News & Events

Lymphedema & Lymphatic Disease Matters, January 2021

View this email in your browser

January 2021

From William Repicci, President & CEO

Welcome to the brave new world of 2021 where LE&RN is enthusiastically ready to capitalize on the progress our community made last year. That progress was particularly remarkable considering the many obstacles we all faced.

Hurdles aside, I thank you for supporting our 2020 Annual Appeal, which surpassed its goal and ensures that LE&RN's critical programs and agenda move forward. Our 2020 National Action Week, held last summer, drew hundreds of activists and made advocates of dozens of lawmakers. This year, LE&RN's National Action Week (March 22-26) will keep pressure on Congress to make LE a national priority. And we continue to work with qualified institutions around the world to expand our Centers of Excellence program.

I also offer a special thanks to LE&RN’s 2021 Corporate Sponsors, who play a critical role in giving back to the community by supporting our programming. Together with our Supporting Members, they are helping to accelerate the global change we seek.

I am pleased to present the January edition of Lymphedema & Lymphatic Disease Matters.
 

World Lymphedema Day Virtual Global Celebration

On March 6, LE&RN will present a very special global celebration in honor of World Lymphedema Day—all online. The event will be hosted by LE&RN Spokesperson Kathy Bates and will feature a debut performance of the one-act play Let's Talk Lymphoedema/Lymphedema by Brian Daniels, based on the book Let's Talk Lymphoedema by Professor Peter Mortimer and Gemma Levine. The play will be directed by Mark Armstrong in association with The 24 Hour Plays. This event is generously sponsored by Juzo. 
Purchase tickets here
 

National advocacy efforts 2021

In 2020, LE&RN's lobbying efforts led to the final U.S. FY2021 Appropriations Bill including direct and strong language calling for the establishment of a National Commission on Lymphatic Diseases. LE&RN also succeeded in having $1.5 million appropriated to the CDC for chronically neglected disease awareness, with lymphatic diseases provided as the sole example. Lymphatic diseases are not yet included in the Department of Defense (DOD) Peer-Reviewed Medical Research Program (PRMRP) and the Lymphedema Treatment Act (LTA) is yet to pass, but we have made progress and will continue this effort in 2021. Now, the fight continues as we work with Congress to ensure that the promises made to our community are kept. Stay tuned for more information on this year's National Action Week, March 22-26.

 

Upcoming Symposium

Join LE&RN on Thursday, February 11, at 12:00 pm ET (11:00 am CT, 10:00 am MT, 9:00 am PT) for Complex Lymphatic Anomalies with Bony Involvement, a free Zoom Symposium presented by Taizo A. Nakano, M.D.

Register now and join us via Zoom on February 11. The presentation will include a Q&A.
Register for the February 11 Symposium
 

Save the date for New York State Virtual Lobby Day

Calling all New York State residents! This year, LE&RN New York State Lobby Day will take place virtually on Tuesday, February 23, from 9:00 am to 5:00 pm. We are fighting for funding for LE&RN, a comprehensive LE treatment insurance bill, and research fellowships at top New York State institutions. New York State residents: register at this link. We'll then follow up with you for a short training session and let you know how you'll make an impact in Albany on February 23.
Register for New York State Lobby Day, February 23
 

American Venous Forum, 3/17-3/20

The American Venous Forum will be held virtually, March 17-20. Registration is now open.