Parents of children who have been diagnosed with lymphedema are invited to participate in a research study at Miami University (Ohio). The purpose of this study is to better understand the experiences of biological parents of children with lymphedema.
They are interested in learning more from you about what it is like for you in caring for a child with primary lymphedema. Specifically, they want to know about your unique challenges as a parent, your role as an advocate for their child in health care, school-based, and other settings, how you explain lymphedema to your children and how you help your children in turn explain lymphedema to others.
Volunteers will participate in an informal interview over the telephone, via video conference (e.g, FaceTime, Skype, Google Hangout), or face-to-face with an interviewer. The interview may last up to one hour
This study has been approved by the Miami University Institutional Review Board: 01182r.
If you would like to participate in this opportunity, please contact the Principal Investigator:
Elise Radina, PhD, CFLE
Professor and Acting Chair
Family Studies & Social Work
For more information and/or scheduling a study appointment, please contact Pamela Ostby, PhD(c), RN, OCN® at 314/255-6677 or you can email firstname.lastname@example.org.
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