Resource Materials

• 
  CLEAVED – A Story of Loss, Legs and Finding Family

  To celebrate World Lymphoedema Day, CLEAVED – A Story of Loss, Legs and Finding Family, by Australian journalist and playwright JANE CAFARELLA, a memoir about family estrangement and growing up with lymphoedema is available here as a digital download for $3.99AUD with $1 for every purchase donated to LE&RN.

  Jane was born with Milroy’s Disease, a rare form of congenital lymphoedema that wasn’t diagnosed until she was 18. Until then, it was just known as her “big leg” and ignored.
  Jane’s leg story was always secondary to the bigger story of two sisters, each allied to a different parent in the family war and the incident that blew their family apart.
  But in writing CLEAVED Jane came to realise how growing up with lymphoedema shaped her.
  “I hope that my story will help others, especially children with primary lymphoedema and their parents,” Jane said. “As far as I know there’s no other book about growing up with lymphoedema from birth to older age.”

• 
  You Are Not Alone!

  Lymphoedema stories from around the world - Volume 1
  Compiled by
  Amy Rivera & Matt Hazledine

  Lymphoedema affects millions of people around the world,
  yet it is often a lottery whether the appropriate level of
  healthcare is received. That can leave a person living with
  this lifelong disease feeling desperate, neglected, and alone.

  You are NOT alone! 

  Advocates Amy Rivera and Matt Hazledine are joined by 34 people living with lymphoedema from 14 countries from around the world, who share their personal experiences and top tips, to help you to live better with lymphoedema.

  A proportion of annual profits will be donated to charities and non-profit organisations around the world.

  Order your copy here
  

• 
  Lymphoedema Support Network Learning Modules

  The Lymphoedema Support Network (LSN) has two live online learning modules available with free access to participants. These modules were created in conjunction with British Medical Journal Learning (BMJL) with developmental support from Professors Peter Mortimer and Vaughan Keeley and other eminent UK based doctors/specialists. Both modules include pre and post module testing to allow participants to demonstrate learning and development.

  The first module looks at the mechanics of lymphedema and is anatomy and physiology based. This is a good starting point for general practitioners and anyone in the medical field looking for a good baseline knowledge of lymphedema.  Access this BMJL module here.

  In the second module, also hosted by BMJL, leading experts help to clarify some of the key aspects relevant to understanding, assessing, and managing chronic edema/lymphedema in primary care. This module looks at the reality of lymphedema and how health care practitioners can support those living with the condition. Access this BMJL module here.

• 
  How to Live Better With Lymphoedema—Meet the Experts
  
  If you have lymphoedema or know someone who does, this book will provide invaluable information from the experts and useful tips to help you better manage the condition, improving your quality of life and mental wellbeing.
  
  Lymphoedema, a chronic and often debilitating lifelong disease that can have a detrimental effect on both physically and mentally.
  
  Matt Hazledine shares his personal experiences and useful tips, plus authoritative information and guidance from over 20 medical professionals and experts, with the aim to help you to live better with lymphoedema. We cover the four cornerstones of treatment: Compression, Skin Care, Healthy Lifestyle & Movement and Lymphatic Drainage.
  
  With lymphoedema knowledge is power, and you will learn about; Finding the right therapist, Help and support networks, Self-management techniques, Therapies, products & surgery and Research to find a cure.
  Click here to buy from Publisher
  Click here to buy on Amazon
• Lymphedema A Concise Compendium of Theory and Practice

  Just published online: Lymphedema—A Concise Compendium of Theory and Practice

  Authors:  Byung-Boong Lee, Stanley G. Rockson, John Bergan (Eds.)

  The second edition of this book serves as a central source of theoretical and practical knowledge to optimize the evaluation and treatment of patients with lymphedema. The book covers all aspects of the disease from anatomical and histological features to diagnosis as well as physical/medical and surgical management of the disease.
  

  Updated from the first edition to reflect the substantial progress in diagnostics, medical care and surgical intervention for this patient population, this volume has been reorganized to meet today’s practice requirements. It addresses the challenges faced by clinicians in the management of chronic lymphedema enabling them to meet the medical needs of this large patient community.
  

  Edited by world leaders in Vascular Medicine and Surgery, this comprehensive volume provides clear, concise background and recommendations in an easy-to-use format. It is a valuable reference tool for clinical practitioners (physicians/nurse practitioners/technicians) who wish to deliver state-of-the-art health care to their patients with lymphatic and venous disorders.
  

  The book is available for purchase in either hardcover or e-book from the Springer website (buy now).

  Learn More >
• Let’s Talk Lymphoedema: The Essential Guide to Everything You Need to Know

  Let’s Talk Lymphoedema: The Essential Guide to Everything You Need to Know by Gemma Levine and Peter Mortimer is published by Elliott & Thompson and available at bookstores and on Amazon.

  “Let’s Talk Lymphoedema” is exactly what this book is all about. It is our aim to inform sufferers, friends and family of its debilitating and lifelong effects and help them to deal with those effects. We have contributions from the top professionals in the UK, Africa, Australia, India and USA, in a wide-ranging series of chapters. I have also photographed many patients; symbolic photographs that illustrate the workings of the lymphatic system; a micro surgery unit within a hospital; preparing bandaging and lymphatic drainage treatments; a compression garment factory in Germany and many more. But there was one image I couldn’t capture, a thirteenth-century sculpture from the Sun Temple at Konarak in Odisha. I’m afraid I was not alive at the time, nor had Apple invented the iPad!

  This book is a powerful tool in the struggle to raise awareness of lymphoedema. It includes the most up-to-date information and advice from around the world and has a powerful message for suffers, that they are not alone or forgotten and that they still can lead rich and vibrant lives. I am profoundly privileged and proud, to collaborate with the experts in this country and worldwide in this publication, but one in particular, Professor Peter Mortimer who has devoted time and expertise to advancing this cause, which has been his lifelong endeavor.

  Learn More >
• Lymphedema and Lipedema Nutrition Guide: foods, vitamins, minerals, and supplements

  Written by:  by Chuck Ehrlich, Emily Iker, MD, Karen Louise Herbst, PhD, MD, Linda-Anne Kahn, CMT, CLT-LANA, Dorothy D. Sears, PhD, Mandy Kenyon, MS, RD, CSSD, and Elizabeth McMahon, PhD

  There have been significant changes since the preview edition including additional information on the role of the liver (and liver disease), more info on gut microbes, etc. We have also added meal plans, menus, and other information to help you with the change.

  Eating more wisely can help you feel better and improve your lymphedema or lipedema. Learn why nutrition is important, what to eat, which and what foods to avoid, and which vitamins, minerals, and supplements to consider.

  This book combines the clinical expertise of leading specialists, personal insights from living with lymphedema and lipedema, and the latest research on nutrition and behavior change. Visit the book website here.

  The book is available for purchase from Amazon.com in either paperback or Kindle e-book editions (Buy Now) or through your local book store (ask them to order ISBN 978-0976480686).

  Learn More >