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A letter to the American Medical Association (AMA) from Mallory Jacobson

Good afternoon,

I’m 33 years old and was recently diagnosed with primary lymphedema after seeing multiple doctors and having many scans done. The swelling in my left leg/labia began about a year ago while pregnant with my second son who is now 16 months old. I experienced the swelling in only my upper thigh and left labia. However, after giving birth to him the swelling progressed down my entire left leg. I now experience left leg and left labia swelling, chronically. I’m a healthy young adult with two young boys. I’m very active and work out at least 5-7 days per week. I own a peloton so I typically ride about 30 minutes daily and also incorporate upper body strength workouts and stretching into my routine. Living with lymphedema has been frustrating and uncomfortable. To relieve symptoms I wear compression socks daily and I bandage at night and sleep in the bandaging, I also try to use my leg pump a few days a week. The leg pump does require one hour, which isn’t always easy to do when working full-time, raising two young boys, and living a busy life.  

I take my health very seriously and I genuinely work hard to constantly improve my well-being. I’m hopeful that this chronic illness will have more solutions, support, and research to support those who suffer with this painful, debilitating illness.

Please feel free to contact me with questions. I’m very passionate about this cause and I’m an open book and more than willing to share my story.

Thank you for your time!

Mallory Jacobson
Woodbury, MN