Fort worth, Tx

Madelyn Grace was diagnosed with primary lymphedema when she was about a year old. She was born with swollen feet and hands at birth and is now undergoing occupational therapy along with wearing special garments. It is not an easy adjustment that takes getting used because we hate seeing her go through this. It's not easy as a mom to see her two-year-old daughter having to go this, probably for the rest of her life. We are hoping for better outcomes and research down the line and also to get more answers and to meet more people who have the same disease as what she has but I think the one thing that has hurt her so much is the cost of having this disease. It is very expensive along with multiple occupational therapy services and custom-made garments as she grows older. I hope we can find more answers and more help