Subject: MILLIONS of People living/suffering with lymphedema need YOUR HELP!!!

Dear Dr. Madara and Dr. Collins,

My name is Dr. Sheri Prentiss and I was a successful practicing physician, overseeing the Occupational Medicine and Employee Health Departments of the largest healthcare system in

Dear Dr. Madara,

Every day I study my left arm and breast in the mirror, checking for redness, splotches, or swelling. I stretch, do deep breathing, perform 30 minutes of manual lymph drainage, and put on custom compression garments which I wear on my arm and breast 24 hours a day, 7 days a

Good afternoon,

I’m 33 years old and was recently diagnosed with primary lymphedema after seeing multiple doctors and having many scans done. The swelling in my left leg/labia began about a year ago while pregnant with my second son who is now 16 months old. I experienced the swelling in

December 18, 2020

Dear Dr. Madara,

My name is Francile Elrod and in 2011, at the age of 39, I was a vibrant person; a spouse and mother of three incredible children, a full-time employee at a near-by University with a bright future before me, and a very physically fit and engaged individual

I have been working with lymphedema patients for almost 20 years, providing them with education, compression garments, compression pumps and referrals to Certified Lymphedema Therapists.  

I am truly disheartened by the lack of or minimal benefits these patients are allotted by insurance

I sit writing this in a considerable amount of pain. I am experiencing a lymphedema flare, a long-lasting one that I have not been able to get under good control, despite my having spent the last two months making twice-weekly visits to my closest lymphedema clinic ( in Portland ME - a 3 1/2

Hello. I’m glad you are interested in my lymphedema story. I am a 79-year-old female. When I was 10 years old, about a year after my family moved from England to Toronto, I began to menstruate, which was pretty early for girls in 1951. I noticed that my feet and ankles began to swell at that

Two years ago, Dr. Stanley G. Rockson (Stanford University Endowed Chair in Lymphatic Medicine) drafted an article for the Journal of American Medicine (JAMA) to highlight the issues faced by the lymphatic disease community.

The article, "Lymphatic Medicine: Paradoxically and Unnecessarily

Dr. Madara,

I am writing today to request that the AMA have increased focus in the medical community on lymphatic disorders and treatment across all platforms. I am a five-year breast cancer survivor.

Five years ago I opted for a bilateral mastectomy for lobular carcinoma that had been

Dr. Madara,

From 2005 to 2014, I gave birth to four beautiful children and lost three of them due to a rare disease known as lymphangiectasia which is a rare lymphatic disease. Imani, our first-born showed early signs of complications, and only lived for six months. Most of our time with her