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Lymphedema & Lymphatic Disease Matters, News from LE&RN January 2019

Lymphedema & Lymphatic Disease Matters, News from LE&RN January 2019

Register now for 2nd annual D.C. Lobby Day, March 29, led by Kathy Bates

On Friday, March 29, 2019, LE&RN activists will head to Capitol Hill for D.C. Lobby Day, demanding that more be done to help those struggling with LE and LD. Kathy Bates will lead the charge as she did last year, energizing participants, engaging lawmakers, and making a real difference for the future of these diseases. Don't miss this unique opportunity to join forces with other activists in the fight against LE and LD. Registration is free and easy, and all registrants will receive a discount code for the D.C. Walk & Rally to Fight LE & LD, taking place on the steps of the Lincoln Memorial the next day, Saturday, March 30.

If you are attending one or both of these events, be sure to RSVP on Facebook (DCLymphLobby and DCLymphWalk) after you have registered, so the world can know you are with us in the fight against LE and LD.

Kathy Bates and Dr. Stanley G. Rockson educate national audience on Dr. Phil

When Bates appeared on Dr. Phil in January 2019, she was accompanied by Dr. Stanley G. Rockson, founding member of LE&RN, and (via video livestream) Emma Detlefsen, LE&RN Youth Ambassador. Texas Chapter Chair Vern Seneriz was in attendance and Colorado Chapter co-Chair Marie Apodaca made a video appearance. 

CME Seminars for Physicians: Lymphatic-Vascular Disease, Diagnosis & Treatment

LE&RN is proud to present the groundbreaking CME Seminars for Physicians: Lymphatic-Vascular Disease: Diagnosis &Treatment, developed in association with Lymphedema Seminars. These courses are an exciting and convenient on-line educational portal for physicians for understanding the interplay of the lymphatic and vascular systems as related to patient health. Both Level 1 and Level 2 are offered together for just $99, and signing up on-line is quick and easy. 

Kathy Bates honored as WebMD "Health Hero"

At a January awards dinner in NYC, LE&RN Spokesperson Kathy Bates was honored as a WebMD "Health Hero" for her activism on behalf of LE&RN, and the LE and LD communities. 

World Lymphedema Day 2019, March 6

Events all over the world are being posted on as we lead up to the fourth annual World Lymphedema Day, March 6. Check them out, and add your own. The petition to designate “LD Awareness & Cures” as the 2019 World Health Day Campaign for WHO has over 12,000 signatures. Be sure you are represented. Sign and share the petition today.

LE&RN President & CEO William Repicci represents LE&RN in India

Thanks to LE&RN's India Chapter, LE&RN sponsored the 12th Annual Conference of Venous Association of India January 17-20. LE&RN Council Member Dr. Peter Mortimer (St. George’s University, London) delivered the keynote and President & CEO William Repicci sat on a panel focused on lymphedema.

On January 21, LE&RN sponsored Dr. Mortimer to speak at the International Compression Club conference, in Hyderabad, India. LE&RN India Chair, Arun Rekha, arranged a seminar for up to 100 physicians in Bhubaneshwar, where she and Mr. Repicci were featured speakers. (Rekha and Repicci are pictured at the center of the photo with Institute CEO, Dr. Gitanjali Batmanabane, at the Physicians' Seminar.) Dr. Mortimer and Mr. Repicci also spoke at the 9th National Colloquium in Kasaragod, hosted by Dr. S. R. Narahari, Director of the Institute of Applied Dermatology. Lymphatic filariasis (LF) was a key focus.


Vanderbilt University LE/LI Study

Volunteers are needed for a lymphedema and lipedema research study at Vanderbilt University in Nashville, TN. They are enrolling women who have lymphedema in a leg following cancer treatment and are comfortable in an MRI scanner. This research study is funded in part by grant support from the Lymphatic Education & Research Network and the Lipedema Foundation. For more information, visit LE&RN's website.

BIDMC Acupuncture for Breast Cancer-Related Lymphedema Study in Boston

Researchers at Beth Israel Deaconess Medical Center in Boston, MA, are conducting a study to demonstrate the feasibility and effectiveness of acupuncture for patients with breast cancer-related lymphedema. You may be eligible for this study if you have a single arm affected by lymphedema following breast cancer treatment. More details and contact information are available on LE&RN's website.


University of California San Francisco (UCSF) Breast Cancer-Related Lymphedema Treatment Study

Researchers at UCSF are conducting a study to learn if treatment with a negative pressure massage device (LymphaTouch) is effective, compared to manual lymphatic drainage (MLD) massage, at improving swelling, skin condition, and movement in the arms of women with lymphedema. Details can be found on LE&RN's website.


Facebook fundraisers

LE&RN thanks all those who have been supporting LE&RN with birthday and other fundraisers on Facebook. You are making a difference in the lives of those who struggle with LE and LD. Thank you!

Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out LE&RN'S Virtual Expo today.