News & Events

Lymphedema & Lymphatic Disease Matters, News from LE&RN, March 2018

Lymphedema & Lymphatic Disease Matters
News from LE&RN March 2018

Join the fight at a LE&RN Run/Walk in April

Run or walk in the fight against LE and LD this April. On Saturday, April 21, the Illinois and Missouri Chapters will host a Run/Walk to Fight Lymphedema & Lymphatic Diseases in Godfrey, Illinois. Then, on Saturday, April 28, the New York Chapter will host its 9th annual Run/Walk, this time in Prospect Park, Brooklyn, New York. The Texas Chapter hosted a Walk & Fandango in Richmond, Texas, on March 17. Just visit LymphWalk.org to register or to support a team.

LE&RN thanks National Series sponsors BSN medical (Premier National Sponsor), Tactile Medical (Presenting Sponsor), BioCompression Systems, Juzo, ImpediMed/L-Dex, Eiger BioPharmaceuticals, Sigvaris, MediUSA, Herantis Phama, LympheDIVAS, and Lympha Press.

 

World Lymphedema Day commemorated around the world

World Lymphedema Day 2018 was recognized on every continent except Antartica. Check out the World Lymphedema Day map and read about the events that took place around the world. In the United States, Representative Carolyn B. Maloney (NY) entered World Lymphedema Day into the Congressional Record of the U.S. House of Representatives on March 6. If you haven't already, sign the petition to the World Health Organization asking that they make LD AWARENESS AND CURES their 2019 global health challenge and, of course, become a Supporting Member of LE&RN.

 

LE&RN at the Gordon Research Conference (GRC)

This month, at the GRC in Italy, Dr. Peter Mortimer (on right) and Dr. Pia Ostergaard (on left) were presented with LE&RN-GRC Leadership Awards for their outstanding work in the field of lymphatics. 

LE&RN President & CEO William Repicci introduced a patient session, moderated by Dr. Stanley Rockson, at the Conference on March 14. People living with primary and secondary LE, and genetic & hereditary LD, told their stories to over 200 researchers in the field. When asked what message they had for researchers, the patients told the audience, "Find cures and new treatments for these terrible diseases." Repicci thanked Dr. Domenico Corda for bringing patients to the conference and thanked the patients for their courage in telling their stories.

 

Lisa McPartland honored in Albany for advocacy and efforts in New York State for World Lymphedema Day

LE&RN New York State Chapter Secretary Lisa McPartland was honored for her advocacy work on behalf of the LE and LD community in Albany, NY, on March 27. Lisa led a campaign to light several landmarks, including Niagara Falls, in teal for World Lymphedema Day. 

Pictured from left: Michael McGuire (LE&RN Volunteer), Colleen McGuire (Development Director, LE&RN), New York State Assemblymember Linda B. Rosenthal, and LE&RN New York State Chapter Members Lisa McPartland, Patrick McPartland, Emma Detlefsen, and Tiffany Detlefsen.
 

LE&RN Connecticut and Illinois State Chapters launched

Chapter Chairs Michele Watson and Jennifer Vitale welcomed LE&RN Connecticut members to this newest Chapter. Read about them on the Connecticut Chapter webpage and contact them at CTChapter@lymphaticnetwork.org or through the Connecticut Chapter Facebook page.

Chapter Chair Sharon Vogel wrote an email to Illinois Members to launch the Illinois Chapter. Contact Sharon at ILChapter@lymphaticnetwork.org to get involved and please like the Illinois Chapter LE&RN Facebook page and visit them on the Illinois Chapter webpage.

 

Kathy Bates in the news

LE&RN Spokesperson, Kathy Bates, is featured in a cover story in the latest issue of Pathways - Canada's Lymphedema Magazine. She also spoke about her battle with LE on FutureOfPersonalHealth.com.

 

Chicago Breast Symposium & 7th World Symposium on Lymphedema Surgery

The Chicago Breast Symposium & 7th World Symposium on Lymphedema Surgery will be held April 26-28 at the University of Chicago. Registration is open and abstracts are now being accepted.
  

LE&RN Chapters compile resource of lymphedema centers

Massachusetts, Connecticut, and DC/Virginia Chapters have put together lists of lymphedema centers in their states.They are now available and are searchable by zip code.

 

Upcoming online Symposium

Dr. Guillermo C. Oliver will present "The lymphatic vasculature in the 21st century: developmental mechanisms and functional roles" on April 24, 2018, at 12pm ET, 11am CT, 10am MT, 9am PT. To join us, just click on the event link

 

BIDMC acupuncture for breast cancer-related lymphedema study

Researchers at Beth Israel Deaconess Medical Center in Boston, MA, are conducting a study to demonstrate the feasibility and effectiveness of acupuncture for patients with breast cancer-related lymphedema. You may be eligible for this study if you have a single arm affected by lymphedema following breast cancer treatment. Participants will be paid $50 for their time and will receive acupuncture treatments free of charge. Details available on LE&RN's website.

 

USC Multi-Disciplinary Approach to Lymphedema and Related Disorders Symposium, June 9

This Symposium will be held June 9, 2018 at the Fairmont Miramar Hotel and Bungalows in Santa Monica, CA. 

 

Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out Virtual Expo today.   

 

Become a LE&RN Supporting Member

LE&RN's programs to fight LE and LD through education, research, and advocacy are only possible because of Supporting Members and corporate sponsors (below). If you are a Supporting Member, thank you. If you have not yet joined, please join the fight today.