From President & CEO, William Repicci

NIH Begins Planning for National Commission on Lymphatic Research

NIH Begins Planning for National Commission on Lymphatic Research

Dear Mr. Repicci,

…We welcome the opportunity to collaborate with LE&RN, the lymphatics research community, and those affected by lymphatics diseases in building a blueprint to further define a structure aligning with the concept of a national commission for lymphatics research. Through a

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The Emotional Price of LDs: Becoming One’s Own Advocate

By William Repicci, President & CEO of LE&RN

At a recent staff meeting, we discussed the emotional impact on those who live with lymphatic diseases (LDs). This includes lymphedema (LE), lipedema, lymphatic malformations (LM) or vascular anomalies. One thing was clear: most doctors know

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NIH is listening, responding, and acting; your stories are powerful

Before I wrote this letter I wrote my suicide note. I now know it’s not a matter of if, it’s a matter of when. I am 33. A single mum. I do not want to die but I cannot continue my ‘life’ like this. I am no longer living, merely existing. I am unable to tell you exactly what is wrong with me

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