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Lymphedema & Lymphatic Disease Matters, News from LE&RN March 2019

Lymphedema & Lymphatic Disease Matters, News from LE&RN March 2019

LE&RN heads to D.C.!

On March 29, over 140 advocates from across the United States, led by LE&RN, will descend on Washington, D.C., to lobby for increased funding and attention for lymphedema and lymphatic diseases. Read about LE&RN's efforts and activities in D.C. in this letter from President & CEO William Repicci. Erin Sokalsky of medi® USA will be presented with the 2019 LE&RN Impact Award at the Walk & Rally on March 30. It's not too late to join us (registration is still open online and will be open the morning of the Walk onsite).


4th annual World Lymphedema Day: a success around the globe

Events all over the world were posted on in recognition of the fourth annual World Lymphedema Day, March 6. The petition to designate “LD Awareness & Cures” as the World Health Day Campaign for WHO has now garnered over 21,000 signatures. Sign and share the petition today. And find out what LE&RN's Chapters did to commemorate the day in our latest Chapter News. Pictured at right: Hall of Languages at Syracuse University lit in teal; photo credit: Amanda Henrie.


Lymphatic Forum

LE&RN and NAVBO are pleased to present the upcoming Lymphatic Forum 2019, Exploring the Lymphatic Continuum, May 30-June 1, 2019, at the AT&T Conference Center, Austin, Texas. 

Through a grant from the McDowell Family in honor of their daughter Colette who was born with a rare lung disease called pulmonary lymphangiectasia, LE&RN was pleased to offer 20 $500 Travel Awards for young investigators to the Forum. The deadline for applying for a LE&RN Travel Award to this upcoming Lymphatic Forum is April 2.

Juzo generously sponsored four poster presentation awards (one $1,000 US currency and three $500 US currency) to the best research posters at the Forum. 


New York State legislative update

Please join us in thanking New York State Senator Andrew Gounardes (Brooklyn) who has embraced our cause, making a speech on the Senate floor to honor WLD and Advocate Tina Himaya on March 6. Senator Gounardes will be our lead Senate sponsor for LE/LD bills, including issues related to research, insurance, and program funding. We thank the Senator for his leadership. Senator Gounardes is pictured at left with LE&RN Advocate Tina Himaya.


Lymphedema Seminars

Lymphedema Seminars provides educational seminars to medical professionals who work with lymphatic and vascular lymphatic diseases. The next seminar is in Baltimore, April 26-28, where the Maryland Chapter will host a LE&RN information table. Next will be October (Cleveland) and November (Palm Springs).

World Symposium for Lymphedema Surgery, Taiwan, April 25-27

The 8th annual World Symposium for Lymphedema Surgery will be held in Taiwan, April 25-27, 2019. William Repicci will be a guest speaker.

Seeking military personnel with LE potentially related to service in or around "Burn Pits"

LE&RN is fighting to get the Department of Defense and Veteran’s Administration to increase research and services impacting military personnel. Last year, LE&RN told Congress that over 60,000 military personnel had been exposed to toxic chemicals emanating from the burn pits of Iraq and Afghanistan. Thousands of these veterans are now reporting burn-pit-related ailments such as cancer. LE&RN will bring this issue directly to Congress, CDC, NIH, and VA. If you, or someone you know, is in the military and has been diagnosed with LE that is potentially related to service in the vicinity of the burn pits, we want to hear from you. To learn more about this issue, read the March letter from President & CEO William Repicci.


CME Seminars for Physicians: Lymphatic-Vascular Disease, Diagnosis & Treatment

LE&RN is proud to present the groundbreaking CME Seminars for Physicians: Lymphatic-Vascular Disease: Diagnosis &Treatment, developed in association with Lymphedema Seminars. These courses are an exciting and convenient on-line educational portal for physicians for understanding the interplay of the lymphatic and vascular systems as related to patient health. Both Level 1 and Level 2 are offered together for just $99, and signing up on-line is quick and easy. 


LE&RN and ASRM Combined Pilot Lymphedema Research Grant

LE&RN and ASRM Combined Pilot Lymphedema Research Grant in the area of lymphedema/lymphatic dysfunction applications are due 4/15/19. This grant will provide seed funding and is intended to allow researchers to conduct preliminary studies that set the stage for applications to external funding sources.


American Venous & Lymphatic Society

The American College of Phlebology is now the American Venous & Lymphatic Society (AVLS), reinforcing its commitment to our field. LE&RN congratulates AVLS and has offered its members free access to LE&RN's 7-credit Physician CME: Lymphatic-Vascular Disease: Diagnosis & Treatment. AVLS' CEO, Dean Bender, also invited LE&RN's CEO, William Repicci, to co-author a piece in an upcoming issue of Vein Magazine


Vanderbilt University LE/LI Study

Volunteers are needed for a lymphedema and lipedema research study at Vanderbilt University in Nashville, TN. They are enrolling women who have lymphedema in a leg following cancer treatment and are comfortable in an MRI scanner. This research study is funded in part by grant support from the Lymphatic Education & Research Network and the Lipedema Foundation. For more information, visit LE&RN's website.


BIDMC Acupuncture for Breast Cancer-Related Lymphedema Study in Boston

Researchers at Beth Israel Deaconess Medical Center in Boston, MA, are conducting a study to demonstrate the feasibility and effectiveness of acupuncture for patients with breast cancer-related lymphedema. You may be eligible for this study if you have a single arm affected by lymphedema following breast cancer treatment. More details and contact information are available on LE&RN's website.


University of California San Francisco (UCSF) Breast Cancer-Related Lymphedema Treatment Study

Researchers at UCSF are conducting a study to learn if treatment with a negative pressure massage device (LymphaTouch) is effective, compared to manual lymphatic drainage (MLD) massage, at improving swelling, skin condition, and movement in the arms of women with lymphedema. Details can be found on LE&RN's website.


ILF international survey for U.S. therapists, patients, and industry partners

Patient, Professional, Industry Partner? Your input is important! Help us understand the effects of lymphoedema treatment and to set international standards for outcome measures for patients with chronic edema. Take a few minutes and complete the ILF-COM survey. The survey is open until March 31.


Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out LE&RN'S Virtual Expo today.