Lymphatic Education
& Research Network
  • Search Icon
  • Lymphatic Education & Research Network
X
  • Search Website
  • Living with Lymphatic Diseases
    • Resource Center
    • About Lymphatic Diseases
    • Ask The Experts
    • Find A Lymphedema Therapist
    • Films on Lymphatic Disease
    • The Incidence of Lymphedema
    • Resource Downloads
    • LE&RN Chapters
    • World Lymphedema Day
    • Virtual Expo
    • LE & LD Video Symposia
  • Research And Researchers
    • NIH-Researcher Database
    • Grants & Awards Programs
    • Clinical Trials and Studies
    • Lymphatic Research & Biology
    • LE&RN-GRC Awards
    • LE&RN Travel Awards
    • LE & LD Video Symposia
  • News and Events
    • News
    • Conferences & Online Courses
    • Newsletter
    • Video Library
    • Walk to Fight Lymphedema & Lymphatic Diseases
    • Scholarship Winners
  • About Us
    • Mission
    • History
    • Your Investment
    • Our Founding
    • Leadership Team
    • Honorary Board
    • Contact Us
    • Donate
  • Living with Lymphatic Diseases
    • Resource Center
    • About Lymphatic Diseases
    • Ask The Experts
    • Find A Lymphedema Therapist
    • Films on Lymphatic Disease
    • The Incidence of Lymphedema
    • Resource Downloads
    • LE&RN Chapters
    • World Lymphedema Day
    • Virtual Expo
    • LE & LD Video Symposia
  • Research And Researchers
    • NIH-Researcher Database
    • Grants & Awards Programs
    • Clinical Trials and Studies
    • Lymphatic Research & Biology
    • LE&RN-GRC Awards
    • LE&RN Travel Awards
    • LE & LD Video Symposia
  • News and Events
    • News
    • Conferences & Online Courses
    • Newsletter
    • Video Library
    • Walk to Fight Lymphatic Diseases
    • Scholarship Winners
  • About Us
    • Mission
    • History
    • Your Investment
    • Our Founding
    • Leadership Team
    • Honorary Board
    • Contact Us
    • Donate

Your Stories

Post a New Story
Sponsors:
Sponsors

Read the stories of people affected by lymphedema and lymphatic diseases -- and share your own.

  • All
  • Friends and Family
  • Living With Lymphatic Disease
  • Living With Lymphedema
Ok, this is gonna be long. I'm 33 years old and both I and my mother (I think at least!) have either primary lymphedema or lipedema, but I believe for both of us it has progressed into lipo-lymphedema. I've had symptoms since puberty but it only really got bad within the last 10 years or so. My poor mother's....
Arielle

Langhorne, PA

I have been diagnosed with lymphedema,and lipedema. Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms. The adipose tissue is different from regular fat. It is immune to diet and exercise. Lipedema is usually confused with regular obesity and lymphedema. I am glad I received a diagnosis in 2016.....
Kara

USA, USA

Elizabeth Basaca

US, US, US

Naomi Basaca was born with a lymphatic malformation. Here her mom talks about the family's journey and their hopes for the future. Watch her story on YouTube here.
Charisse

USA, USA

My name is Charisse and I have primary lymphedema. I'....
Living with Lymphedema and Lymphatic Disease
Research and Researchers
Membership and Chapters
News and Events
About Us
  • Home
  • Privacy Policy
  • Contact
  • Follow Us:
154 West 14th Street, 2nd Floor, New York, NY 10011
The Lymphatic Education & Research Network is a tax-exempt 501(c)3 nonprofit organization. Our Identification Number (EIN) is 58-2404527.
© 2025 Lymphatic Education & Research Network. All rights reserved.