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Lymphedema & Lymphatic Disease Matters, June 2018

Lymphedema & Lymphatic Disease Matters
News from LE&RN June 2018

Above photo: Holland Taylor, Josh Pence, Sarah Paulson, Kathy Bates, and William Repicci celebrate before another successful CA #LymphWalk at the top fundraiser reception, hosted by Kathy Bates.

 

4th annual California Run/Walk to Fight Lymphedema & Lymphatic Diseases draws celebrities and passionate activists

The annual California #LymphWalk in Santa Monica is always a special and unique event. This year, the top fundraiser dinner, sponsored by JOBST and hosted by LE&RN Spokesperson Kathy Bates, was attended by a number of Hollywood icons, making for a star-studded evening for all.

The Run/Walk on June 24 saw enthusiastic runners and walkers, and recognized two individuals who have made extraordinary impacts on the LE and LD communities.

Arun Rekha (pictured at right at the June 23 reception) has traveled throughout India, making a difference in the lives of people who often struggle to obtain access to care.

Dennis Schlaht (pictured at left with LE&RN President and CEO William Repicci), of ImpediMed/L-Dex, was an early corporate supporter of LE&RN and has regularly attended LE&RN events. His presence has left a lasting impression on Run/Walk participants who so often have felt isolated as they struggle with these diseases.

Colorado Chapter Chair and past CA Run/Walk participant and Inspiration Award winner Marie Apodaca wrote this moving piece about Dennis just ahead of this year's CA Run/Walk.

 

Colorado #LymphWalk Surpassed Goal

The 2nd annual Colorado Run/Walk to Fight Lymphedema & Lymphatic Diseases on June 3 was a tremendous success, surpassing its fundraising goal. Congratulations, Colorado!

 

Legislative Progress in New York State 

A bill requiring all general hospitals in the State of New York to distribute informational packets about lymphedema to all patients at high risk of developing lymphedema passed the New York State Assembly and Senate this month. The bill is authored by LE&RN and is the first in the nation. It now heads to Governor Cuomo's desk. The bill was sponsored and championed by staunch LE advocates Assemblymember Linda B. Rosenthal and Senator Martin J. Golden. Special thanks to Assembly staffer Gus Ipsen and Senate staffer Meg Brown.

 

Upcoming Livestream Symposium: July 23 

Dr. Sheldon Marc Feldman, M.D., F.A.C.S. is the Chief of Breast Surgery and Breast Surgical Oncology at the Montefiore-Einstein Cancer Center in New York. He is the Director of breast cancer services and Professor of surgery at Montefiore Medical Center, Albert Einstein College of Medicine. He will present Prevention of Breast Cancer Related Lymphedema on July 23 at 11am EDT (10am CDT, 9am MDT, 8am PDT).

 

LE&RN Participates in a Talk at Google in California

Dr. Stanley Rockson, Kathy Bates, and William Repicci took part in "The Road to Curing Lymphedema," a Google Talk in California. Watch the full video here.

 

Welcome LE&RN Egypt

Dr. Ahmed Sawaby (pictured at right) took on the role of Chapter Chair for the newly launched LE&RN Egypt Chapter. Find out more about LE&RN Egypt on the Egypt Chapter page

 

LE&RN/LymphNotes U.S. Lymphedema Therapist Scholarship 

The LE&RN/LymphNotes U.S. Lymphedema Therapist Scholarship was established to meet the need for additional lymphedema therapists in the United States. Scholarships are awarded annually in honor of writer and lymphedema advocate Ann Ehrlich who initiated the awards in 2013. Application deadline is Friday, August 3. Please note that only current Supporting Members of LE&RN of at least a year are eligible to apply. Annual Memberships are available here.

 

BIDMC Acupuncture for Breast Cancer-Related Lymphedema Study in Boston

Researchers at Beth Israel Deaconess Medical Center in Boston, MA, are conducting a study to demonstrate the feasibility and effectiveness of acupuncture for patients with breast cancer-related lymphedema. You may be eligible for this study if you have a single arm affected by lymphedema following breast cancer treatment. More details and contact information is available on LE&RN's website.

 

University of Califnoria San Fransico (UCSF) Breast Cancer Related Lymphedema Treatment Study

Researchers at UCSF are conducting a study to learn if treatment with a negative pressure massage device (Lymphatouch) is effective, compared to manual lymphatic drainage (MLD) massage, at improving swelling, skin condition, and movement in the arms of women with lymphedema. Details can be found on LE&RN's website.

 

LE&RN presents at first annual Multi-Disciplinary Approach to Lymphedema and Related Disorders Symposium

Following an invitation from Dr. Ketan Patel, LE&RN President & CEO William Repicci spoke via video at the first annual Multi-Disciplinary Approach to Lymphedema and Related Disorders Symposium sponsored by the Keck School of Medicine of USC (University of Southern California) on June 9.


CME Seminars for Physicians

LE&RN is proud to present the groundbreaking CME Seminars for Physicians Lymphatic-Vascular Disease: Diagnosis &Treatment, in association with Lymphedema Seminars on July 21 in Boston. These courses are an exciting educational portal to understanding the interplay of the lymphatic and vascular systems as related to patient health. This seminar is intended for physicians who need to diagnose and/or treat patients with lymphedema and/or lipedema.

  

Symposium Video Now Available

"Clinical Progress With Lymfactin: Could Gene Therapy Cure Lymphedema?" with Pekka Simula is now available.

   

Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out Virtual Expo today.   

 

Become a LE&RN Supporting Member

LE&RN's programs to fight LE and LD through education, research, and advocacy are only possible because of Supporting Members and corporate sponsors (below). If you are a Supporting Member, thank you. If you have not yet joined, please join the fight today.

 
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