News & Events

Lymphedema & Lymphatic Disease Matters, April 2021

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April 2021

From William Repicci, President & CEO

There is a palpable excitement in the field related to advances on so many fronts. LE&RN’s Centers of Excellence continue to grow. We await a report from the National Institutes of Health in compliance with Congress’ Appropriation Bill request for them to establish a National Commission on Lymphatic Diseases (LD). In May, we anticipate the CDC grant announcement for chronic disease awareness projects for which we have lobbied. Activist and Coast Guard veteran Kelly Bell has joined me on calls with each Senator on the Defense Appropriations Committee to support inclusion of LDs as a category eligible for study in their medical research budget. And in the last week alone, we have had two meetings with companies looking to introduce drug studies in lymphatics and lymphedema treatment.
 
This news is offset by what seems an endless stream of calls and emails from people with LDs who have been misdiagnosed for years. So, we continue to look to the leadership of the American Medical Association and other physician organizations to grapple with the failures of this profession to seriously address the needs of those living with LDs. Only your voice and stories can move this needle.
 
I look at the success of our first Virtual Global Run/Walk, which took place on April 17. People from around the world joined together in one celebration, with actor Steve Guttenberg emceeing the event, talk show host Wendy Williams adding support and Spokesperson Kathy Bates appearing on Ireland’s The Late Late Show to honor LE&RN Walk Courage Award recipients, 9-year old Mary-Kate and 7-year old Ben Tierney. My thanks to all those who supported this event and honored our heroes.
 
There is much to cheer about – and much more to do. 
 
I am pleased to present the April edition of Lymphedema & Lymphatic Disease Matters.

 

Thank you!
This year's #LymphWalk was our best ever.

On Saturday, April 17, our community came together to celebrate all we have accomplished, to honor our heroes in the cause, and to raise $155,000 for LD education, research, and advocacy. We counted 57 teams and 389 registered runners/walkers at the event.

You can still watch the celebration, listen to speeches from our honorees, post photos and videos on social media (use the hashtag #lymphwalk), and even donate through May 16. Just visit LymphWalk.org.
Watch the Global Virtual LymphWalk
 

Free online Symposium presented by Dr. Christopher Smith

Join LE&RN for "New diagnostic procedures and interventions for patients with systemic lymphatic disease," presented by Dr. Christopher Smith on Thursday, May 13, at 12 noon ET. Register today on LE&RN's Zoom event page.
Register for this Symposium now
 

Lymphatic Forum 2021

For the first time, everyone in our community is welcomed to join the scientific biennial Virtual Lymphatic Forum 2021, May 31 to June 5.

The all-virtual Forum kicks off on May 31 at 12 noon ET with a keynote lecture delivered by Kari Alitalo, M.D. Each day of the week-long event will feature talks by leaders in the field of lymphatics, such as Babak Mehrara, Barbara Garmy-Susini, Michael Detmar, Tim Padera, Isaac Lee, Shailesh Agarwal, Chris Bertram, Natalie Trevaskis, Gou Young Koh, Veronique Angeli, Natasha Harvey, Guillermo Oliver, Pia Ostergaard, Jonathan Kipnis, Melody Swartz, Cornelia Halin, Mark Nicolls, and Ebba Brakenhielm.

Four Young Investigator Abstract Awards (one $500 US currency and three $250 US currency) will be awarded to the top abstracts selected.

Registration discounts are available for members of LE&RN, NAVBO, and the Microcirculatory Society.

The Lymphatic Forum is sponsored by the Lymphatic Education & Research Network and North American Vascular Biology Association, and is co-sponsored by the Microcirculatory Society.
Register for the Lymphatic Forum 2021
 

U.S. Senate reintroduces the Lymphedema Treatment Act (LTA)

In March, the Lymphedema Advocacy Group announced that the U.S. Senate reintroduced the LTA and that the House of Representatives will be reintroducing a House version of the Bill.
Find out more about the LTA