Two years ago, Dr. Stanley G. Rockson (Stanford University Endowed Chair in Lymphatic Medicine) drafted an article for the Journal of American Medicine (JAMA) to highlight the issues faced by the lymphatic disease community.
The article, "Lymphatic Medicine: Paradoxically and Unnecessarily
Read More >July 15, 2021
Dr. Francis Collins, Director, National Institutes of Health
Dr. James Madara, CEO and Executive Vice President, American Medical Association
Dear Drs. Collins and Madara:
I write to lend my voice in support of those thousands of men, women, and children, including myself,
Read More >December 16, 2020
Dear Dr. Madara,
As the CEO and Executive VP of the American Medical Association, I want to include you in a troubling, yet all too common representation of the inadequate lymphedema treatment received by a patient diagnosed following cancer surgery. The patient... me.
Read More >Dr. Madera, my name is Leslie Brady. I'm a 55-year-old male with a rare Lymphedema diagnosis. I was diagnosed with Lymphedema in both legs, which is rare enough, but even rarer for men. I was diagnosed in 2015, and since I have spent thousands of dollars on stocking, glue, and treatments.
I
Read More >Subject: Please Support Lymphedema Patients
I facilitate a Lymphedema Support Group and nearly every new patient contact for years has begun with the same sad story of how they have been undiagnosed, underdiagnosed or misdiagnosed. They have been treated with disrespect and dismissed without
Read More >Subject: MILLIONS of People living/suffering with lymphedema need YOUR HELP!!!
Dear Dr. Madara,
My name is Dr. Sheri Prentiss and I was a successful practicing physician, overseeing the Occupational Medicine and Employee Health Departments of the largest healthcare system in Illinois when a
Read More >Dear Dr. Madara,
Every day I study my left arm and breast in the mirror, checking for redness, splotches, or swelling. I stretch, do deep breathing, perform 30 minutes of manual lymph drainage, and put on custom compression garments which I wear on my arm and breast 24 hours a day, 7 days a
Read More >Good afternoon,
I’m 33 years old and was recently diagnosed with primary lymphedema after seeing multiple doctors and having many scans done. The swelling in my left leg/labia began about a year ago while pregnant with my second son who is now 16 months old. I experienced the swelling in
Read More >December 18, 2020
Dear Dr. Madara,
My name is Francile Elrod and in 2011, at the age of 39, I was a vibrant person; a spouse and mother of three incredible children, a full-time employee at a near-by University with a bright future before me, and a very physically fit and engaged individual
Read More >I have been working with lymphedema patients for almost 20 years, providing them with education, compression garments, compression pumps and referrals to Certified Lymphedema Therapists.
I am truly disheartened by the lack of or minimal benefits these patients are allotted by insurance
Read More >