fight that battle alone.

The National Organization of Vascular Abnormalities (NOVA) mission is to serve as an educational resource to individuals affected by Vascular Anomalies. The organization is dedicated to aiding individuals in the management and care of vascular anomalies.

The Norton School of Lymphatic Therapy is an educational institution for training medical doctors, physical therapists, physical therapist assistants, occupational therapists, certified occupational therapy assistants, speech-language pathologists, nurses, doctors of osteopathy, certified athletic trainers, chiropractors, and massage therapists to become experts in the treatment of pathologies related to the lymphatic system. Graduates fully certified in the treatment of lymphedema, Norton School alumni are eligible to sit for the Lymphology Association of North America (LANA®) Examination® for lymphedema specialists.

Pacific Therapy Education, Inc teaches physical and occupational yherapists, as well as medical doctors, methods for evaluating, treating and educating patients at risk of developing lymphedema or suffering from lymphedema. Emphasis is on prevention and research-based treatment as per the Leduc method.

The Phelan-McDermid Syndrome Foundation is the leading non-profit organization in the world that advocates for those affected by the rare genetic condition called Phelan-McDermid Syndrome (PMS). Our mission is to offer family support, facilitate research and raise awareness of PMS.

Research!America is the nation's largest not-for-profit public education and advocacy alliance committed to making research to improve health a higher national priority.

Share is one of the leading breast cancer organizations offering support for women with breast cancer, as well as ovarian and metastatic cancers. Share's mission is to create and sustain a supportive network and community of women affected by breast and ovarian cancers. SHARE brings these women and their families and friends together with others who have experienced breast or ovarian cancer, and provides participants with the opportunity to receive and exchange information, support, strength and hope.

Step Up, Speak Out offers resources, support and advocacy for women and men with breast cancer-related lymphedema.  It is their mission to insure that all women and men undergoing breast cancer surgery are fully informed about the risks of lymphedema, the warning signs of lymphedema, and the appropriate risk reduction practices that should be taken to possibly prevent lymphedema, and to have it properly diagnosed and treated it in its early, reversible stages.

The Sturge-Weber Foundation's international mission is to improve the quality of life and care for people with Sturge-Weber syndrome and associated Port Wine Birthmark conditions through collaborative education, advocacy, research and friendly support.

Talk Lipodema is a UK based organization active across the UK. We’re here to provide benefit to sufferers of lipoedema and their carers through participating in various projects and increasing awareness of the disease. Whether you’ve just been diagnosed or are a long time sufferer, we’re here to support you. We’re based on one simple premise – that talking about lipoedema is a good thing and will benefit sufferers worldwide.

Turner Syndrome Foundation advocates to improve understanding of Turner Syndrome and support for women and children living with Turner Syndrome.

The Women’s Health Resource - Imaginis is an independent, award-winning, comprehensive resource for information on women's health and wellness. Our women’s health network web site contains thousands of pages of detailed, physician-edited health information.

The Waner Children’s Vascular Anomaly Foundation vision is set out in three parts: to provide financial assistance to families with children afflicted by these vascular anomalies, to provide or fund research directly related to understanding and treating vascular birthmarks, and to support the activities of the Vascular Birthmark Institute of New York in their efforts to educate the medical community through seminars and a fellowship for training other physicians.

The Vascular Anomaly Patient Association (VASCAPA) is a not-for-profit organization in Europe whose main objective is to help people affected by vascular anomalies.

The Vascular Birthmarks Foundation (VBF) is an international charitable organization that networks families affected by a vascular birthmark, tumor, or syndrome to the appropriate medical professionals for evaluation and/or treatment, provides informational resources as well as sponsors physician education, mobilizes medical missions trips, and supports research and programs that promote acceptance for individuals with birthmarks.

The VASCERN project, which is a European Reference Network, aims to facilitate and improve diagnosis, treatment and care for ALL patients suffering from Rare Multisystemic Vascular Diseases, thus enhancing access to care, and improving quantity and quality of life of these patients.

World Alliance for Wound & Lymphedema Care (WAWLC) strives to work in partnership with communities worldwide to advance sustainable prevention and care of wounds & lymphoedema in settings with limited resources.

Important Disclaimer:
This information is provided as a resource for use by you and in consultation with your health care professional. The Lymphatic Education & Research Network is not responsible for the content of these external sites.