A guest blog post by Catherine Seo, Ph.D. and Leslyn Keith, OTD, CLT-LANA. This is a 6-minute read.
Lipedema is a little known and generally misdiagnosed fat disorder, primarily in women, resulting in localized painful fat in the lower body including thighs, hips, and in some cases the
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This week, LE&RN worked with over 200 other non-profit patient advocacy community-based organizations in calling on Congress to include such organizations in any federal aid packages or supplemental appropriations measures.
LE&RN, along with other signatories, has also asked Congress to
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Dear friends and advocates,
With the advent of COVID-19, the world finds itself in the midst of a pandemic. Those with lymphatic disease understand this dynamic all too well. You have been living in the midst of a lymphedemic that has largely been ignored. However, thanks to our community’s
From its beginnings in 2016, World Lymphedema Day, March 6, has taken on a life of its own. In honor of this community-driven event, LE&RN is offering 50% off on registrations to everyone who registers for a 2020 LE&RN Run/Walk to Fight LE & LD (LymphWalk) on World Lymphedema Day.
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Join LE&RN for our next online Symposium, "Lymphedema Prevention Program...The Future in Cancer Care," with Sabrina Korentager, MSN, RN, BS, CLT-UE, on Monday, March 9, 2020, at 1pm EST (12 noon CST, 11am MST, 10am PST). To attend, simply click on the above link at the event time.
Thanks to
Twenty-three lymphedema organizations from all over Europe have created a Manifesto in honor of World Lymphedema Day (download copies below).
In addition, a group of advocates in Europe have joined forces to create these wonderful World Lymphedema Day pieces. Feel free to download and share. Read More >
The fifth anniversary of WLD, 3/6, will include grassroots events as well as new initiatives
Click here for the press wire link and for a downloadable PDF.
NEW YORK, NY – February 24, 2020 – World Lymphedema Day, March 6, was officially established by the U.S. Senate in 2016, with the New
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A guest blog by Brittany Williams and Betty Westbrook. This is an 8-minute read.
Brittany’s Story: Pediatric Lymphedema and the Brylan’s Feat Foundation
When my daughter Brylan was born, she came home a completely healthy baby. But at her one-month appointment, we noticed some swelling on
Read More >Melanie Rose Chaite
November 26, 1993 — February 12, 2020
On February 12, 2020, many members of our community lost a dear friend and we all lost a hero. Melanie Chaite was born with lymphatic disease and lymphedema, and she struggled with these enormous health challenges throughout her life.
Click here for the online press release and a downloadable pdf.
Lymphedema and lymphatic disease advocates and lawmakers will honor Deborah Carey
NEW YORK, NY – February 10, 2020 – Lymphatic Education & Research Network (LE&RN) representatives, Supporting Members, and other allies will meet
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