Lymphatic Education
& Research Network

pictured above: NYS Assemblymember Linda B. Rosenthal, LE&RN President and CEO William Repicci, and LE&RN Spokesperson Kathy Bates

Dear LE&RN Supporting Members and allies,

On October 2, 2018, Governor Andrew Cuomo signed a first-in-the-nation Act, authored by LE&RN. The public health

Bill now includes "lymphatic research" in Committee recommendations

Dear LE&RN Supporting Members and other LE/LD Advocates,

TOGETHER we are making progress. 

The U.S. Senate just passed its second minibus bill, which now goes to the House. Assuming passage there, it will go to the

Dear LE&RN Supporting Members, and Allies in the Fight Against LE and LD,

Along with other LE&RN representatives, I had the honor of meeting with the CEO of the American Medical Association (AMA), Dr. James Madara, in 2016. As we discussed expanding lymphatic disease education among medical

Dear LE&RN Sponsor,

Researcher Sheila Ridner, PhD, RN, called me to say she recently visited a health clinic in rural Kentucky. There on the reception desk was a stack of WebMD magazines with Kathy Bates’ photo on the cover and a headline featuring lymphedema (LE). As she saw visitors leave

Dear World Lymphedema Day Advocates,

As you know, we have been advocating for the World Health Organization to make "Lymphedema Awareness and Cures" its focus in 2018. They have just announced that this year will be dedicated to "Universal Health." Well, that's a step in the right direction,

Dear LE&RN Supporting Members and New York State residents,

If you are a New York State resident with health insurance that is not Medicare, and you have been denied treatment for lymphedema or denied coverage of physician-prescribed compression bandages or garments within the last few

Dear LE&RN Supporting Member,

Recently, I had an hour-long conversation with a nonprofit leader to talk about LE&RN’s efforts to fight lymphedema and lymphatic diseases. Within minutes of ending the call, I received a thoughtful e-mail wishing us luck in our battle against “lymphoma.”
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Dear Ally in the Fight Against Lymphedema and Lymphatic Diseases,

In March of 2015, I witnessed something extraordinary.

A six-year-old girl, Emma Detlefsen, appeared before the New York State legislature in Albany alongside myself and other representatives from LE&RN. For 12 years, LE&RN

Above photo credit: Sarah Dunn

Dear LE&RN Supporting Members and Community,

Estimable Oscar-winning actress Dame Judi Dench joined LE&RN's Honorary Board this week and we invite the LE&RN community to welcome her.

Dame Judi first became aware of lymphedema when her friend, photojournalist

Pictured above: Dr. Anthony Fauci, the Director of NIAID at NIH; LE&RN Spokesperson Kathy Bates; and LE&RN President & CEO William Repicci

On March 15, I had the honor of seeing Kathy Bates receive a Research!America award for her impact on public opinion as LE&RN’s spokesperson. At that