LE&RN recently spoke to Michelle Donnelly, a young woman in the UK living with lymphatic disease. We asked her to tell us what it's like to live with a lymphatic disease, and why it's important to support LE&RN.
After numerous tests, surgeries, and years of no answers, Michelle was finallyRead More >
Long Island-born James Russell is a teacher at Clarkstown South High School in Rockland County, NY. Russell graduated from St. Thomas Aquinas College, received a Masters in Social Studies Education from NYU, and another Masters Degree in Education. Unlike many other people withRead More >
Will Miles is a young man living with lymphatic disease. We asked him to tell us what it's like to live with primary lymphedema and to encourage you to give to our annual appeal.
My name is Will Miles and I’m a 25-year-old from Hilton Head Island, South Carolina. When I was 5 years old, IRead More >
Michael W. Masters is Founder/Portfolio Manager/Chief Investment Officer of Masters Capital Management and the primary investor and CEO of Celltaxis LLC. He graduated from the University of Tennessee, where he was an All-American swimmer. Masters feels the discipline of swimming helped himRead More >
Dear Researchers and LE&RN Advocates,
We have news of enormous consequence to both researchers and the patient community. Thanks to lobbying efforts by LE&RN and its advocates, the Senate FY 2023 Appropriations bill includes “Lymphatic Diseases” and “Lymphedema” as diseases eligible forRead More >
The 4th International Conference on Rare Diseases will be held December 7-8, 2022.
RARE2022 will follow on from the success of its predecessors, continuing to address the challenges of Rare Diseases. The conference will expand on “generic topics”, such as:
The role of whole genome
My name is Jennifer Kanyuch and I am a Physical Therapist Assistant in Grass Valley, CA. I graduated from Ohio University with a Bachelor’s degree in Biology and a PT Assistant degree from Central Ohio Technical College. I currently work in an outpatient PT clinic, which specializes inRead More >