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Lymphedema & Lymphatic Disease Matters, News from LE&RN June 2019

Support LE&RN's midyear appeal

At the Washington D.C. #LymphWalk in March, activist Tina Himaya said, "I now feel that I have hope that, in my lifetime, there will be a cure for lymphedema."

Those who have been on the front lines of this battle against lymphedema and lymphatic diseases know this is an extraordinary statement -- one many could not imagine even just a few years ago.

This feeling of hope, that we are indeed changing the world, was born of the hard work and commitment of LE&RN donors and Supporting Members. Read this mid-year letter from LE&RN President & CEO William Repicci and watch the embedded video featuring LE&RN Spokesperson Kathy Bates. See how far we have come and, please, join the fight or increase your commitment to the cause with a mid-year donation. We cannot continue to make these strides without you.

 

Colorado #LymphWalk scores local tv spot; California #LymphWalk rocks the beach; New York #LymphWalk gears up for 10-year anniversary

Colorado Chapter Co-Chair Angela Marquez did a wonderful job promoting the 3rd annual CO #LymphWalk and raising awareness of LE and LD on 9News Denver just ahead of the Chapter's successful event on June 2.

On June 23, LE&RN California co-hosted a #LymphWalk in Santa Monica (pictured at left) with Keck Medicine of USC, drawing over 100 participants to fight lymphedema and lymphatic diseases. Walkers enjoyed perfect weather, with many walkers sporting teal tutus.

The next #LymphWalk is October 19 at Riverside Park in New York City, when this original Walk will celebrate 10 years of fundraising and activism. For many of LE&RN's longtime supporters, the New York #LymphWalk is the event of the year. Come and see what it's all about. And sign up early!  The first 100 registrants get a discount with the code NYEARLY2019.

 

California reception hosted by Honorary Board Member Steve Guttenberg

Steve Guttenberg (pictured at far left with his wife Emily and Jeff Booth, Jobst National Sales Rep - West, with his wife Jacqueline) hosted a reception for top CA #LymphWalk fundraisers in Santa Monica on the evening before the Walk. Steve delivered a rousing speech, warning that lymphedema was "the polite disease," that needed all of us to demand change. The reception honoring LE&RN activists was generously sponsored by Jobst, with Jeff Booth of Jobst also addressing the fundraisers.

 

LE&RN/LymphNotes U.S. Therapist Scholarships; applications due August 2, 2019

The LE&RN/LymphNotes U.S. Lymphedema Therapist Scholarship was established to meet the need for additional lymphedema therapists in the United States. Scholarships are awarded annually in memory of writer and lymphedema (LE) advocate Ann Ehrlich who initiated the awards in 2013. Applications are now being accepted through the August 2, 2019, deadline.

 

LE&RN Travel Award winners attend Lymphatic Forum

Each year, LE&RN subsidizes travel expenses for lymphatic researchers to attend conferences. This year, through an ongoing grant from the McDowell Family in honor of their daughter Colette who was born with a rare lung disease called pulmonary lymphangiectasia, LE&RN sponsored 20 $500 Travel Awards for young investigators to the Lymphatic Forum (co-presented by LE&RN and NAVBO) in Austin, Texas, at the end of May. Pictured here with LE&RN's Research & Program Director, Phyllis Fried, and CEO William Repicci, are the winners who are venturing to unravel the mysteries of the lymphatic system and find clinical treatments for diseases such as lymphedema and lipedema. 

And thanks to a generous grant from Juzo, a $1,000 first place poster award and three $500 poster awards were given to the most outstanding research presentations.

These Travel Award and Poster Award recipients will be sharing their experiences with LE&RN Supporters on our blog. Our first blog post is by Riaj Mahamud, currently completing a Ph.D. at the University of Oklahoma HSC.

 

LE&RN Impact Award presented to Melissa Aldrich, M.B.A., Ph.D.

LE&RN congratulates Melissa Aldrich on receiving LE&RN's Impact Award, which was presented at the LE&RN Texas Chapter Meeting in Houston on June 15.

Dr. Aldrich is an Assistant Professor of Molecular Medicine at UTHealth/McGovern Medical School in Houston. The Impact Award acknowledges her Herculean efforts in Chairing LE&RN's steering committee setting standards for its Centers of Excellence in the Diagnosis and Treatment of Lymphatic Diseases.

Dr. Aldrich is also a new member of LE&RN's Scientific-Medical Advisory Committee.

 

Lymphatic researchers support LE&RN's U.S. Senate funding request

When LE&RN asked researchers to join the fight for expanded research funding, over 100 researchers responded by signing a letter to the Chairs and Ranking Members of the Senate Labor, Health and Human Service (LHHS) and Defense Appropriations subcommittees affirming the urgency of funding lymphatic research. Read the letter and see the advocates who affixed their name to it. LE&RN applauds and thanks them all. 

  

LE&RN's newest Celebrity Ambassador writes about life with LE

Crystal Garrett, a former Miss South Carolina, wrote a riveting 3-part-series blog about how her primary LE diagnosis impacted her life, and why she kept it hidden for so long. Read Crystal's brave and honest story on LE&RN's blog.

 

LE&RN welcomes its newest Chapter: Tanzania

Please join us in welcoming the Tanzania LE&RN Chapter. Read a message from Chapter Co-Chair Gean Cabral, visit their web page, and find them on Facebook.

 
Chicago Breast and Lymphedema Symposium

The Chicago Breast and Lymphedema Symposium will take place October 19-18, 2019.

 

Kathy Bates and William Repicci speak at 2nd annual USC Symposium

LE&RN Spokesperson Kathy Bates spoke alongside LE&RN President and CEO William Repicci at the 2nd annual USC Multi-Disciplinary Approach to Lymphedema and Related Disorders Symposium on June 8.

Pictured here is Dr. Ming-Huei Cheng, Dr. Emily Iker (who was awarded USC's Lifetime Achievement Award), Kathy Bates, Dr. Ketan Patel (Symposium organizer), and William Repicci. 


Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out LE&RN'S Virtual Expo today.