Chair, OR Chapter
Liz’s desire to help those with lymphatic diseases (LDs) started with her daughter Naomi, who was born with lymphatic malformations. Naomi has endured sclerotherapy, surgery, and physical therapy to help manage her condition and recurring pain. Navigating a rare medical condition can be lonely and scary. LE&RN has provided their family with a sense of community and hope and equipped Naomi’s medical providers with valuable knowledge and insights through their membership. Liz will bring her experience in non-profit outreach to this volunteer role. Together with Naomi, she looks forward to helping people living with LDs in Oregon and their families with connecting to the resources they need.
Youth Ambassador, OR Chapter
At just 11 years old, Naomi is already a passionate advocate and activist who lives with lymphatic malformations. Driven by her desire to make a meaningful impact and assist others facing similar challenges, she asked to start the LE&RN Oregon Chapter. LE&RN has played a significant role in her life and has helped her feel less alone in her journey. In 2021, Naomi set out on her own to raise $200 for LE&RN but surpassed her goal, raising $5,724!
Naomi has had a compression garment in almost every color, with her current favorites being lagoon and navy. She is eager to expand her collection with patterned ones as she grows. Naomi enjoys writing, sketching, playing tennis, and anime.