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Eight-year-old Connor Looby is full speed ahead in fight against rare lymphatic disorder

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CONTACT:
Laura Farrell
917.751.7379
lfarrell@lymphaticnetwork.org

Eight-year-old is full speed ahead in fight against rare lymphatic disorder
Mahopak, New York resident to participate in walk to raise funds and awareness

New York, NY – September 16, 2015 – Be careful not to blink at this year’s Walk to Fight Lymphedema & Lymphatic Diseases. You might just miss eight-year-old Connor Looby’s trip across the Brooklyn Bridge.

The Mahopak, New York fourth grader, who has spent his whole life fighting a rare lymphatic disorder, promises he will be sprinting across the bridge at the Lymphatic Education & Research Network (LE&RN) 2015 5k Walk to Fight Lymphedema & Lymphatic Diseases on September 19 in Brooklyn, New York. At 6-weeks-old Connor was diagnosed with a rare lymphatic disorder (intestinal lymphangiectasia). He also has lymphedema in his legs. He has endured numerous tests, surgeries and therapies, and currently receives weekly infusion and daily physical therapy.

“I do it so I can help find a cure,” said Looby, adding that he doesn’t mind the added bonus of getting to run ahead of the pack on the Brooklyn Bridge. “I like to run,” he explained. “I want to be ahead of everyone else.”

In terms of advocacy and fundraising, Looby is definitely at the front of the line. At the 2013 Walk to Fight Lymphedema & Lymphatic Diseases, Connor was named the first-ever McKenna Shea Johnson Youth Ambassador and in March 2014, the New York State Legislature honored him for his advocacy and fundraising efforts.

And this year he hasn’t slowed down. He is among the top fundraisers for the event, and over the last two years has brought in over $10,000 for the organization. In March, with the help of his mother Jennifer, he organized a dinner dance to help bring in more donations. 

Looby began his fundraising and awareness efforts in 2013, when he and his family and friends formed a team — Connor’s Spartans — for an obstacle race course in Tuxedo, New York, to benefit lymphatic disease research. From there he decided he wanted to keep fighting. He took part in the 2013 and 2014 LE&RN walks and got to see the Statue of Liberty for the first time.

To donate to his team, “Connor’s Spartans,” visit LymphWalk.org and search for his team name.

About the Walk
The Lymphatic Education & Research Network (LE&RN) 2015 5k Walk to Fight Lymphedema & Lymphatic Diseases, which will begin at 9:30 a.m. with registration at Cadman Plaza Park, Brooklyn and commence at 11:00 a.m. with a ribbon cutting and speeches. Registration is easy and teams are forming now.

The Walk to Fight Lymphedema & Lymphatic Diseases is sponsored by BSN Medical (Presenting Sponsor) and ImpediMed, L-Dex, Bio Compression Systems, Eiger Pharmaceuticals, Medi USA, Mikimoto, Luna Medical, Mount Sinai,Lohmann & Rauscher, Solaris, ShechterCare, Tactile Medical, Lympha Press, BioHorizon Medical, The Norton School, and Printology.

About LE&RN
Founded in 1998, the Lymphatic Education & Research Network (formerly LRF) is a 501(c)(3) not-for profit organization whose mission is to fight lymphatic disease and lymphedema through education, research and advocacy. LE&RN provides valuable education resources for the millions of people who suffer from lymphedema and lymphatic disease. LE&RN fosters and supports research that can deepen the medical community's understanding of the lymphatic system. For more information about lymphatic disease or the Lymphatic Education & Research Network, please visit www.LymphaticNetwork.org or call (516) 625-9675.

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