Lymphatic Education
& Research Network

Subject: Quality of life for LE Patients

Dear Dr. Madara,

I would like to address the “quality of life” issue as it relates to Lymphedema. The repercussions of a lymphedema diagnosis are varied and specific to the patient, but they are real. Ten years ago, during treatment for ovarian

As a result of my 2015 breast cancer diagnosis and subsequent chemo, surgery (double mastectomy), and radiation, I now have major lymphedema in my chest. Having it in the chest is not very common and I cannot find much information about it. My lymphatic system is blocked and I have constant

Above: LE&RN Activists at the New York Statehouse in Albany, NY, February 2020

LE&RN's New York State Lobby Day takes place virtually today, Tuesday, February 23, from 9:00 am to 5:00 pm. LE&RN activists will join LE&RN staff members in video calls with representatives in Albany to ensure

Dear Dr. Madara, 

My name is Olivia Eggers and I am a 23-year-old woman living with primary lymphedema (LE). I was born with this condition but was officially diagnosed with LE when I was 9 months old. I have an extremely rare form of LE as it affects my entire body due to my lymphatic

This year, the LE&RN New York State Lobby Day will take place virtually on Tuesday, February 23, from 9:00 am to 5:00 pm. We need you to be part of the contingent, joining us as we connect via video calls with our representatives in Albany to ensure that our agenda of fighting lymphedema and

In August of 2020, hundreds of activists, mobilized by LE&RN, took part in National Action Week. This resulted in Congress calling on the National Institutes of Health to establish a National Commission on Lymphatic Diseases. It also established a $1.5 million competitive grant program

The 2021 American Venous Forum will be held March 17-20, 2021.  For more information and to register, click here.

The Chicago Breast & World Lymphedema Symposium will identify, discuss, and demonstrate complex breast reconstruction and lymphedema therapies within the framework of creating and maintaining multidisciplinary relationships. The standard of care for breast cancer and for lymphedema span

Join LE&RN on March 6, 2021, for a Virtual Global Celebration honoring World Lymphedema Day!

The event is presented by LE&RN and hosted by LE&RN Spokesperson Kathy Bates. It will feature the debut performance of the one-act play Let's Talk Lymphedema by Brian Daniels, based on the book Let's

Join LE&RN on Thursday, February 11, at 12:00 pm ET (11:00 am CT, 10:00 am MT, 9:00 am PT) for Complex Lymphatic Anomalies with Bony Involvement, a free Zoom Symposium presented by Taizo A. Nakano, M.D.

Register now and join us via Zoom on February 11. The presentation will include a Q&A.