I am one of the lost people out here who has no care. My PCP says there is nothing that can be done, and yet I read he is wrong. I need help. I grow bigger daily and not one Doctor can help me. The specialists I did see all said, "I've never seen anything like this in my life." I am unique. It will be a challenge if any doctor will take me on...I have JRA and have whole body lymphedema or so I am told. I need help.