LE&RN Global Registry for Lymphatic Diseases

A worldwide effort to accelerate research, improve care, and move us closer to a cure.

Why It Matters

There is an urgent need for real-world data on lymphatic diseases. Your experiences can help drive breakthroughs in diagnosis, treatment, and long-term outcomes.

Our Goal

To build the world’s most comprehensive, patient-centered registry that fuels cutting-edge research, speeds new treatment development, and charts a path toward cures.

Who Can Join

Anyone living with a lymphatic disease—primary or secondary lymphedema, lipedema, or lymphatic anomalies. Parents/guardians may enroll children.

How to Join

Enrollment is simple and secure. Start with a 5–10 minute Initial Contact Survey, then complete additional questions tailored to your diagnosis. You can save your progress and return anytime.

By joining today, you help researchers create tomorrow’s cures.