I developed lymphedema in one arm; a year later in the other arm. Three months after that, it's in both legs (per scintigraphy) with abdominal swelling. Multiple blood tests and scans by hematologist with no cause identified. Lupus panel negative. Where else to turn for treatment information and care?

I have lymphaedema in both of my legs since approximately age 4 due to Noonan'S Syndrome. I (As of March 2024) was diagnosed with severe venous insufficiency in both of my legs. I am on physical therapy but the progress is slow. How long does the recovery time take?

I Had breast cancer in 2018 I had a lumpectomy ,4 lymph nodes removed under my left arm , 30 radiation treatments. Can you have lymphedema in your leg,arm & breast all at the same time? Everything swollen on my left side , breast tender, pain. what doc to see?

Is there any research/truth to the effectiveness of this product? Have any of you seen proof that this would help the lymph system? Here is more info: https://www.walmart.com/ip/Totaria-Liposomal-Lymphatic-Drainage-Drops-11-in-1-Organic-Formula-Supports-Lymphatic-Health-Immune-Detox-Vegan-Raspberry-Flavor-2-FL-OZ/16505759988?wmlspartner=wlpa&selectedSellerId=102659572&selectedOfferId=CB285B1B799132BF9D95F64E7FA67077&conditionGroupCode=1&wmlspartner=wlpa&cn=FY25-ENTP-PMAX_cnv_dps_dsn_dis_ad_entp_e_n&gclsrc=aw.ds&adid=2222222229716505759988_102659572_0000000000_21407473164&wl0=&wl1=x&wl2=c&wl3=&wl4=&wl5=9033389&wl6=&wl7=&wl8=&wl9=pla&wl10=5518726512&wl11=online&wl12=16505759988_102659572&veh=sem&gad_source=1&gad_campaignid=21690411341&gbraid=0AAAAADmfBIpmvqoeGsa2PkRF23oCVwsXi&gclid=CjwKCAjw6NrBBhB6EiwAvnT_rueJzjS0XmpzBQsiXrs7yhR8CWDehKDhDUcI_We1fo9tnbFlj8HdsBoCMKEQAvD_BwE

Assuming the HEAL trial progresses to phase 3, will the criteria to participate remain the same? I have lymphedema in both legs, caused by cancer treatment, so I didn't qualify for phase 2, but I'd love to participate, if possible. Thanks so much for doing this research!

My husband suffers from edema & leg ulcers. He wears compression socks & takes water pills. I'm looking for a better treatment. Is there one?

Dear Stanley, just wondered if there is any update on the trial and if it is progressing well? Really hoping the medication will come to market soon and give us all something to look forward to.

Is there a connection between lymphedema and the autoimmune disease ulcerative colitis and/or Entyvio biologic used to treat UC? I feel like my lymphedema showed up when my UC came out of remission and I stared Entyvio infusions.

Have the recent government actions to freeze health research funding had or are they expected to have any impact on the Acebilustat Lymphedema trial you are conducting, Dr. Rockson? I am extremely concerned about the future of medical research in general, and selfishly worried about your study specifically. Thank you.

looking for more information on radiation and manual lymphatic drainage safety and when to begin. Tx during the proliferation stage is important to improve lymphatics and decrease inflammation however, rad. oncologists are hesitant to refer during radiation and prefer weeks to months after radiation. Any articles or research you recommend?

I'm a 54yo male who lives in MI, I'm hoping to find a specialist who has experience and knowledge of Lymphangiectasia(dx 2024) and possibly Lymphomatoid Papulosis(dx 2017). I have other medical issues and curious to know if any correlation. I'm willing to do virtual visits or if needed to travel.

Does lymphedema have any impact on the immune system?

I had a lipoma removed, with it came 4 axillary lymph nodes. I am 2 months from surgery with no lymphedema, but would like to start trying to conceive. Would a pregnancy this soon increase my risk of lymphedema? Should I wait longer? I could not find any data myself.

I need knee replacement in my left knee soon but with the lipedema, it really scares me! Is it safe? I have so much swelling above the kneecap and along the interior of the knee and have had for 10 years! Please advise asap!

Is there an ACTUAL imaging procedure that can locate the area, of the lymphatic system that is damaged, and is there an age limit for something like this? If so, where?

I thought I was going for a diagnosis of lipedema but after 2 types of ultrasounds I was diagnosed with lymphedema. Saw another specialist who sent me for lymphoscintigraphy and the results were negative. I still have swelling on right side of body. What are your thoughts? Thanks!

Is it safe to use hydrochlorothiazide 25 mg when one has lymphedema in left arm/under arm? I take this water pill with losartan potassium 50 mg for high blood pressure. Thanks very much.

Do people with PL get post-viral symptoms - aching in joints, increasing pain in lymph nodes which results in fatigue, etc. every 2-3 years and lasting 3 to 4 months? My PL appeared at age 42. I am active & fit, but have had PVS since I was a child.

I have radiation-induced lymphedema in my abdomen and upper thighs (uterine cancer). Five plus years out from treatment, I find myself having severe stomach pain and diarrhea, with no apparent link to diet or illness, or other trigger. Could it be IBS from the lymph pooling in my abdomen?

I have primary lymphedema in my leg and have been treating it with MLD and Tribute night garment. It is slowly progressing and I am exploring other methods to improve my condition. Is there a doctor I can see and speak with about my options? I am 22 years old.

I was diagnosed with lympodema and have struggled wirh complications.. I went to a dr that treats thus and he says he doubts I have it. He told me he would give me a test that runs dye in feet that runs up legs has anyone ever heard of this?

I have lymph node swelling both right and left 2.1 cm is largest. I can’t get into a lymphedema specialist until Jan and don’t want a biopsy for obvious reasons unless absolutely necessary. Is nodal swelling common after this long and I have never had before.

Can you advise me if it is safe to have underarm laser treatment to reduce underarm hair on my well-controlled lymphatic-affected arm?

Is anyone performing LVA surgery on neck lymphatics to improve the abnormal accumulation of Aβ-amyloid protein and abnormal phosphorylation of tau protein in the brain, which are two important causes of Alzheimer's disease. See https://gpsych.bmj.com/content/37/3/e101641

Greetings, What are the best treatment options for Lymphedema in the geriatric populations? Any recommendations for home bound and very ill elderly in assisted living facilities? I live in a remote area with limited resources. On Medicare Advantage. Thank you!

I have been experiencing a headache for over 3 years since covid vaccine, it feels vascular but neurology can’t find cause. It radiates to my eye and occipital area as well as down my neck, I also have painful spleen and sone strange skin patches. Wondering if lymphatic system related

One of my upper arm lymphoedema patients that suffer from recurrent cellulitis will undergo LVA soon, she is on low dose antibiotics. The surgeon will prescribe a course of antibiotics for the surgery, shall she stop taking low dose after LVA?

I have advance lipedermatoscleosis on my leg and swelling (champagne bottle). I am having difficulty finding anyone that can help I need a TKR and surgeon is wary to do it until my leg improves

Can I ask if it will be possible if phase 3 can be skipped if phase 2 successful? Also will we get a webinar update on progress like you gave last year which was great? It is great to get hope.

Hello I had surgery for a root tear in my meniscus last September, and developed lymphedema due to May Thurner syndrome. I was recently told that I will probably have to have a total knee replacement in the same leg with lymphedema. How does that work with lymphedema?

Dear Stanley As captopril is an LTA4H inhibitor, can it be of any use for Lymphodema? Have you heard of any research on this? Thanks so much

Is the bestatin trial over? Results? I have secondary lymphedema in my right leg and am interested in trial participation.

I am recovering from breast cancer. I have lymphedema in my right arm/breast/back area. Now I’m dealing with Lymphangitis/cellulitis when I get bug bites. Is there a specialist that deals with this vs going to the ER everytime? Is it related to cancer recovery?

Very interested in joining a study. Please advise. Thanks.

Should lymphedema patient take calcium channel blockers for high blood pressure? Is there a class of HPB medication that is better suited to patients with lymphedema?

I had 2 lymphoscintigraphy, both says that I have lymphoedema-feet to knee. However a very reputed Hôpital specialised in lymphoedema, claim I don't have lymphoedema but don'texplain how despite the exams.After ovary surgery, the swollen only occur when I sit down along with the belly. What to do?

I did LVA Surgery on this April. It was succeeded but During the operation we find that All my left hand Lymph was Probably destroyed by Chemotherapy. Could you please give me any advice is to protect my hand to play the piano as long as possible?

Hello, it looks like the majority of research and surgery is directed towards secondary lymphedema. Is there anything on the horizon for those of us with primary?

Hi Dr Rockson! How common is it to develop lymphedema due to heat/sun on the face! I had small swelling in one side of my face which has now turned into swelling in the mouth, eyelids!Pressure in the head, neck, ear and difficulty swallowing 2 months now

I have secondary lymphedema of the left arm due to breast cancer. I have received conflicting responses from various healthcare providers whether or not lymphedema impacts my immune system. Do you have any data/studies that address this?

Hi Dr. Rockson! I have a question regarding the research you are conducting on the drug Acebilustat! If the results prove to be successful, do you think there is a high chance of finding a cure for Lymphedema for those who have it? Best regards

What is your opinion of using acupuncture for treatment of lymphedema? I'd like to try but am afraid of infection. Thank you.

How long will the drug research on humans take and how many people should participate. How long does it take after the research is completed to get permission from the FDA to sell the drug? I hope that we patients will not have to wait long. Best Regards Vera Jeremic,

I've noticed a lot of variation in protocols for lymphoscintigraphy (tracer material and dose, injection sites, timings of scans, rest/active, etc) depending on the medical system. What are the correct (or best) protocols for a diagnostic lymphoscintigraphy to test for possible lymphedema in the legs? What protocols does Stanford use?

How long from the initial contact or referral does it take to get surgical treatment or genetic targeted pharmaceutical treatment?

I am 49, have had primary lymphedema since childhood. I have swollen lymph nodes that never show up on ultrasound or CT! Is it possible that my nodes are smaller than "normal" to begin with? I am concerned that I need a biopsy, but nobody taking me seriously.

I am wondering when this feeling of walking through concrete will end. My lymph came from being obese and was in remission when a recent trip to the hospital inflamed it.

Hello! I am eligible to have the lymphedema mass on my leg removed or debulked but I am having trouble locating a physician skilled in this area at a reputable hospital that will take a patient with over a 35 bmi. I am curious how to navigate thisz

Dear doctor, i have primary le onset 19yo - now 40. I have a newborn and wondering weather there is a non invasive test ( fe blood test) ti check if she has general hypoplasia as well so that I can be alert/ careful to prevent or postpone le onset.

Dear doctor When can we expect an update on the clinical trial? Thank you

I have suspected primary lymphedema (age 34.5 onset). Chronic swelling in one leg since long flight, no swelling in foot, no known cause. Venous ultrasounds and abdominal CT are clear. Bad reaction to bandaging. What kind of specialist can diagnose me? Should I get a lymphoscintigraphy despite false negatives?

I am wondering,I have been hearing when individuals where on the ozempic they did not get tough, fiberous skin(tissue),but when they went off of it the skin in the affected area flaired up,the skin got hard,fiberous and so forth.I was on ozempic and found that to be true also.are youhearingthatalso?

Is acupuncture contraindicated for lymphedema? Or is it less so as it used to be?

6 months on Ketoprofen is working. Just diagnosed with colon cancer doctor thinks is early. The Yin Yang of LTB4 mediated inflammation in cancer study indicates LTB4 can be a plus? I would be advised to stop ketoprofen? Or continuing might help? Google colon cancer and LTB4, for positive excerpt.

In Dr. Stanley Rockson's lecture on YouTube, he said a trained primary care physician should be able to diagnose lymphedema with a 15-minute physical exam, without tests/imaging. How do I find a doctor qualified to do this and confirm they're qualified? How do they diagnose it?

Hello Prof. Hakan, My close relative is suffering from lymphedema in the scrotum. We believe it is now at the end of stage 2 or maybe beginning of stage 3. Do you treat lymphedema in this area of the body? If so, what would the medical procedure that you use?Thanks

Hello! My child was born with swollen feet and toes. Please advise how Lymphedema could be diagnosed at this early age and if anything could be done to prevent the progress of lymphedema?

Hi. I am wondering if this new drug has promise to remove lipedema nodules. It is hard to imagine anything could disolve them besides surgical removal. On a level separate from this specific medication… is it even possible for a medication to do that? Selectively remove diseased fat only?

Hi. I am wondering if this new drug has promise to remove lipedema nodules. It is hard to imagine anything could disolve them besides surgical removal. On a level separate from this specific medication… is it even possible for a medication to do that? Selectively remove diseased fat only?

My 37 year old son has it in both legs and also has type 1 diabetes, heart disease and gastroparesis making treatment very difficult. He has not had cancer. How can we tell what his lymphedema is caused by and does it matter? We would gladly join a research program.

Recommend treatment? 10+ year history of cyclic vaginal drainage of chyle. The past six months malodorous pus has replaced chyle. MRI confirms fluid collection above vaginal cuff GYN and colorectal surgical history.

Diagnosed with lymphedema in left leg, lipodema in both legs, and hypothyroid. Wanting to lose weight to alleviate some of the symptoms but losing weight seems impossible so far. Would weight loss surgery or even weight loss injections work considering all the diagnosis above?

Recently diagnosed with "dilated lymphatics", Venus Insufficiency, lipedema, and large saphenous vericose vein by a vein doctor. They were unable to answer basic questions. 1. Is dilated lymphatics actually lymphedema? 2. Will fixing the vericose help/reverse the disease? 3. Does lipedema complicate things? 4.  What if I also have Hidradenitis Suppuritiva and hypothyroidism. Do these affect lymphedema as well?

It's my impression based on some of your presentations that you may not need to open the study to lower extremity? Will you get enough info from the arm and lipedema participants? I may qualify for liposuction soon but don't want to upset my chances for participating. I have LEfromcancer.

When are the results of the HEAL trial likely to be published? (They are eagerly awaited!) Will any preliminary results be available soon? Many thanks.

Is it justified to perform lymphedema surgery in an 11-year-old boy or should we wait? Can lymphedema be accompanied by very high ddimers (of 5000), increased CRP and OB? How to treat edema with such high ddimers?

Half of my medical team has diagnosed my swollen feet and calfs as being lymphedema and the other half has made the edema diagnosis. I am leaning towards the lymphedema team. Reasons being (1) lymphedema clinic was successful and(2)radiation/esophagectomy a year prior to onset. How can I tell the difference?

Hello Dr I had mono in October of 2022, my lymph nodes were very swollen and they gave me prednisone to help with swelling. Initially it stopped. After a month my lymph nodes began to hurt again and haven’t stopped. I need help on what to do.

Dear Stanley, I'm seeking advice regarding long-standing lymphedema issues post-pregnancy. Previous consultations offered limited hope, emphasizing physiotherapy as the sole treatment. I'm eager to explore potential treatments, assess severity, and discuss lifestyle modifications. Your expertise would be invaluable. Thank you

I am pediatrician 47 yr old, diagnosed with tarda. I am not overweight annd very active. Any suggestion for leg pain? And i do yoga, does hot hot yoga ok? Thank you i really appreciate it

Since patients with lymphedema aren’t able to travel bt air, would you be willing to collaborate with Georgetown University in your clinical trials? We live in the DC area of VA. My loved one would be interesting in clinical trials within driving distance.

A loved one has lymphedema which was worsened due to prednisone for a rare autoimmune disease. My loved one is now on cell cept for maintenance of the autoimmune disease. Do all immunosuppressive drugs worsen lymphedema?

Are you aware of this study at GIT: https://www.sciencedaily.com/releases/2023/03/230320143114.htm What do you think?

Nanotechnology could treat lymphedema | ScienceDaily

I heard acebilustat will be available for a lipedema trial soon. Does it have any promise for very skinny people with lipedema? Some of us are quite thin but most of our fat is lipedema tissue. Does it hold any promise for building muscle? Most of us have lost it.

I had a hysterectomy (Cervical ca) with lymph node dissection and radiation in 1980. My left ankle began swelling around 1991 but the calf only the five years, and my thigh the last two. Is this normal, only one side and so long after?

Am now 69 YO male was active carpenter/teacher. Now confined to wheelchair after infected artificial R knee was removed and replaced with an anti-biotic spacer. Had skin graphs SD on chins. Surgeon won't replace knee till swelling from lymphedema subsides and skin color returns to normal. Is that possible?

I had ovarian cancer surgery in 2015 and53 lymph nodes were removed from many areas of my abdomen during exploritory surgery. Ive been dealing with pain, swelling, and pressure in one leg, abdomen and hip and17 fibrosis continues to advance. How can lymph possibly be moved back to the heart?

My daughter was diagnosed with primary CPL posthumously after developing severe Hydrops fetalis. Could CPL be diagnosed in future pregnancies prior to any onset of effusion? Any further understanding of CPL would also be greatly appreciated with such limited information available.

Cantu syndrome is a connective tissue disorder with a high incidence of lymphededema due to hyper active potassium ion channels. -from what you see about Cantu is it reasonable to assume lymphemdema in Cantu may have a different cause and more importantly therefor treatment?

Following double mastectomy & radiation I have Lymphedema in both arms, left hand due to blood draw, back & chest. I am required to have blood work and infusions. No one will use my foot. What do I do?

I have a very strange case of lymphedema, cancer related, the doctors are afraid to address it. I would love to consult with a knowledgeable person, just who is the question? Is a physical therapist trained in lymphedema more highly trained than an occupational therapist in regards to treating lymphedema.

I understand. Is there a preclinical model of some sort of the cells indicating they might respond to ltb4? Or is there a reason to think ltb4 is implicated in lipedema tissue growing? Is there a trial starting?

I have non-small cell lung cancer, s/p RUL lobectomy 6 years ago now with recurrence stage 4 on TKI capmatinib that causes lymphedema . I recently developed left axillary cording This seems rather unusual do I need further evaluation for other cause besides lymphedema? Recent CT chest stable small GGN

Are there are any studies or theories related to a low pulse or low blood pressure exacerbating lymphedema? Are they at all related? Thanks.

My wife had a double mastectomy 20 years ago and subsequently developed lymphedema in her right arm. Her right should joint is "bone-on-bone" and extremely painful to move. What surgical options does she have?

I have lymphedema in my right leg (primary) and left arm after an elective surgery. I need a total knee replacement, in unaffected leg, but surgeons can't guarantee I wont get lympedema in leg that needs knee replacement. Help!

Are there any preclinical studies or studies of any kind yet with ltb4 and liepdema out? How do you test it without a mouse model for lipedema? Has acebilustat been considered for vein insufficiency or anything like that?

I came down with a stomach bug and was unable to keep down food and fluid for about four days. During this time there was a drastic reduction in swelling of my affected leg. I always thought diuretics were bad for lymphedema, but might they be helpful in my case?

For someone who does not have dermal/epidermal thickening yet does acebilustat work elsewhere on the lymphatics han the skin? Or is it's main function to help those who already have that level of damage?

I have lymphedema from cancer treatment. And a prescription for Ketoprofen 75 mg 3 times daily. Amazon pharmacy has only 200 mg extended release. Dr Rockson answered my last question, saying ketoprofen can be used. How can I get 75 mg or is 200 mg extended release an acceptable option?

My grandma had bad lymphedema with breast cancer. I was just diagnosed with appendix cancer. Is lymphedema genetic? Can I end up with lymphedema from appendix cancer, abdominal Hipec chemo? Am I more likely to get it because she did, or because she had it so badly? (Different area?)

Is radiation on squamous cells in a lymphatic leg effective and if s0, can the skin be healed?

What is the most accurate imaging test for early stage disease: ICG, Lymphscintiagraphy or Lymphangio MRI? Would you recommend one to go to Med Ctr that does many?

Can primary lymphedema present in bilateral forearms and lower legs only sparing the hands and feet? My Pt is lean and fit but has pitting edema in forearms and lower legs. She reports water retention for years.

I finished oral cancer treatment January 2023. Cancer is gone. The radiation doctor says my lymphedema might cause more tightness. I’m low risk for ketoprofen side effects and want him to prescribe it. Is ketoprofen gaining acceptance with lymphedema doctors? Is it generally safe for 6 months use for this?

I have been on lasix since I injured fractured my pelvis in 2019 at work which is when I began swelling in my legs and I also had pain in my groin does lasix do anything for lymph fluid?

Are you aware of a correlation between lymphatic disorder and low cd4 counts? My husband has pulmonary lymphangiectasia and underwent lymphovenous bypass surgery last year to repair a lymphatic malformation. His cd4 count improved slightly after surgery and has now dropped again.

My primary doc said her best guess is I have lymphedema. I need to make sure I'm getting correct treatment; it is questionable of what is wrong. Is there a doctor in the Denver, CO area that has a lot of experience or what kind of doc should I couldgoto?

Recently have severe continual drainage under the skin from my scalp, down to forehead, cheeks, upper eyelids, and neck. Have seen doctors but it isn’t familiar to them so I can’t find help.

How might the inhibition of enzyme 5-LO improve skin inflammation?

What is the benefit of mast cell stabilization for individuals with mast cell activation disorders (idiopathic angioedema and hives) with regard to LTB4?

My son has been diagnosed with Crohns and has had what was thought yo be idiopathic scrotal lymphedema for the past five years - understand there's an association based on one of your lectures. Big swelling and pain flare after 1st dose of Humira: related?

As known currently nsaids would not interfere with a persons ability to take acebilusat? How is the mechanism of epidermal thinning thought to work to thin the skin of lymhphedema patients? I see ltb4 is implicated in excess collagen deposition and inflammation so thought it may also thin skin overall.

What sets Acebilustat apart from an nsaid? Does it potentionally have the same risks of thinning the skin like nsaids do over prolonged use?

I’m 10 weeks postpartum and would love to know more about hormones and breastfeeding, how they affect my primary le in left leg - swelling was worse after birth than before and hasn’t reduced. How long will it take to return to baseline measurement?

I have primary lymphedema. Am 91. Severe knee arthritis. Is it safe to get a genicular nerve block? My legs and thighs are swollen with lymphedema. Seeing pain mgt doctor tomorrow. Thank you.

Is there any "hard" (double blind controlled studies) evidence, aside from patients with extreme BMI, that diet plays a clear role in Lymphedema ?

I completed beam/seed implant radiation for prostate cancer in 2004. i was declared cured in 2012. I noticed my 1st signs of Lymphodema (modearate ankle and foot swelling) in 2018. Does the wide time gap between these events rule out the PC radiation as a possible cause ?

I have lymphedema in my right arm, result of breast cancer. I was wondering if there has been any studies regarding having tattoos on an arm with lymphedema. I asked MGH, they said there was not much research, so it was up to me. Thank you, Beth Bennett

Taking it for another condition and was surprised to see its been tested on on mice models for lymphedema: why might a drug like this even be considered for testing lymphedema? https://www.liebertpub.com/doi/abs/10.1089/lrb.2022.0071?download=true&journalCode=lrb

Thank you. Are there any studies on ltb4 and lipedema? My friend and I would like to read them if possible. Are lipedema fat cells extra cells (as well as being enlarged) or regular fat cells that were there. Does acebilustat eliminate fat cells in lymohedema that were already there?

Is acebilustat thought to only act on one specific type of inflammation? for example would it inhibit the inflammatory process involved in wound healing potentially? or is it acing on one specific type of inflammation only? Do you believe it might eliminate extra lipedema fat cells or only decrease them?

I've seen many references to a ketogenic diet for lipedema. Has there been research into whether a whole food plant based diet is helpful?

My left side doesn't sweat nearly as my right side.. Right side is able to sweat normally but left side doesn't hand and leg both .. Swelling is prest on left.. Is there any connection with lymphedema with me unable to sweat on one side??

Is it possible for a physician to apply for expanded use for an individual patient if they are unable to use compression or other therapies and have a condition that makes this very dangerous?

Will the results of the upper extremity trial be applicable to the lower extremities?

Do you foresee acebilistat being a short course of treatment for lipedema like it is for lymphedema? Or an ongoing medication? do you think it has the potential to entirely halt new fat proliferation allowing the user to live a normal life and eat normally again? Or only supplementally improve.

Does MRI need contrast to diagnose abdominal lymphedema? Which other methods (non-invasive, no contrast) exist for this diagnosis? Thank you very much.

Does MRI need contrast to diagnose abdominal lymphedema? Which other methods (non-invasive, no contrast) exist for this diagnosis? Thank you very much.

For Rockson- I saw recently that acebilistat will later be trialed for lipidema. Is it thought it could help with pain only or is it hypothesized it could halt lipedema entirely?

Hini will have to be on antidepressants for the rest of my life I'll start having them from the following week. My question is can anti depressants worsen lymphedema??

Good afternoon. Can a person develop lower extremity lymphedema from a knee replacement? I have secondary right arm/hand lymphedema. Thank you. Diane

I have 35 pounds of lymph swelling all over my body from a liposuction surgery 4 years ago. I have done CDT on my entire body for over a year and the swelling keeps returning even during CDT. Please help me as I am terrible pain! Thank you.

Hello doctor I am the resident of Nepal. I have my male baby born in april 2023 .My baby has thicken bluish on the upper part of feet. I am confused it might be lymphedema.Is there any treatment for this primary lymphedema ?

At CDN pain clinic received injection for chronic pain in arthritic hip with tendonopathy.Scarred fascia on U/S. Same hip/leg also has 15 yr cancer related LE after node basin removal.Received dextrose sol'n instead of steroid. Is 15 yr LE hx the reason for scarring? Is prolotherapy OK in LE region?

I have swelling all throughout my body but especially in my face, neck, arms, legs and abdomen. It is about the 10-15 pounds worth of fluid. What kind of doctor would be the best to treat this? I have small fiber neuropathy but numerology feels it is not neurologic.

Hi, I tried to find info but I could not. I want to know how many MRI (or other imaging modalities) imaging cases are per year. It is ok just for one large center, but I am curious if the numbers increase or not. Best, Sk

I am a fraternal twin without. Lymphedema but my twin sister has it and has always had heavy, swelling legs and after cancer treatment heavy arms. Is this purely genetic? At 75 we are traveling to Europe from the US this Fall. What precautions and consideration should we make?

Dear I have seen the presentation a while ago about the new trial - an anti-inflammatory oral drug called lyt-100 that could benefit le patients. I was wondering when we could expect new updates. Thank you very much!

Hi does having junk food and fast food and oily food aggrevate or in other words speed up lymphatic overload thereby causing more swelling in the affected lymphedema leg or arm ?? Like milkshakes, carbs , ice creams , lot of cheese , chicken and pizzas ..

Does anyone know if intravenous lipoleiomyomatosis is linked to lipoedema? I am intrigued & have both. Any thoughts?

I have cellulitis in arm with lymphedema. Arm is too swollen to fit in sleeve. I have compression machine but no one can tell me if I should use it or wait for cellulitis to clear. I worry that lymphedema is ignored or will get worse.

I am 29, very low bmi and took dutasteride for hairloss which triggered lipedema and lymphedema simultaneously. This is clearly a rare case and I have done enough research to see there are very few people who will treat the lipedema in this scenario. Have you?

I believe I have read that radiation can cause lymphatic damage and thus lymphedema. Is that correct?

Is it dangerous to get a steroid shot in your elbow for tendinitis in the same arm that I have lymphedema ? I do go to therapy but because of the tendinitis my therapist can not get my lymphedema to go down. My orthopedic surgeon suggested a steroid shot. HELP

I was just diagnosed with mild lymphedema tarda. The lymphoscintigraphy report states "mildly reduced passage and mild progressive dermal backflow" feet foot only. Will this get progressively worse or could this be an isolated incident. The swelling is very minimal in the foot.

Hello I have had lymphedema every since 1992, long time. Do you know of any connections between lymphedema and herbicides? I know several others with lymphedema, we walk together and that conversation always come up.

Hello! My 5 yo son has heterotaxy syndrome (he has functional heart defects) and has chylous ascites, protein losing enteropathy, hypoalbumenia. His doctors have assumed that he has primary intestinal lymphangectasia, but two endoscopy/colonoscopies showed no evidence. Would it be worth getting a second opinion? Where is the best place?

Hi everyone, I'm 57 years old and had a breast cancer surgery in last July. It's been a month where I was diagnosed with lymphedema (left arm) stage 2 Is it possible for me to participate in any drug therapy research from Greece where I live? Should I take selenium supplements?

Can Medial malleolar bursitis worsen lymphedema?? Or cause the onset of lymphedema for ppl who do not have lymphedema.. as of now only the medial ankle bone is swollen

Recent papers suggest having lymphedema can affect immune function; specifically compromising the acquisition of adaptive immune responses and antibody production. A paper addressing this question: Frontiers in Immunology, 2019, https://doi.org/10.3389/fimmu.2019.00076 Based on this: Should lymphedema patients receive monoclonal antibodies, eg, Evusheld, as prophelactic for COVID? Thank you

Damaged fascia develops into nodules. I am not referring to muscle knots that is relieved by dry needling. Gummy sticky fascia is the lipedema nodules? Any thoughts or any feedback? The damaged fascia impedes blood flow so it transitions into lymphedema. I speak from personal experience and success that I am having with my treatment plan. I would appreciate any feedback and happy to share anything for research. I see fascia is mentioned in many articles with lymphedema/lipedema. But nothing seems to connect the damaged fascia to possibly being the nodules in lipedema. I was diagnosed with lipedema and lymphedema. I am breaking up the damaged fascia and seeing a huge difference in my body. I am not sure this is relevant but again any feedback would be great. 

Fascia holds memories, emotions, and trauma. Lipedema develops nodules which is the damaged fascia? Thoughts? Damage leads to decreased circulation and lymph. This starves the muscles, joints, etc. Eventually leads to lymphedema. Trauma to the fascia during surgery end result dev. Lymphedema. The damaged fascia is gummy.

Does Red Light Therapy or Near Infra-Red light helps in the treatment of Lymphodema? What about another treatments such as cavitation, hifu, or radio frequency?

Earlier this year I suddenly had a worsening of under control edema and lymphorrhea on my left leg. My right leg suddenly started leaking for the first time too. I'm losing over 16oz of exudate a day. What happened, are there other things to worry about losing that much?

I have had lymphedema for 9 years following a stage 4 pelvic cancer & stage 3 colon cancer surgery. Beat the cancer. Last month, in a repeat scan the left kidney was swollen. A stent was put in due to damage from radiation. Will leg keep weight off? Still lymphedema?