I have been living with lymphedema since 2011. I had SAPL surgeries with Dr. Jay Granzow in 2014 and 2015 to remove 4 liters of lymphedema sludge from each leg without the help of health insurance. I did the Ubenimex drug trial with Dr. Stanley Rockson at Stanford. I maintain a blog, LymphedemaSucks.com, to keep people aware of lymphedema and doing the California Run/Walk to Fight Lymphedema & Lymphatic Diseases when I can.