Photo, left to right: William Repicci, Dr. Peter Mortimer of St. George’s University Hospital, Gemma Levine, Lady Carol Jenkins, Sir Karl Jenkins, and John Suchet, the evening’s moderator.
On April 20th, world-renowned photographer Gemma Levine hosted a Lymphedema Awareness event and
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LE&RN recently spoke to Michelle Donnelly, a young woman in the UK living with lymphatic disease. We asked her to tell us what it's like to live with a lymphatic disease, and why it's important to support LE&RN.
After numerous tests, surgeries, and years of no answers, Michelle was finally
Long Island-born James Russell is a teacher at Clarkstown South High School in Rockland County, NY. Russell graduated from St. Thomas Aquinas College, received a Masters in Social Studies Education from NYU, and another Masters Degree in Education. Unlike many other people with
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Will Miles is a young man living with lymphatic disease. We asked him to tell us what it's like to live with primary lymphedema and to encourage you to give to our annual appeal.
My name is Will Miles and I’m a 25-year-old from Hilton Head Island, South Carolina. When I was 5 years old, I
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Michael W. Masters is Founder/Portfolio Manager/Chief Investment Officer of Masters Capital Management and the primary investor and CEO of Celltaxis LLC. He graduated from the University of Tennessee, where he was an All-American swimmer. Masters feels the discipline of swimming helped him
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Dear Researchers and LE&RN Advocates,
We have news of enormous consequence to both researchers and the patient community. Thanks to lobbying efforts by LE&RN and its advocates, the Senate FY 2023 Appropriations bill includes “Lymphatic Diseases” and “Lymphedema” as diseases eligible for
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The 4th International Conference on Rare Diseases will be held December 7-8, 2022.
RARE2022 will follow on from the success of its predecessors, continuing to address the challenges of Rare Diseases. The conference will expand on “generic topics”, such as:
The role of whole genome