Missouri Chapter Events

Inaugural Missouri Run/Walk Saturday, March 25th in St Louis - Register Now!

Inaugural Missouri Run/Walk Saturday, March 25th in St Louis - Register Now!

Join us for the inaugural MO Run/Walk to Fight Lymphedema & Lymphatic Diseases in beautiful St. Louis, MO, sponsored by BSN medical (Premier Presenting Sponsor) and Tactile Medical (Presenting Sponsor). Whether you're a serious runner, or just want to get a bit of exercise, this 5K walking/running course in Jefferson Barracks Park is sure to be just what the doctor ordered. The Lymphatic Education & Research Network (LE&RN) has been hosting this event in NY, CA, TX, and WI, and this year we've expanded to MO.

Join hundreds of LE&RN supporters in their fight against lymphedema and lymphatic diseases. We will run or walk on behalf of the estimated 10 million Americans and 140 million worldwide who are fighting this Lymphedemic. LE&RN's mission is to fight lymphatic disease and lymphedema through education, research and advocacy, but it doesen't happen without you.

- To register to run, click the "Register Now" button at the top.

- Want to Join the Fight against lymphedema and other lymphatic diseases? Register to be a fundraiser HERE. 

Event details and schedule

* Check-in/Registration will be from 8-9 am

* Event begins at 9 am

* Beverages and light snacks will be provided

* Course is 5K, but you are free to complete as much as you are comfortable with

* Should you choose to attend but not run or walk, we will have people who stay behind, and you can visit with our sponsors

* It may be chilly, so please dress for the late March weather

* Parents - please stay with your children 

* The park is not closed for us, so please be conscious of the other park attendees

* HAVE FUN!

Living with Lymphedema: One Nurse’s Journey as Patient and Advocate

Amy Green on The Dave Glover Show

Amy Green on The Dave Glover Show

Amy Greene, co-Chair of LE&RN's Missouri Chapter, was interviewed by The Dave Glover Show in St. Louis. Amy educated the radio program's hosts and their listeners about what lymphedema is, who gets it, and what it means for quality of life. She also talked about her nearly life-long activism and her relatively new role as a LE&RN Chapter co-Chair.

Listen to the entire interview here. Follow Amy at LE&RN's Missouri Chapter Facebookhttps://www.facebook.com/LERNMissouri/ page. You can contact Amy and Co-Chair Lauren Scheidegger at MOChapter@LymphaticNetwork.org.

Amy has joined the fight against lymphedema and lymphatic diseases. Join Amy as a LE&RN member today.

The 1st Annual WI Chapter Run/Walk (Oct 8, 2016) was an inspirational day, says Chapter Co-Chair

The 1st Annual WI Chapter Run/Walk (Oct 8, 2016) was an inspirational day, says Chapter Co-Chair

The 1st Annual WI Run/Walk to Fight Lymphedema & Lymphatic Diseases was such an inspirational day. We couldn’t believe the great turnout and how so many people came together to learn about lymphedema and lymphatic diseases and to support those living with these diseases. As Co-Host, I believe the event was an incredible success due in part to the great volunteers. We formed a Walk Committee and by drawing on each person’s area of knowledge and strengths, each person executed their part beautifully.

I asked Kristin, a member of the WI Chapter to Co-Host the Walk with me and she became our go-to person for anything related to running or walking a 5K event. Kristin recruited Deb and Alyce and rounding out our Walk committee was Becca Kobus (WI Chapter Co-Chair), who became our go-to person for online projects and artistic design.

We started many months ahead of time and held regular meetings every other week. We solicited regional businesses for sponsorship funds and received positive responses. We also asked local businesses for in-kind donations and they responded generously. This helped keep the event costs to a minimum. We raised cash donations, participant give-aways, a gift certificate for our prize drawing, bottled water, snacks, fruit and Kashi sent us Kashi bars.

For the venue we chose a school in Osceola which allowed for ample parking and use of the building’s restrooms. For publicity, we submitted a story to local papers along with press releases. We posted flyers at local businesses and a few weeks before the event, we walked in a local parade, handing out Walk flyers while throwing candy. We promoted the event by posting our on local online sites, word of mouth and by emailing friends and family to participate and donate.  

As race day neared, we recruited volunteers to help with all the various tasks and then held a volunteer meeting a few days before race day so that each person knew their job and had written responsibilities. We were so excited when the event t-shirts arrived and everything started coming together.

 The big day began with a set up crew who worked to get all the tables and tents in place for our booths and another crew who followed up with getting runners and walkers registered. We had such great support from local businesses along with generous donations from LE&RN’s national sponsors Tactile Medical and Lohmann & Rauscher. Both companies had a booth at our event as well.  Our Emcee kicked off the event with an introduction of Dr. Nancy Hutchison, our keynote speaker, who delivered a moving and informative speech. Visit our WI Chapter Facebook page to view the speech and photos from our event. We then asked each lymphedema patient to come forward to receive a balloon and then on the count of three, we simultaneously released our balloons, symbolizing a resolution to come out of the shadows and work together to raise awareness.  Gone are the days of living in the shadows. Now is the time to speak up and demand change.

Throughout the day the volunteers did a great job operating as a team.  First the kids ran in the ½ mile Fun Run which was a heart-warming and inspiring sight to experience.  Next a timed 5K Walk-Run. Walkers and runners alike were excited to participate and enjoyed the beautiful fall scenery.  The event concluded with prize drawings for several donated gifts.

I was so proud of our Walk Committee and all their hard work.  I am so thankful for the kind support of the Osceola community; for our sponsors who gave generously to make this day possible, and for all the volunteers and participates that made this a great day to remember.

Cindy Cronick

Co-Chair, WI Chapter

LE&RN CO Chapter Chair attends lunch with the CEO of the AMA

LE&RN CO Chapter Chair attends lunch with the CEO of the AMA

On Monday, October 3rd, in Chicago, LE&RN Representatives met with the CEO of the American Medical Association (AMA). Physician education regarding lymphedema, lipedema and lymphatic disease is our priority. The meeting resulted in AMA CEO Dr. James Madara asking that LE&RN submit a "Piece of My Mind" editorial for publication consideration in JAMA. The inclusion of lymphatic related Continuing Medical Education (CME) in the AMA/JAMA Network of courses was also discussed. We were also able to talk about all the current preventive and post diagnosis treatment modalities for LE.
The meeting was arranged and hosted by Dr. Nancy Gray, CEO & President of Gordon Research Conference. Participants in addition to Dr. Gray included Marie Apodaca (patient and CO LE&RN Chapter Chair), LE&RN Spokesperson Kathy Bates, Dr. Stan Rockson, Sarah Blendermann (COO of GRC) and myself.
FOX NEWS: Prior to the meeting, we were interviewed by Fox News that initially planned a piece on our CO Chapter Chair, Marie Apodaca (above second from left). This grew into them covering the NY Walk and the Chicago meeting. Kathy Bates, Dr. Rockson and William Repicci were all interviewed as well. It will be distributed nationally through Fox affiliates
A side note: at the meeting, Dr. Gray told Dr. Madara that thanks to LE&RN, the GRC is changing course from its 85 year history. LE&RN having had a patient session at the lymphatics meeting this year inspired them. They are now discussing patient sessions being offered to the more than 200 disciplines that have GRC conferences.
 

WI Chapter Run/Walk October 8th, 2016

WI Chapter Run/Walk October 8th, 2016

The First Annual WI Chapter 5K Run/Walk to Fight Lymphedema & Lymphatic Disease will be held Saturday, October 8th, 2016 at Osceola Intermediate School, 949 Education Drive, Osceola. Check-in is from 8:00 to 9:00 am, with a 9:30 race start time. This 5K winds through Osceola with the final stretch through beautiful Schillberg Park. There is also a 1/2 mile Fun Run for kids beginning at 9:30 am. **Pre-registered participants will receive an event t-shirt which they can pick up along with their packet on Friday night from 5:00 to 7:00 pm, or on Saturday morning.** ~ $25.00 Registration fee and guaranteed event t-shirt through Sept. 21st ~ $35.00 Registration fee and event t-shirt while supplies last, after Sept. 21st ~ $15.00 Registration fee and event t-shirt for the 1/2 mile Fun Run

Register now!

Get More Info

The Wellbeing Summit 2016 – Washington DC, USA, May 18th, 2016

The Wellbeing Summit 2016 – Washington DC, USA, May 18th, 2016

The Wellbeing Summit took place in Washington DC presented by the Diplomatic Courier and hosted by Gallup.

How do digital innovation, mobile communication, telemedicine and nutrition affect our wellbeing? What are the social determinants of wellbeing and how is health perceived in the era of digital breakthroughs?

Despite the technological advances we are still unable to diagnose or offer curative treatments to many diseases, including post-cancer treatment complications coming after some of the most common cancer forms such as breast cancer and melanoma. Dr. Gousopoulos, LE&RN Europe Chapter Chair presented in this context lymphedema and the importance of awareness for the disease that affects millions of people worldwide.

The Wellbeing Summit 2016 was broadcasted live in 180 countries creating more than 19 million impressions in the social media.   

Presentation:

https://youtu.be/nro_W0ohMwY?list=PLzyGLFG67--XW24nQoTgGgKihcnvnNjEO

Interview:

https://youtu.be/_Y_tKSGhkJA?list=PLzyGLFG67--XW24nQoTgGgKihcnvnNjEO

WEF Annual Meeting of the New Champions – Tianjin, People`s Republic of China, 26-28 June 2016

WEF Annual Meeting of the New Champions – Tianjin, People`s Republic of China, 26-28 June 2016

The future of healthcare in the era of the Fourth Industrial Revolution

The WEF Annual Meeting of the New Champions known as “Summer Davos” is the foremost global gathering on science, technology and innovation. Dr. Gousopoulos, physician, scientist attended the WEF Annual Meeting of the New Champions 2016 in his capacity as Head of the Europe Chapter and WEF Global Shaper, introducing lymphatic disorders and lymphedema to a global scene of changemakers.  

https://www.weforum.org/events/annual-meeting-of-the-new-champions-2016/about

10yr old STL Girl with lymphedema created “Lemonade for Lyphedema”

10yr old STL Girl with lymphedema created “Lemonade for Lyphedema”

Missouri Chapter Chair Amy Greene reported a heart-warming story this week. Karson Bluette (pictured at right), a 10-year-old St. Louis girl and lymphedema patient, created "Lemonade for Lymphedema" and raised $90.32 for LE&RN by selling glasses of lemonade at the entrance to her subdivision. Thank you, Karson!

Asia Pacific Electronic Health Record Conference

6 & 7 July 2016, Wednesday &Thursday

Convention Centre 3, Hong Kong Science Park, Shatin, New Territories, Hong Kong

http://www.ehealth.org.hk/APEHRC2016/en/programme.html

This Conference aims to:

  1. Promote the territory-wide patient-oriented eHR Sharing System in Hong Kong to enhance the continuity of care as well as better integration of different healthcare services for the benefits of individual patients
  2. Foster a better development in the technology for different healthcare IT systems to interoperate and interconnect through the eHR sharing infrastructure,.....
  3. Help IT/Healthcare sector become more knowledgeable for advice, design, implementation and quality assurance of eHealth systems adopting various standards

LE&RN India Chapter Chair, Ms Arun Rekha will speaker at the
APAMI Session:  Tele support for Lymphoedema care in a remote area  in India