“People can survive the ‘what’ provided they know or have a ‘why’…” – Viktor Frankl
This blog focuses on the “why” for anyone living with lymphedema (LE), to take AIM…and advocate! I offer you heartfelt wishes of courage, encouragement plus perseverance. It’s always about “questions”
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Dear LE&RN Supporting Members and other allies,
The White House has released its Fiscal Year (FY) 2023 Budget Request to Congress. Medical research is featured heavily throughout the Biden-Harris administration’s materials and messaging. Congress is working quickly to absorb the budget
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Photo: Aurora Liu (center) and friends with the Red Cross Society of China distributing lymphedema handbooks
One of most gratifying aspects of my role at LE&RN is getting to meet incredible people from around the world who show remarkable dedication, ingenuity, and brilliance on behalf of
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Dear Mr. Repicci,
…We welcome the opportunity to collaborate with LE&RN, the lymphatics research community, and those affected by lymphatics diseases in building a blueprint to further define a structure aligning with the concept of a national commission for lymphatics research. Through a
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About suffering they were never wrong,
The Old Masters: how well they understood
Its human position; how it takes place
While someone else is eating or opening a window
or just walking dully along… by W.H. Auden (1938)
Dear LE&RN Supporting Members and other allies,
The poem above was
Dear LE&RN Supporting Members and other allies,
On March 10th, the Senate voted 68-31 to pass an omnibus bill that will fund federal government agencies for the remainder of Fiscal Year 2022. The House passed the measure the previous day. The bill is now on President Biden’s desk.
Why is
By William Repicci, President & CEO of LE&RN
At a recent staff meeting, we discussed the emotional impact on those who live with lymphatic diseases (LDs). This includes lymphedema (LE), lipedema, lymphatic malformations (LM) or vascular anomalies. One thing was clear: most doctors know
In 1971, The National Cancer Act sparked an intensive $100 million quest for a cure. The National Cancer Institute (NCI) medical branch chief at the time was Dr. Vincent DeVita, Jr. Although he was skeptical of the approach, 50 years and $100 billion dollars later, he has changed his mind.
Read More >Before I wrote this letter I wrote my suicide note. I now know it’s not a matter of if, it’s a matter of when. I am 33. A single mum. I do not want to die but I cannot continue my ‘life’ like this. I am no longer living, merely existing. I am unable to tell you exactly what is wrong with me
Read More >NIH video below. Presentation by LE&RN President & CEO William Repicci begins at about the 16:00 mark. Transcript is provided beneath the video.
NIH-OSTP listening session on Advanced Research Project Agency—Health (ARPA-H) with focus on allergies and
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