News & Events

Lymphedema & Lymphatic Disease Matters, September 2020

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September 2020

From William Repicci, President & CEO

The ongoing global health crisis has prompted all of us at LE&RN to ask how we can best serve the LE, LI, and LD communities when so many of our in-person events have to be reimagined. One such response is the upcoming Centers of Excellence 2020 Summit: State-of-the-Art Lymphatic Medicine. This two-day event will take place entirely online and will feature leaders in the field of lymphatics. I look forward to joining with LE&RN Spokesperson Kathy Bates and Summit Chair Dr. Stanley G. Rockson in welcoming participants this Friday morning.

I am pleased to present you with the September edition of Lymphedema & Lymphatic Disease Matters, which details our most recent initiatives, including recently launched Centers of Excellence and groundbreaking new research. Our community continues to show incredible resilience and drive in this challenging time. We thank you for joining with us as we stay committed to the fight against lymphatic diseases.  


LE&RN Virtual Summit begins Friday

The Centers of Excellence 2020 Summit: State-of-the-Art Lymphatic Medicine, will be presented online in its entirety on October 2–3, 2020. Eligible physicians can receive 8-CME credits by attending the two-day event. The conference will highlight presentations from each of LE&RN's newly designated Comprehensive and Network Centers of Excellence.

The Summit is hosted by Stanford University School of Medicine and LE&RN, organized and chaired by Stanley G. Rockson, M.D., the Allan and Tina Neill Professor of Lymphatic Research and Medicine at Stanford University. LE&RN Spokesperson Kathy Bates will deliver opening remarks.

Our deepest appreciation to our Summit sponsors: Impedimed, Jobst, Juzo, LymphaPress, and Tactile Medical, as well as to Stavros Niarchos Foundation who awarded LE&RN a grant for this program. Thanks to their support, general registration is $25 and CME registration is $75.

Register for the 2020 Summit today

LE&RN announces new Centers of Excellence

In early September, LE&RN announced ten additional institutions that have now been named LE&RN Centers of Excellence.
Find out more about LE&RN Centers of Excellence

LE&RN SMAC Members deliver research breakthrough

On September 9, Science Translational Medicine reported the discovery of a novel gene responsible for primary lymphedema. This discovery is heralded as essential for the proper diagnosis of patients with primary lymphedema and opens possibilities for the development of improved treatments for lymphedema.

LE&RN SMAC (Scientific & Medical Advisory Council) member Dr. Miikka Vikkula (The Human Molecular Genetics laboratory of the de Duve Institute–UCLouvain) made the discovery. He then collaborated with fellow LE&RN SMAC member Professor Kari Alitalo, Director of the Wihuri Research Institute at the University of Helsinki, Finland, to understand how these mutations cause the disease. Working together, the laboratories could show that the mutations result in loss of the normal function of the ANGPT2 protein that is known to play a role in lymphatic and blood vessel maturation. 

Access the press release here

Virtual Run/Walks to Fight LE & LD

This year, all LE&RN Run/Walks are virtual, and you can choose to participate in a local Walk or our global Walk. Local Walks are happening in Washington, D.C., New York, Massachusetts, Colorado, Pennslyvania, and California. Just sign up, join a team, form a team, or donate to an existing team. Anything counts: walk by yourself or socially distanced with friends, do a yoga video, or count the steps you take during the week.

Sign up for a Virtual Walk

LE&RN India & LE&RN Egypt

Congratulations to LE&RN India Chapter Chair Arun Rekha who organized the September 19 symposium for the 700 members