News & Events

Lymphedema & Lymphatic Disease Matters, September 2018

Lymphedema & Lymphatic Disease Matters, September 2018

U.S. Senate minibus bill includes lymphatic research recommendations

As a result of advocacy actions spearheaded by LE&RN and pursued by our community of activists, the U.S. Senate just passed a second minibus bill that makes recommendations for federal funding for lymphatic research. Along with a significant budget increase for NIH's National Heart, Lung and Blood Institute (NHLBI), the Senate Committee recognized and applauded NHLBI's work on lymphatic diseases.

These are amazing developments that could not have happened without our community coming together in our advocacy efforts. Stay tuned for more on these efforts, including a DC Lobby Day on March 29, 2019, followed by a rally on the mall at the 2nd annual Washington D.C. Walk to Fight Lymphedema & Lymphatic Diseases on March 30.  


Research funding initiative at the Department of Defense (DoD)

LE&RN has spearheaded an effort to ensure that lymphatic research receives funding under the Peer Reviewed Medical Research Program (PRMRP) at the Department of Defense (DoD). As a direct result of LE&RN's organizing efforts, surgeons from around the country signed a letter of support to Congress. In September, we were able to report to Supporting Members and other activists that Representative Ted Lieu of California (pictured at right) is now leading on this issue.

Fiscal-year 2018 funding opportunities for the DoD Breast Cancer Research Program (BCRP) and the Peer Reviewed Cancer Research Program (PRCRP) being managed by the office of Congressionally Directed Medical Research Programs (CDMRP) are listed on LE&RN's website

 

LE Packet Bill awaits passage in New York State

The LE Packet Bill (A08829-B/S07765B), authored by LE&RN, Assemblymember Linda Rosenthal, and Senator Martin Golden, has passed the New York Senate and Assembly and now awaits the signature of Governor Cuomo. If the governor does not act within 10 days, it will become law. The bill "relates to the distribution of lymphedema information to patients at high risk of developing lymphedema and lists which patients are considered high risk." Passage of this legislation would be a major victory for LE education.


NY #LymphWalk early-bird discount expires this week!

Now is the perfect time to sign up for the November 10 New York Run/Walk to Fight Lymphedema & Lymphatic Diseases. If you register now and use the code NYEARLY2018, you'll get $10 off the $40 registration fee. You'll also get an Ambassador Code which, if used by your friends and family to register, can reduce your fee even further -- potentially bringing your fee down to zero! Sign up today. NYEARLY2018 expires September 30.

 

2nd annual Harvard Lymphedema Symposium

President & CEO of LE&RN William Repicci will present LE&RN's new project to create standards for Centers of Excellence for Lymphatic Disease Diagnosis and Treatment at the Clinical Symposium and will kick off the Patient Symposium at the 2nd annual Harvard Lymphedema Symposium, November 2-3, in Boston at Merck Research Laboratories. LE&RN Spokesperson and Academy Award-winning actress Kathy Bates will deliver the keynote address, "Living with Lymphedema," on Day 2 of this two-day conference, allowing attendees of the Clinical Symposium and the Patient Symposium to attend. World-renowned international faculty will share and discuss the state of the art in lymphedema diagnosis and treatment. 

 

Welcome LE&RN Hawaii!

In September, LE&RN was pleased to announce the addition of yet another U.S. State Chapter -- LE&RN Hawaii. Chapter Chair Louise Tanswell (pictured at right) wrote to LE&RN Supporting Members and other LE/LD advocates, asking for their support as the Chapter makes headway in raising awareness in Hawaii. Please find the Chapter on our LE&RN Hawaii Chapter web page and on the LE&RN Hawaii Facebook page.

 

Free patient and caregiver support event in Boston in November

"Navigating Dense Breasts and the Breast Cancer Journey: A FREE Patient and Caregiver Support Event" November 4, 2018, Boston, MA. This is one day after the 2nd annual Lymphedema Symposium in Boston. 

 

LE&RN to attend Congress of the American College of Phlebology

LE&RN is honored to have been invited to participate in the upcoming Congress of the American College of Phlebology, November 8-11. If you will be attending, let us know and stop by the LE&RN information booth, Thursday and Friday, November 8-9!

 

Facebook Fundraisers

LE&RN thanks all those who have been supporting LE&RN with birthday and other fundraisers on Facebook. You are making a difference in the lives of those who struggle with LE and LD. Thank you!

 

LE&RN Symposium Series

LE&RN thanks Dr. Sheldon Marc Feldman for presenting "Prevention of Breast Cancer Related Lymphedema" on Livestream for the LE&RN Symposium Series. Check out the latest posted video in the Series: "Removing the Mystery Around Bioimpedance, Moving Toward a New Standard of Care," with Sheila Ridner, Ph.D. LE&RN Symposiums are made possible by LE&RN Supporting Members and Corporate Sponsors.

 

LE&RN Spokesperson Kathy Bates in the news

LE&RN Spokesperson Kathy Bates was honored with a Women Making History Award on September 15. She was introduced as someone who “teaches by being who she is…” Ms. Bates was also featured in People Magazine in which she opened up about her struggle with lymphedema.

 

New York Times features lymphedema

Lisa Sanders, M.D., who writes the biweekly Diagnosis column in the New York Times Magazine, covered lymphedema-distichiasis (a rare form of hereditary lymphedema) this month. The piece talks about the difficulty of receiving a diagnosis.

 

Lymphatic Research and Biology: Open-access article

"Correlation of Bioimpedance Spectroscopy with Risk Factors for the Development of Breast Cancer-Related Lymphedema" is now open-access, available without a subscription, courtesy of Lymphatic Research and Biology, the official journal of LE&RN. 

  

BIDMC Acupuncture for Breast Cancer-Related Lymphedema Study in Boston

Researchers at Beth Israel Deaconess Medical Center in Boston, MA, are conducting a study to demonstrate the feasibility and effectiveness of acupuncture for patients with breast cancer-related lymphedema. You may be eligible for this study if you have a single arm affected by lymphedema following breast cancer treatment. More details and contact information is available on LE&RN's website.

 

University of California San Francisco (UCSF) Breast Cancer Related Lymphedema Treatment Study

Researchers at UCSF are conducting a study to learn if treatment with a negative pressure massage device (LymphaTouch) is effective, compared to manual lymphatic drainage (MLD) massage, at improving swelling, skin condition, and movement in the arms of women with lymphedema. Details can be found on LE&RN's website.

 

Visit LE&RN's Virtual Expo

LE&RN's Virtual Expo brings together companies that offer products and services to the lymphedema, lipedema, and lymphatic disease communities. These companies offer videos on a variety of topics. Check out Virtual Expo today.   

 

Become a LE&RN Supporting Member

LE&RN's programs to fight LE and LD through education, research, and advocacy are only possible because of Supporting Members and corporate sponsors. If you are a Supporting Member, thank you. If you have not yet joined, please join the fight today.