On Thursday, April 5, LE&RN Spokesperson Kathy Bates wrote to LE&RN Supporting Members and other allies, asking them to join her on May 11 for a day of lobbying for lymphedema and lymphatic disease research funding and insurance reform, followed the next day, May 12, by the first-ever Walk to Fight Lymphedema & Lymphatic Diseases in Washington, D.C. at the Lincoln Memorial.
Supporters were quick to respond, saying they would be there. And many of you had questions. Below are the most frequently asked questions, and we will update this page if and when we receive more. We thank you all for your enthusiastic response to this important moment in our growing movement.
Will transportation to Washington, D.C. be provided? What about lodging?
No, advocates must make their own arrangements for travel to and lodging in Washington, D.C.
How will I meet up with our group in Washington?
We will meet for a breakfast meeting at 8:30 a.m. in room G50 in the Dirksen Senate Office Building (see map below). LE&RN President & CEO William Repicci will address the group before handing the floor to Spokesperson Kathy Bates, who will talk about advocacy. Senator Chuck Grassley and Congressperson Carolyn Maloney will be presented with Public Service Awards from LE&RN. We will then receive legislative training from Dale Dirks, President of Health and Medicine Counsel of Washington. We will then divide into smaller groups and set off for meetings with Senator and Congressional offices.
Do I need experience to lobby in our nation's Capitol?
No. Your passion for fighting lymphedema and lymphatic diseases is your most important credential. Our group will receive advocacy training from Dale Dirks, President, Health & Medical Counsel of Washington at our breakfast meeting on May 11, just before we head off to the Capitol office buildings.
What is the schedule for the day?
The schedule for the day is attached here.
Is the Lobby Day and Walk only for those who received Kathy's invitation?
No. Both events are open to anyone who cares about finding cures for lymphedema and lymphatic diseases, and who is ready to demand a better future for everyone who struggles with these diseases.
Where do I sign up?
To register for the Lobby Day, just send LE&RN an email at LERN@LymphaticNetwork.org with your name, full address, and email. To sign up for the Walk, just register at LymphWalk.org.
I can't make it in May but want to participate. Will you be doing this again?
We don't know if we'll have another two-day event such as this in our nation's Capitol. But there are other ways to participate. We'll be sending out information on how supporters at home can support our advocacy group's efforts in D.C. And you can certainly support a Walk team at LymphWalk.org.