News & Events

New York State residents: We need your help

New York State residents: We need your help

Dear LE&RN Supporting Members and New York State residents,

If you are a New York State resident with health insurance that is not Medicare, and you have been denied treatment for lymphedema or denied coverage of physician-prescribed compression bandages or garments within the last few years, we need to hear from you.

LE&RN is currently working with New York State legislators to pass lymphedema coverage legislation (A2271 Rosenthal and S4292 LaValle) that will “provide coverage for the diagnosis and treatment of lymphedema; and requires such coverage shall include benefits for equipment, supplies, devices, complex decongestive therapy and out-patient self management training and education for the treatment of lymphedema.” These bills also bring New York State’s insurance coverage into conformance with the Women’s Health and Cancer Rights Act of 1998 with respect to coverage of lymphedema treatment after a mastectomy. New York State insurers claim that they already cover treatment of lymphedema and that a new law is not needed. We are asking lymphedema patients in New York State who have been denied lymphedema treatment to send us copies of the denial letters so we can prove that coverage is limited or not provided. We will delete any personal or health identifying information before using your letter, but please include the name of the insurer and the date of denial. 

Send copies of the denial letters to: 

or mail to: LE&RN, 40 Garvies Point Rd, Ste D, Glen Cove, NY 11542

LymphActivist, Robert Weiss, is working with LE&RN on your behalf and we can't thank him enough. However, we need advocacy here in New York State to move this agenda ahead. Please take the time to respond if insurance issues are important to you. Thank you.


William Repicci
President & CEO
Lymphatic Education & Research Network

Nicole Faccio
LE&RN New York State
LE Treatment Bill Committee