I have been living with lymphedema since 1997. Let me fill you in.

In 1997, I was injured on the job in a veneer factory. My hair was caught in a conveyor belt and I was "scalped" literally. Doctors tried relentlessy to reattach my scalp by taking a major vessle from my right thigh and transplanting it into my neck to establish blood flow. Twelve hours into my surgery they were unable to get blood flow back and I am now bald. And because of the surgery, I now have lymphedema. I was told in 1998 about my condition and it was minor. Now 22 years later my lymphedema is pretty severe. My right leg is 2-3 times the size of my left. Very heavy and very painful at times. I filed for disability in 2016 because I was no longer able to work. I have found it hard to find the right treatment. Partly because my lymphedema was not caused by cancer. Can you possibly point me in the right direction? I don't know what else to do.