b'ROSINA PROBASCO and unsightly. I must always explain my ugly garments (stockings) and why my diseases never will go away. Early diagnosis and Easton, PA treatment is KEY for management of both of these diseases I have secondary lymphedema from Synovial Sarcoma Cancer,not a 37 year wait! Thank you.which I had at the age of 17. They never thought I would make it, but Ive survived the cancer (not once, but twice) and ended up with lymphedema for the rest of my life. Yes, Im thankful forEMILY SMITHsurviving a very low-rate-of-survival cancer. Unfortunately my Wynnewood, PAlife had completely changed with a deformed leg. As a teenager,Back in 2015 and after a year of being dismissed of my symptoms then through my adult years, it has been a struggle every day. by my gynecologist it was determined that I had cervical cancer. Not having the money to pay for essential compression garmentsBecause it was found so late I had to undergo a radical that insurance does not cover. Going out in public trying to feelhysterectomy which included removal of 60 lymph nodes. I was normal without peoplestaring at you. Trying to find pants andgrateful to have been given a second chance and to be rid of cancer, shoes to fit. Bearing the pain with many sleepless nights. Being asbut six months later while exercising I felt swelling in my left leg.cautious as possible not to get an infection, which leads to cellulitisAs the days went on the swelling increased. I went to my doctor and hospital stays. I could go on.and was diagnosed with lymphedema. My leg no longer felt like it Please, we need your help. If you or your loved one had this youwas a part of me, but instead felt like a was dragging luggage would want to help them. Thank you! everywhere I went. In 1996 I underwent another surgery to reroute my lymph nodes MARY KAY RADNICH using my veins. This surgery has helped a lot, however I stillneed to wear compression garments every day, my leg needs toMeadville, PA be wrapped every night before bed, and I have to make time to As a teenager, the first thing I noticed was that my hips were biggermassage my leg daily. To say the quality of my life has changedthan normal and my legs were shapeless. At 17, I sprained my rightis an understatement. I will never take for granted all that our ankle and the swelling never resolved. Fast forward 37 years to bodies are capable of. I do hope more services will become age 54 and I was diagnosed with both primary lymphedema and available and more research for a cure is something I will one lipoedema. My hips and legs are still disproportionately big. day be fortunate enough to benefit from.It is hard to buy clothing, and my compression garments are hot Finishing my surgery foruterine cancer, I thought the worst was over. I would love to return to being a productive person rather than spending my life coping with lymphedema.KARI FORMSMAJenison, MIAN AMERICAN TRAGEDY 35'