"You have a lot of well-meaning people in [Congress] but what moves this institution is the external pressure on it. You are the external pressure and you put a human face on it."
—Rep. Rosa DeLauro's (CT) response to LE&RN Spokesperson Kathy Bates' live testimony on Capitol Hill
- The reasons you're doing this:
- Over 27 million Americans have lymphatic diseases
- There are no cures
- There are no approved drugs for treatment
- Treatments that do exist are often not covered by medical insurance
LE&RN National Action Week
Activists again lobbied Congress during LE&RN’s National Action Week in March 2021. It’s not too late to raise your voice.
What’s at stake:
- Now that Congress has called for the establishment of a National Commission on Lymphatic Diseases, we need to advocate for NIH to take concrete action to make this Commission a reality.
- We want "lymphatic diseases" to be included as a category eligible for study in the Department of Defense (DOD) Peer-Reviewed Medical Research Program (PRMRP) in FY 2022. Lymphatic diseases disproportionately affect active duty service members and first responders, as these diseases often arise from trauma, bacterial infections, burn pit exposure, and cancer-treatment complications.
- We advocate for the Lymphedema Treatment Act to be passed by Congress. This legislation would expand access to compression garments for Medicare beneficiaries suffering from this disease.