1st World Lymphoedema Day, an initiative of US based LE&RN -‐Lymphatic Education and Research Network was celebrated at AIIMS ON 6th March 2016
This was organized by the Department of Surgical Disciplines, AIIMS in partnership with NGO SATHI (Society for Administration of Telemedicine and Healthcare Informatics), the India Chapter of LE&RN with support from NVBDCP (National Vector Borne Disease Control
Program).
Networking and Educational Seminar for Lymphedema Therapists
Washington University, St. Louis, MO
June 3-5, 2016
Lymphedema Seminars provides educational seminars to medical professionals who work with lymphedema. These include physical and occupational therapists, oncology nurses, and oncologists, radiologists and surgeons. Massage therapists, family practice MDs, internists, etc, are also welcome to attend our seminars. Our presenters are the top in their fields and offer state-of-the-art information that yields continuing education credits.
*Seminar fee includes welcome Wine & Hors d’Oeuvres Reception, lectures, networking, coffee, snacks, Sat. & Sun. breakfasts, and Saturday lunch. Accomodations can be made at the Parkway Hotel. Ask for the discounted Lymph Seminars group rate of only $133/night. (parking is an additional $7/night). Call them directly at (314) 256-7777. Visit our website for further information.
Join us and meet LE&RN Missouri Chapter Chairs, Amy Greene and Lauren Scheidegger!
For additional information you can contact us:
Phone: 805-772-3560
Email: info@lymphseminars.com
Web: www.lymphseminars.com
Phone: 805-772-3560
Email: info@lymphseminars.com
Web: www.lymphseminars.com
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Wisconsin Chapter Co-Chairs Rebecca Kobus (L) and Cindy Cronick (R) in Washington DC for lobby days, April 2016.
Florida Chapter hosts Lymphedema Awareness Night at NBA's Orlando Magic Game
To download the flyer and order tickets, click GET MORE INFO.
Parents of children who have been diagnosed with lymphedema invited to participate in a research study. The purpose of this study is to better understand the experiences of biological parents of children with lymphedema.
We are interested in learning more from you about what it is like for you in caring for a child with primary lymphedema. Specifically, we want to know about your unique challenges as a parent, your role as an advocate for their child in health care, school-based, and other settings, how you explain lymphedema to your children and how you help your children in turn explain lymphedema to others.
Volunteers will participate in an informal interview over the telephone, via video conference (e.g, FaceTime, Skype, Google Hangout), or face-to-face with an interviewer. The interview may last up to one hour
This study has been approved by the Miami University Institutional Review Board: 01182r.
If you would like to participate in this opportunity, please contact the Principal Investigator:
Elise Radina, PhD, CFLE
Professor and Acting Chair
Family Studies & Social Work
Miami University
RadinaME@MiamiOH.edu
513-529-3639
Facebook Page for the study: https://www.facebook.com/Research-Study-Parents-of-Kids-with-Lymphedema-477960705725977/?ref=aymt_homepage_panel
Attention Parents of Kids with Lymphedema! We are looking to talk to you!
Parents of children who have been diagnosed with lymphedema invited to participate in a research study. The purpose of this study is to better understand the experiences of biological parents of children with lymphedema.
We are interested in learning more from you about what it is like for you in caring for a child with primary lymphedema. Specifically, we want to know about your unique challenges as a parent, your role as an advocate for their child in health care, school-based, and other settings, how you explain lymphedema to your children and how you help your children in turn explain lymphedema to others.
Volunteers will participate in an informal interview over the telephone, via video conference (e.g, FaceTime, Skype, Google Hangout), or face-to-face with an interviewer. The interview may last up to one hour
This study has been approved by the Miami University Institutional Review Board: 01182r.
If you would like to participate in this opportunity, please contact the Principal Investigator:
Elise Radina, PhD, CFLE
Professor and Acting Chair
Family Studies & Social Work
Miami University
RadinaME@MiamiOH.edu
513-529-3639
Facebook Page for the study: https://www.facebook.com/Research-Study-Parents-of-Kids-with-Lymphedema-477960705725977/?ref=aymt_homepage_panel
A new study is available through the University of Missouri-Columbia (MU) for breast cancer survivors who have been diagnosed with lymphedema. It uses interactive theatre and printed information compared to printed information alone to test whether an interactive approach is more effective than printed information alone in helping women stick to their lymphedema self-management regimens.
The study will divide participants into two groups. One group will get printed information about lymphedema and the other will get printed information AND attend an interactive theatre performance about lymphedema. There is a baseline on-site (MU) visit at the beginning of the study, with the addition of one group also attending the interactive theatre performance. Other than the baseline visit and the theatre performance, the study is conducted by mail. Eighteen more participants are needed for the study.
For more information and/or scheduling a study appointment, please contact Pamela Ostby, PhD(c), RN, OCN® at 314/255-6677 or you can email leresearch@missouri.edu.
Co-Chair Annette Gluskin-Habin (left) meets Shoosh Crotzer at the Lymdema Seminar Jan 22-24, 2016
