Lipedema & Lymphedema Heart to Heart: Me, You, We, Us: A Collaborative 3-Day Virtual Community Learning Event is an interactive event to explore emerging strategies for implementing a holistic approach. We can enhance our knowledge about lipedema and lymphedema with world-renowned clinicians

“People can survive the ‘what’ provided they know or have a ‘why’…” – Viktor Frankl

This blog focuses on the “why” for anyone living with lymphedema (LE), to take AIM…and advocate! I offer you heartfelt wishes of courage, encouragement plus perseverance. It’s always about “questions”

Photo: Aurora Liu (center) and friends with the Red Cross Society of China distributing lymphedema handbooks

One of most gratifying aspects of my role at LE&RN is getting to meet incredible people from around the world who show remarkable dedication, ingenuity, and brilliance on behalf of

Dear Mr. Repicci,

…We welcome the opportunity to collaborate with LE&RN, the lymphatics research community, and those affected by lymphatics diseases in building a blueprint to further define a structure aligning with the concept of a national commission for lymphatics research. Through a

About suffering they were never wrong,
The Old Masters: how well they understood
Its human position; how it takes place
While someone else is eating or opening a window
or just walking dully along… by W.H. Auden (1938)

Dear LE&RN Supporting Members and other allies,

The poem above was

Dear LE&RN Supporting Members and other allies,

On March 10th, the Senate voted 68-31 to pass an omnibus bill that will fund federal government agencies for the remainder of Fiscal Year 2022. The House passed the measure the previous day. The bill is now on President Biden’s desk.
 
Why is

By William Repicci, President & CEO of LE&RN

At a recent staff meeting, we discussed the emotional impact on those who live with lymphatic diseases (LDs). This includes lymphedema (LE), lipedema, lymphatic malformations (LM) or vascular anomalies. One thing was clear: most doctors know

In 1971, The National Cancer Act sparked an intensive $100 million quest for a cure. The National Cancer Institute (NCI) medical branch chief at the time was Dr. Vincent DeVita, Jr. Although he was skeptical of the approach, 50 years and $100 billion dollars later, he has changed his mind.

NIH video below. Presentation by LE&RN President & CEO William Repicci begins at about the 16:00 mark. Transcript is provided beneath the video.

NIH-OSTP listening session on Advanced Research Project Agency—Health (ARPA-H) with focus on allergies and

"LE&RN and its members have been advocating to unlock the Department of Defense Peer-Reviewed Medical Research Program (PRMRP) so that lymphatic researchers can apply for research funding through this program that dispenses nearly $400 million in grants annually. We have made our case that