From President & CEO, William Repicci

NIH is listening, responding, and acting; your stories are powerful

Before I wrote this letter I wrote my suicide note. I now know it’s not a matter of if, it’s a matter of when. I am 33. A single mum. I do not want to die but I cannot continue my ‘life’ like this. I am no longer living, merely existing. I am unable to tell you exactly what is wrong with me

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The Road to Independence from Lymphedema (LE)

"To be an unwell woman today is to fight against ingrained injustices against women’s bodies, minds, and lives. We no longer have to live in silence and shame." – Elinor Cleghorn, Unwell Women: Misdiagnosis and Myth in a Man-Made World
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COVID-19 and the Lymphatic Disease Community

COVID-19 and the Lymphatic Disease Community

Dear friends and advocates,
 
With the advent of COVID-19, the world finds itself in the midst of a pandemic. Those with lymphatic disease understand this dynamic all too well. You have been living in the midst of a lymphedemic that has largely been ignored. However, thanks to our community’s

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Important information for LE and LD researchers from LE&RN

Important information for LE and LD researchers from LE&RN

Above photo: LE&RN President & CEO William Repicci (third from right) and Tim Padera, Ph.D. (far right) pictured with the staff of National Heart, Lung, Blood Institute (NHLBI).

Dear Lymphatic Researchers,

Growing the lymphatic research portfolio at the National

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