Dear Ally in the Fight Against Lymphedema and Lymphatic Diseases,
In March of 2015, I witnessed something extraordinary.
A six-year-old girl, Emma Detlefsen, appeared before the New York State legislature in Albany alongside myself and other representatives from LE&RN. For 12 years, LE&RN had been lobbying for the passage of a New York State funding bill for lymphedema and lymphatic diseases. But it was the simple appearance of this young patient, who had been battling this disease her entire life, that moved the body to act. The resolution was passed.
I relayed the good news, and the remarkable story about the young activist trailing a purple cape as she climbed the steps of the capitol in her home state, to LE&RN's Spokesperson Kathy Bates. Kathy wasted no time in writing to Emma, the person Kathy now described as "her hero."
In this letter, Kathy expressed to her new friend the hope that someday they would meet. Kathy made that happen in March of this year when she invited Emma and her family to be her guests as she was honored at the Research!America Advocacy Awards Dinner in Washington, DC.
This meeting was captured on video, which I hope you will watch and share. I think you will agree that something special happens when LE&RN Members come together. I invite you to join this special group of warriors in the fight against lymphedema and lymphatic diseases. Become a LE&RN Supporting Member today. Together we can change the world.