b'a medication that would help it. It seems to me that it is a diseaseBeing that my glass is half full, never half empty, AND having a that most doctors dont know much about. It is a very debilitatingtremendous amount of resilience and perseverance, I started a disease and there doesnt seem to be much except compression andLymphedema Support Group in Reno, Nevada to help others physical therapy to help it. I urge Congress to study this diseasestricken by this horrific disease. We meet monthly and have guest more and to pass legislation for some kind of help for the peoplespeakers on timely and pertinent topics relating to the disease. My who suffer from it. Thanks. goal is to have Kathy Bates as a guest speaker one day. She is my hero and the inspiration that I can do this and deal with TESSA WARNICK lymphedema every single day of my life.A cure for lymphedema would mean that I, like manyGeneva, NE other Americans, would get my life back. I believe a cure is I was 18 years old (in 2000) and developed a deep vein thrombosisattainable in the foreseeable future. It cannot happen soon in my leg after three weeks of being on birth control pills (that I enough for me and so many other Americans.did not want). After 12 years of doctors shrugging off my concerns with the swelling, I finally received a diagnosis of lymphedema (LE)BRIDGET BENJAMINin 2011. Last year (2019) I needed surgery and now my leg swells more easily and faster than ever. My story has been forever changed Bellmawr, NJin ways I never imagined it would be. So many things I cant doWhen I had surgery for uterine cancer, I had no warning that the now that I once took for granted. Please help find us a cure. removal of 15 lymph nodes could lead to lymphedema. In 2008I noticed my left leg was starting to swell. I was not given CAREY HAWS precautions to protect myself from developing this horrible condition. I now live with a leg that is twice the size of the other, Spanish Springs, NV causing me pain, depression, and embarrassment, not to mention I am a breast cancer survivor and I live with lymphedema every problems in buying trousers and shoes.day since my breast cancer surgery four years ago. Managing lymphedema is my full time job, every single day, with no time offDEBORAH CLARKfor holidays. It is not something I signed up for or would want anyone else to have. Lymphedema affects every aspect of my life,Newark, NJevery single day. It makes being a Special Education teacher forAll of my current chronic pain issues were non-existent prior to the 35 years look like a walk in the park and a piece of cake, all rolledhysterectomy I had in 2002. Among them was lipedema; which was up into one! not diagnosed until 2015. After years of suffering with very painful We are in medicallimbo and blind to any complications that could come down the roadfor our son with LE.A parents worst nightmare.SARAH BRUNSKILL (Graysons Mother) Pleasanton, CAAN AMERICAN TRAGEDY 26'