In 2018, we took on the challenge of developing standards for
LE&RN Centers of Excellence in the Diagnosis and Treatment of Lymphatic Diseases (LD). To accomplish this, LE&RN engaged a committee of expert clinicians in the United States to create the initial draft of standards. An international committee was then engaged to further review and refine these standards, expand their global applicability and to act as a check and balance. The document that follows is the fruit of that labor. In drafting these standards, the committees realized that this is just the beginning of an organic process that will grow and be refined as the community and its capabilities develop over the years. To succeed, projects have to find a balanced starting point that addresses the need, while being inviting to those stakeholders instrumental to its success. This is where it begins.
Our thanks to the esteemed world leaders in lymphatic medicine who volunteered their time and talent to this venture. A special thanks to the Chair of the steering committee, Melissa Aldrich, MBA, PhD, who tirelessly refined the all-important first draft of this document. And equal thanks to Peter Mortimer, MD, who chairs the global oversight committee.
United States Steering Committee
Melissa Aldrich, PhD, UT Health, Committee Chair
David Chang, MD, University of Chicago
Joseph Dayan, MD, Memorial Sloan Kettering Hospital
Ketan Patel, MD, University of Southern California
Stanley Rockson, MD, Stanford University
Dhruv Singhal, MD, Harvard University Medical Schools
Global Oversight Committee
Peter Mortimer, MD, St. Georges University, London, Committee Chair, United Kingdom
Melissa Aldrich, The Brown Foundation Institute for Molecular Medicine, Steering, Committee Chair, United States
Hakan Brorson, Skåne University Hospital, Sweden
Ming-Huei Cheng, MD, Chang Gung Memorial Hospital, Taiwan
Robert Damstra, MD, PhD. Nij Smellinghe Hospital, The Netherlands
Sheldon Feldman, MD, Montefiore and Einstein Hospitals, United States
Emily Iker, MD, Santa Monica Lymphedema Clinic, United States
Eric Johnson, Jobst, United States
Jessica Kandel, MD, The University of Chicago Medicine & Biological Sciences, United States
Guenter Klose, Klose Training & Consulting, LLC, United States
Michael Oberlin, MD, Földiklinik GmbH & Co. Germany
Stephane Viognes, Hôpital Cognacq-Jay, France
Miikka Vikkula, MD, de Duve Institute. Brussels
June Wu, MD, Columbia University, United States
2018 Program Description
DATES AND DEADLINES
submission of Letter of Interest
due by June 15, 2019
— Invitation to submit application no later than June 30, 2019
— Letters of Designation
by December 10, 2019
The goal of the LE&RN Centers of Excellence (COE)
program is to increase access to the best possible multi-disciplinary clinical care and services for individuals affected by Lymphatic diseases (LD) and their families through a geographically diverse network of local and/or regional clinical centers. In addition to clinical and social services, the Centers will provide professional and lay education in the geographic areas they serve, are involved in LD clinical research, and work with LE&RN locally and nationally in its efforts to continually improve the lives of those affected by LD and their families.
CENTER OF EXCELLENCE CATEGORIES
- To design a US standard for best practice multidisciplinary care in the management of LD and providing services for families with LD.
- To select and support institutions that excel with regard to knowledge and experience in LD, education of LD in their local community, establishment of a multidisciplinary care team for LD, and involvement with LD clinical research.
- To directly support LE&RN in accomplishing its mission by developing and maintaining relationships throughout the LE&RN local, regional and national community, including within the COE network.
There are five categories for Center of Excellence designation:
COMPREHENSIVE CENTER OF EXCELLENCE (COE) designation indicates that an institution can provide the listed services on-site, all within the same institution, and can coordinate provision of the services.
NETWORK OF EXCELLENCE designation indicates that an institution and its affiliate institutions (within walking distance) can provide the listed services. For example, University “A” School of Medicine, University “A” Teaching Hospital, University “A” Cancer Center, and University “A” Rehabilitation Facility can provide the listed services, and can coordinate provision of the services.
REFERRAL NETWORK OF EXCELLENCE designation indicates that the institution and/or nearby collaborating institutions can provide the listed services, and that these institutions can coordinate provision of the services. For example, University “A” School of Medicine, University “B” Teaching Hospital, “C” Cancer Center, and Private Practice “D” Rehabilitation Facility can provide the listed services, and can coordinate provision of the services.
LYMPHATIC DISEASE (LD) SURGERY COE designation indicates that an institution (usually, a cancer care
center) can provide the listed surgical services.
LD CONSERVATIVE CARE COE designation indicates that an institution can provide the listed
conservative care services.
Services and activities that are not required for COE designation, but are encouraged by LE&RN, are listed (without check marks), and may be considered by the selection committee.
Download Standards and Application