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Sample phone call and email script for National Action Week, March 22-26, 2021

Sample phone call and email script for National Action Week, March 22-26, 2021


Good Morning/Afternoon,

My name is ____________________, and I live in ____________________ (city/state – establishes that you are a constituent in their congressional district).

I am an advocate with the Lymphatic Education & Research Network, an internationally recognized non-profit organization founded in 1998 to fight lymphatic diseases and lymphedema through education, research and advocacy.

Over twenty-seven million Americans suffer from lymphatic diseases such as lymphedema, lipedema and lymphatic malformation. Currently, there are no cures and few treatments for these diseases, which are progressive, deforming, debilitating and often shorten life-span. Lymphatic research also impacts research on cancer metastasis, heart disease, Alzheimer’s, AIDS, Rheumatoid Arthritis, Multiple Sclerosis, Diabetes, obesity and a host of other diseases.

{Share your LD/LE experience. Be concise and let them know how your journey has affected your life. Consider developing 3 or 4 impactful statements or examples to share. You will not have time to share a timeline or story.}

I am calling today to ask for _________ (Name of Senator or Representative)’s help. 

Please support the implementation of a National Commission on Lymphatic Diseases that was directed by Congress in FY2021. NIH currently spends only $25 million annually on lymphatic disease research and only $5 million of this on clinical research of lymphedema. A Commission would determine the need for lymphatic research NIH-wide as a response to the over twenty-seven million Americans living with incurable, progressive and debilitating lymphatic diseases such as lymphedema, lipedema and lymphatic malformation.

Please include “lymphatic diseases” as a category eligible for study in the Department of Defense (DOD) Peer-Reviewed Medical Research Program (PRMRP) in FY 2022. Lymphatic diseases disproportionately affect active duty service members and first responders, as these diseases often arise from trauma, bacterial infections, burn pit exposure, and as complications of cancer treatment.
Please provide $5,000,000 for a Chronic Disease Education and Awareness Program at the Centers for Disease Control and Prevention (CDC). Formal study of the lymphatic system and of lymphatic diseases is virtually nonexistent in the current curricula of U.S. medical schools. Routine misdiagnoses lead to prevalent under-treatment of lymphatic diseases and lymphedema. Delay and misdirection of treatment often results in irreparable physical and psychosocial harm to patients. A CDC program focused on surveillance, provider education, and public awareness would increase diagnoses and improve patient outcomes.

Please consider me a resource if you have any questions about lymphatic diseases or the Lymphatic Education & Research Network that I can answer or pass along to the national office staff. Thank you for your time and consideration.