Privacy Policy

Privacy Policy of the Lymphatic Education & Research Network

The Lymphatic Education & Research Network (LE&RN) respects the privacy of its online visitors. We do not collect personally identifiable information from a visitor unless they provide it to us voluntarily and knowingly. We do not require you to provide any information to us in order to view our site. Only information that would identify the user (such as names, addresses, zip/postal codes, e-mail addresses, etc.) is gathered when the visitor voluntarily submits the information. The only time this information is requested is when the visitor subscribes to a mailing list, joins either the professional or patient registry, orders a publication or registers for an event. The information is used solely by the Lymphatic Education & Research Network for internal purposes, and it is never sold to or shared with a third party.

This web site is owned and maintained by the Lymphatic Education & Research Network.

Personal Information

LE&RN may use your contact information to provide you with information, materials and services, to enable you to make donations and to participate in activities, events, and offerings available through the Sites. LE&RN may also use your contact information to (i) advertise its events, programs, products, and services, (ii) assist with security or fraud prevention or response measures, (iii) facilitate a website feature that requires user input, or (iv) to get in touch with you with respect to any transactions conducted through the Sites.

LE&RN may use demographic information for marketing and management purposes in order to continue to provide or improve the Sites. In addition, LE&RN may share aggregated survey results and aggregated demographic data (which will not identify any particular user) collected through the Sites with its vendors, business partners, the general public, the news media, and with the U.S. Government and state governments.

Financial Information

LE&RN may collect credit or debit card information. Personal financial information in the form of a credit card number and expiration date are only collected if a user wishes to make an online donation through LE&RN’s website or one of LE&RN’s event pages. This payment information is securely stored within our donation software. All online transactions are protected and securely transmitted. LE&RN will use financial information to facilitate a donation or other transaction, such as recurring donations.

Data Security

LE&RN maintains data security measures in line with current industry standards for the Sites to protect the Personal Information under its control against unauthorized access and disclosure. These measures include the implementation of reasonable industry recommended technical, physical and administrative data security safeguards. LE&RN's software provider, Kindful, securely stores donor financial information and processes financial transactions. Recurring donations are processed as the donor requests using stored financial information that the donor enters. LE&RN uses an SSL Certificate to encrypt and protect any data transmitted through our website. Role based access ensures that only authorized personnel with specific unique IDs and passwords can access credit card transactions based on business needs, solely for the purpose of processing authorized transactions. LE&RN does not have direct readable access to any credit card numbers but can view transactions through our donation software to void or refund transactions. LE&RN also requires that the vendors LE&RN engages with, with respect to the Sites, employ reasonable industry standard data security safeguards when carrying out their services on LE&RN’s behalf.

Third Party Intermediaries

LE&RN uses various third party transaction services to process online donations and provides our Chapter chairpersons the option of receiving certain of our marketing materials by request via email. These materials are shipped by the US Postal Service.

We will only provide these companies the information they need to deliver the service and prohibit them from using that information for any other purpose. These companies or organizations do not share or use Personal Information that may be obtained from these transactions for any secondary purposes.

LE&RN may need to share Personal Information with third parties in other limited circumstances. For example, we may release Personal Information to third parties to perform services on our behalf such as: advising you of our upcoming events, products, partnership offers, volunteer opportunities, and health-related information or processing credit card payments. However, third parties retained by LE&RN to provide such services are obligated to maintain the confidentiality of this information and are not authorized to use this information for any purpose other than providing those services.

This web site contains links to other web sites that are not under our control, and the Lymphatic Education & Research Network is not responsible for the content of any linked web site, or any link contained in a linked Web site, or any changes or updates to such web sites. The inclusion of any link does not imply endorsement by the Lymphatic Education & Research Network of that web site.

To the extent hyperlinks are utilized to access third party sites (not controlled, owned, or operated by LE&RN), you should be aware that these external or third party sites may collect Personal Information and are not subject to this Privacy Policy. This Privacy Policy applies only to the Sites. LE&RN suggests that you check the privacy policies of other web sites to determine how the proprietors of these third party sites will utilize your Personal Information.

Business Transactions

In the event that LE&RN goes through a business transaction such as a bankruptcy event, merger, investment transaction, or acquisition by another entity involving the sale of all or a portion of its assets, the Personal Information collected by LE&RN may be among the assets reviewed.

Legal Action

LE&RN may disclose Personal Information when legally required to do so. LE&RN may also disclose Personal Information to protect against misuse or unauthorized use of the Sites or to limit legal liability or to protect LE&RN’s interests or those of others.


We respect our donors’ choices and control over their information. You, as a donor may, at any time, have your name excluded from any donor activity lists. We also recognize that you may wish to limit the ways in which we contact you, and we offer the following options for restricting internal and external sharing of your contact information:

Do not contact me by telephone.
Do not contact me by postal mail.
Do not contact me by email.

To update your personal information or change how LE&RN contacts you, please email us at or call the office at 516-625-9675. In addition, you may opt out of our emails via the “unsubscribe” link provided in the electronic communications.

We will take all reasonable efforts to ensure that your requests are honored in a timely fashion. Please note that if you are an active participant in one of our fundraising events, you may receive communications related to that event regardless of your overall opt out selections. In addition, if you make donations to LE&RN, you may receive correspondence via mail or email in response to each donation.

Telephone: 516-625-9675


Postal Mail:

Lymphatic Education & Research Network
99 Wall Street, #5440
New York, NY 10005



The information on this website has been written for educational purposes only, it cannot be used for diagnosing or treating a health problem or a disease. If you have or suspect you may have a health problem, you should consult your doctor. No responsibility can be accepted for information on any linked page, please read the provider's own disclaimer where appropriate. Inclusion in this guide in no way implies endorsement for particular organizations or linked material.