News & Events

Calling all New Yorkers: We need your voice in Albany on February 25!

Calling all New Yorkers: We need your voice in Albany on February 25!

Above: LE&RN activists, Tiffany Detlefsen, Emma Detlefsen (LE&RN Youth Ambassador), Tina Himaya, and William Repicci (LE&RN President & CEO) meet with Linda Rosenthal (pictured center), New York State Assemblymember, at LE&RN's 2019 New York State Lobby Day.

The 2020 LE&RN New York State Lobby Day takes place Tuesday, February 25, from 9:00 am to 3:30 pm. We need you to be part of the contingent, joining us at the New York State Capitol in Albany to ensure that our agenda of fighting lymphedema and lymphatic diseases is addressed during the 2020 legislative session. Several critical initiatives are at stake:

  • enforcing the LE education bill that mandates all hospital institutions provide LE information to at-risk patients
  • passing a comprehensive LE treatment insurance bill
  • funding research fellowships at top New York State institutions seeking cures and new treatments for LE and LD
  • funding LE&RN's annual education and Patient Registry funding bill, which will allow us to continue our programs in 2020

No experience is necessary! Your personal story and passion for change are all that is needed; we'll walk you through the rest. Just register at this link and plan to be at the Capitol on February 25.

We'll get further details to you as we get closer to the date. Looking forward to seeing you there!

Let the world know you'll be there by responding "Yes!" on our NYS Lobby Day 2020 Facebook event page.