At the age of 13, Fleur developed Lymphoedema in her right leg. Initially diagnosed with deep vein thrombosis, it was evident that further investigation was needed when the swelling was not going away after the DVT disappeared. After a 2-1/2 year journey that included seven vascular surgeons opinions across three states of Australia, Fleur was finally diagnosed with primary lymphedema (or LE as LE&RN has coined to unite the spelling).  Fleur's LE became bi-lateral at age 18.

As a teenager and young adult, Fleur became an expert in dressing in such a way to "hide" her LE and spent many years dealing with the condition silently. Almost three decades later and now a mother of two young children, Fleur’s goal is to raise awareness of this chronic illness. She believes that self-advocacy is paramount and wants to empower others to do so. 

Though Australia offers universal health care, the cost of compression garments can still be prohibitive and access to practitioners can be difficult in some circumstances. Yet Australia has some wonderful resources for patients. Fleur's aim is for this chapter is to provide these resources in AUS, as well as convey the important work that LE&RN is doing, to her fellow Australians.

Jo Caughtry is a Registered Nurse, Wellbeing Designer and Educator with a passion for improving health and quality of life through compassionate, human-centered support. Following her own diagnosis of secondary lymphoedema after surgery in 2024, Jo developed a deeper understanding of the physical, emotional and everyday realities faced by people living with lymphoedema.

With a background spanning healthcare, wellbeing, biophilic design and environmental psychology, Jo brings a unique perspective that combines clinical understanding with lived experience. Her work focuses on education, awareness, wellbeing and the importance of supportive environments in helping people navigate chronic health conditions.

Jo joined LE&RN to help increase awareness, strengthen education and support greater connection for individuals and families living with lymphoedema.