Dear Certified Lymphedema Therapist:
I am a Doctor of Health Administration student under the direction of Dr. Angela Burrell in the School of Health Related Professions at the University of Mississippi Medical Center. I am conducting a research study to gain a deeper understanding of how lymphedema providers in the United States engage in and perceive advocacy and policy initiatives aimed at improving access to lymphedema treatment. My doctoral study is entitled Exploring the Landscape of Lymphedema Advocacy and Policy Advancement: A Sequential Explanatory Mixed Methods Study on Provider Engagement and Perceptions.
You have been invited to take part in this study because your perspective as a certified lymphedema therapist is valuable for understanding provider involvement in advocacy and policy. If you agree to participate, you can access the phase one survey, which takes approximately 10 minutes, through the following link: https://redcap.link/Lymphedema
(Click this link or copy and paste in your browser)
Upon completing phase one, you will have the option to further engage in phase two by providing contact information for a one-on-one interview. Your participation in this study is entirely voluntary, and there will be no consequences if you choose not to participate or decide to withdraw at any point. While the research findings may be published, your identity will remain confidential. The phase one survey is anonymous, and the results of the phase two interviews will be deidentified and safeguarded.
If you have any questions concerning the research study, please email me at firstname.lastname@example.org or Dr. Burrell at email@example.com.
By participating in the survey, you are indicating your consent to take part. Thank you for considering this opportunity.
Tricia Grantham-Price, OTR/L, CLT-LANALearn More >
This is a research opportunity for people with or at risk for leg lymphedema (LE).Learn More >
Researchers at Stanford University in Stanford, CA are conducting a study on the response to a drug for lymphedema. You may be eligible for this study if you have single arm lymphedema and qualify for the drug therapy. Participants will not be paid for their participation. The enrollment duration is approximately 9 months.
Key Inclusion Criteria:
1. Single arm lymphedema
2. Lymphedema of ≥ 6 months duration.
3. Male or female.
4. Ages 18-75.
The Stanford Center for Lymphatic and Venous Disorders evaluate all prospective participants to assess if they are appropriate candidates for the study. There are four research-related appointments.
For more information, please contact:
Marissa Dobry, Clinical Research Coordinator
Email address: firstname.lastname@example.org
For general information about participant rights, contact 1-650-725-9820.Learn More >
Physical and Occupational therapists, plastic and vascular surgeons, and lymphatic researchers may all teach Manual Lymphatic Drainage (MLD) a little differently. Providers from UCHealth and the University of Colorado teamed up to improve and learn to teach MLD the same way. This is to reduce the lymphedema burden on patients.
For more information, contact NargisKalia, MPH at 303-724-7361 or email@example.com
The study consists in a first-in-man clinical investigation for LymphoPilot, an investigational implantable medical device. LymphoPilot is composed of an implanted part and an external wearable device. The implanted part (pump, drainage catheter and output catheter), is implanted in the subcutaneous tissue of the arm and drains excess fluids to the supraclavicular subcutaneous tissue, where fluids are naturally reabsorbed by the healthy lymphatic and venous system. The external part consists in a wearable controller used to activate the implanted pump.Learn More >
Do you have lymphedema? Please respond to this anonymous on-line survey: Lymphedema Patient Survey
It will take only 3 minutes, but your participation is extremely important! The data that we collect will help us to inform doctors, hospitals, third party payers and the government about the lymphedema patient experience.Learn More >
Researchers from the Boston Lymphatic Center at Beth Israel Deaconess Medical Center are conducting a study to identify normal variation in lymphatic anatomy in the upper extremities of female breast cancer survivors. For more information, download the flyer below.Learn More >
IS THIS STUDY RIGHT FOR YOU?
❖ Have you been diagnosed with breast cancer related lymphedema?
❖ Do you experience difficulty with everyday tasks due to symptoms associated with breast cancer related lymphedema (BCRL)?
❖ Are you limited with your ability to perform successfully at work due to symptoms?
❖ Do you currently receive rehabilitation services for lymphedema management secondary to breast cancer?
❖ Inclusion criteria: female between the ages of 18-65, diagnosed with breast cancer or breast cancer related lymphedema.
❖ Exclusion criteria: outside of the age parameters listed in the inclusion, not a female, does not have a diagnosis of breast cancer or breast cancer related lymphedema.
WHAT WOULD YOU HAVE TO DO?
● Participate in a short 15 question internet survey, answering the questions to the best of your ability.
● The survey will be anonymized, and no collection of any identifiable information will occur to avoid any violation of protection to the participants.
● Private message the study investigator on the Facebook support group to participate in the study.
This study is voluntary and you may withdraw at any time. Your information will be kept confidential and no information that could potentially identify you will be published.
If you would like to receive more information regarding the study, please contact the investigator for this study:
Soraya Martinez, Occupational Therapy Doctorate Student at the University of St. Augustine for Health Sciences, Email: firstname.lastname@example.org; Phone number: 407-535-7749Learn More >
An update on the priorities for women living with breast cancer related lymphoedema and the relationship with severity
The University of Sydney is conducting an online survey looking at the needs of women living with breast cancer-related lymphoedema. Participation in this research study is voluntary. The survey will take approximately 20 minutes to complete.
Women who have been diagnosed with breast cancer and as a result of treatment and have experienced upper limb swelling (lymphoedema). Women should have completed treatment for their breast cancer (except for hormone treatment) at least 6 months ago and have experienced upper limb lymphoedema for more than 12 months
A survey will be completed online which will investigate your needs arising from living with upper limb lymphoedema including:
· The severity of your lymphoedema.
· How lymphoedema has impacted your daily and working life.
If you have breast cancer related lymphoedema with access to the internet using a computer, laptop, Ipad or smart phone we would love to hear from you!
To participate in the survey, click here.
If you have questions or would like more information about participating, please contact us at email@example.com.Learn More >