I was diagnosed with lymphedema in September 2015 and I am still trying to wrap my head around my "Life with Lymphedema." Thus far, my future looks bleak. I too have run into a diagnosis, but very few answers. Doctors don't seem to know how to help. Treatments are few and expensive. Insurance, including Medicaid, doesn't want to pay for treatment(s) and therapy, so you get worse until you get bad enough to be hospitalized because that is and will happen without care. Catherine, from Elkins, AR, I live near you. E-mail me firstname.lastname@example.org if you want to talk. I too could use a friend who "gets it."