Subject: Quality of life for LE Patients

Dear Dr. Madara,

I would like to address the “quality of life” issue as it relates to Lymphedema. The repercussions of a lymphedema diagnosis are varied and specific to the patient, but they are real. Ten years ago, during treatment for ovarian

As a result of my 2015 breast cancer diagnosis and subsequent chemo, surgery (double mastectomy), and radiation, I now have major lymphedema in my chest. Having it in the chest is not very common and I cannot find much information about it. My lymphatic system is blocked and I have constant

Dear Dr. Madara, 

My name is Olivia Eggers and I am a 23-year-old woman living with primary lymphedema (LE). I was born with this condition but was officially diagnosed with LE when I was 9 months old. I have an extremely rare form of LE as it affects my entire body due to my lymphatic

Dear Dr. Madara:

In December of 2020, I sent the email reprinted below to you. Sadly, I received no response, and it seems that the American Medical Association has remained silent about lymphedema. Why? Perhaps no one in the association members’ families or close friends has had the

Dear Dr. Madara,

I recently joined the LE&RN community. It's been a great place for me for access education and advocacy for lymphatic diseases. I'm writing to you to share my personal story and experience with lymphedema with the sincere hope that it helps to bring about change. 

In 2017,

A letter to the American Medical Association (AMA) from Brenda Elliot

Dear Dr. Madara,

I received an email from LE&RN regarding my chronic condition of Post-Secondary Lymphedema due to Breast Cancer Surgery. I felt compelled to write to you about my own experience with this debilitating,