Stories to the NIH

A letter to the NIH from A.B., Illinois

Dear Dr. Collins,

My son is 45. A father, husband, and an important part of the art and humanities world in Chicago.

He developed lymphedema possibly from a fall that infected his leg about ten years ago. He carried on his healthy life until 2 years ago when one leg began to swell and then

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A letter to Dr. Collins, NIH Director, from Marcia R.

Dear Dr. Collins:

This is my story of so-called lymphatic disease. It reads the same as many but I am hoping that my letter will add to the impact of a system that has failed so many, including me. 

After being seen in the ER 11 years ago for chest pain. I was told I probably had an

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Lisa McKhann’s letter to the AMA and NIH

Dear Dr. Madara and Dr. Collins:

I first encountered the disease of lower-limb lymphedema in my father, who complained of “this damn leg” as it swelled to twice its normal size from prostate cancer treatments. He was a professor of surgery at Yale. He died of his cancer before I was

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A letter to the NIH from Kristin

A letter to the NIH from Kristin

Dear Dr. Collins, 

Thank you for taking the time to read my LE story.

In 1997, my dermatologist found a suspicious mole on the back of my left calf. The mole was surgically removed and the pathology report came back as “inconclusive” for
melanoma.

Subsequently, I was scheduled for surgery

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A letter to the NIH and the AMA from L.W.

Dear Drs. Collins and Madara:

I write to lend my voice in support of those thousands of men, women and children, including myself, suffering from lymphedema.

My story is simple. I had a wide axillary excision for breast cancer in Sept. 2014. I was proactive about the risk of lymphedema

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A letter to NIH from Susan S.

Dr. Collins:

I am writing to you on behalf of close friends and a family member,  all of whom have had breast cancer surgery and now suffer from lymphedema. This disease has severely altered their lives and had they and/or their doctors been aware of the onset of lymphedema symptoms, perhaps

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