Tristan’s story

Tristan’s story

A guest blog post by Ala Tocila.

I would like to share my son's primary lymphedema (LE) story. Tristan is a six-year-old boy with primary LE, which has affected his left side of his body and his right foot. We live in Alberta, Calgary, Canada.

Tristan has had three surgeries in Paris,

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2019 U.S. Senate Minibus Bill Update

2019 U.S. Senate Minibus Bill Update

Bill now includes "lymphatic research" in Committee recommendations

Dear LE&RN Supporting Members and other LE/LD Advocates,

TOGETHER we are making progress. 

The U.S. Senate just passed its second minibus bill, which now goes to the House. Assuming passage there, it will go to the

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