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Lymphedema & Lymphatic Disease Matters, News from LE&RN April 2019

Lymphedema & Lymphatic Disease Matters, News from LE&RN April 2019

Run (or Walk!) to your nearest #LymphWalk!

Run/Walk season is officially upon us. LE&RN kicked off the season with an amazing DC Rally & Walk on March 30. LE&RN Spokesperson Kathy Bates energized hundreds of participants on the steps of the Lincoln Memorial before the group walked the circumference of the National Mall.

The next Run/Walk is Saturday, May 18, in Massachusetts, just outside of Boston. The Colorado Chapter hosts on June 2, California's is in Santa Monica on June 23, and the original LymphWalk will mark its 10-year anniversary on October 19 in New York City. 

Find out more about all the upcoming LymphWalks at or on LE&RN's blog, including access to discounts codes good for the first 100 registrants for each Run/Walk. Register soon, before all the discounts sprint away!


LE&RN Spokesperson Kathy Bates testifies at House Appropriations Subcommittee and appears on Morning Joe

On April 9, 2019, LE&RN Spokesperson Kathy Bates appeared before the House Appropriations Subcommittee on Labor, Health and Human Services, Education, and Related Agencies. Her testimony had been requested by Rep. Rosa DeLauro (CT), House Committee on Appropriations, Chair, when the two met during LE&RN Lobby Days in March. For complete details, visit

The day before the testimony, Ms. Bates appeared on MSNBC's Morning Joe (full video here) to talk about her advocacy.


LE&RN President & CEO speaks at World Symposium for Lymphedema Surgery, Taiwan

The 8th annual World Symposium for Lymphedema Surgery was held in Taiwan, April 25-27, 2019. LE&RN President & CEO William Repicci was keynote speaker.

Lymphatic Forum

LE&RN and NAVBO are pleased to present the upcoming Lymphatic Forum 2019, Exploring the Lymphatic Continuum, May 30-June 1, 2019, at the AT&T Conference Center, Austin, Texas. Through a grant from the McDowell Family in honor of their daughter Colette who was born with a rare lung disease called pulmonary lymphangiectasia, LE&RN sponsored 20 $500 Travel Awards for young investigators to the Forum. Juzo generously sponsored four poster presentation awards (one $1,000 US currency and three $500 US currency) for the best research posters at the Forum. 


USAID conducting filariasis drug study for treatment of LE

For World Lymphedema Day, a USAID-supported project created a video focused on their current drug study to treat lymphedema (LE) associated with mosquito-borne infection. An estimated 250 million people worldwide live with LE. In tropical areas, lymphatic filariasis is a major cause of the disease.

LE&RN maintains that by bringing the world together in a collective fight against lymphedema and lymphatic diseases, we exponentially increase the opportunities to find new treatments and cures. We applaud our colleagues at USAID and proudly share their video with you.


Upcoming LE&RN Livestreamed Symposium with Dr. Emily Iker

Emily Iker, M.D. will present "From Diagnosis to Lymphedema Management" on May 15, at 1pm EDT (12pm CDT, 11am MDT, 10am PDT). Please join us by visiting our Livestream channel on May 15. LE&RN's Symposium Series is free and open to all thanks to the generosity of LE&RN Supporting Members and Sponsors.

Seeking military personnel with LE potentially related to service in or around "Burn Pits"

LE&RN is fighting to get the Department of Defense and Veteran’s Administration to increase research and services impacting military personnel. Last year, LE&RN told Congress that over 60,000 military personnel had been exposed to toxic chemicals emanating from the burn pits of Iraq and Afghanistan. Thousands of these veterans are now reporting burn-pit-related ailments such as cancer. LE&RN will bring this issue directly to Congress, CDC, NIH, and VA. If you, or someone you know, is in the military and has been diagnosed with LE that is potentially related to service in the vicinity of the burn pits, we want to hear from you. To learn more about this issue, read the March letter from President & CEO William Repicci.


CME Seminars for Physicians: Lymphatic-Vascular Disease, Diagnosis & Treatment

LE&RN is proud to present the groundbreaking CME Seminars for Physicians: Lymphatic-Vascular Disease: Diagnosis &Treatment, developed in association with Lymphedema Seminars. We thank Presenting Sponsor Lympha Press and Premiere Sponsor Sigvaris Group for making this possible. These courses are an exciting and convenient on-line educational portal for physicians for understanding the interplay of the lymphatic and vascular systems as related to patient health. Both Level 1 and Level 2 are offered together for just $99, and signing up on-line is quick and easy.


The American Society of Breast Surgeons' 20th annual meeting takes place this week; limited on-site registration available

The American Society of Breast Surgeons' 20th annual meeting will be held 4/30-5/5 in Dallas, TX. The Society is honored to present Academy Award-winning actor and LE&RN Spokesperson, Kathy Bates, as the Keynote Speaker. 


Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out LE&RN'S Virtual Expo today.