Lymphatic Education
& Research Network

Ok, this is gonna be long. I'm 33 years old and both I and my mother (I think at least!) have either primary lymphedema or lipedema, but I believe for both of us it has progressed into lipo-lymphedema. I've had symptoms since puberty but it only really got bad within the last 10 years or so. My poor mother's....

I have been diagnosed with lymphedema,and lipedema. Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms. The adipose tissue is different from regular fat. It is immune to diet and exercise. Lipedema is usually confused with regular obesity and lymphedema. I am glad I received a diagnosis in 2016.....