Lymphatic Education
& Research Network

  • Donate Now
  • Become a Supporting Member
  • Lymphatic Education & Research Network
X
  • Living with LYMPHEDEMA AND Lymphatic Disease
    • What is Lymphedema?
    • FAQs About the Lymphatic System
    • FAQs About Lipedema
    • Ask The Experts
    • Your Stories
    • Related Organizations
    • Find A Lymphedema Therapist
    • Resource Materials
    • Guest Blog Posts
    • Films on Lymphatic Disease
    • LE&RN Interviews
    • World Lymphedema Day
    • Virtual Expo
    • LE & LD Video Symposia
  • Research And Researchers
    • NIH-Researcher Database
    • LE&RN Postdoctoral Fellowship Awards
    • LE&RN Grants and Awards
    • LE&RN Travel Awards
    • Other Grants & Awards Programs
    • Latest Research
    • Clinical Trials and Studies
    • Publications
    • LE&RN-GRC Awards
    • Fellowship Opportunities
    • LE & LD Video Symposia
  • Membership and Chapters
    • Supporting Membership
    • U.S. Chapters
    • International Chapters
    • Donation Options
  • News and Events
    • News
    • Press Releases
    • Legislative Action Alerts
    • From President & CEO, William Repicci
    • Events & Symposiums
    • Travel Awards
    • Conferences and Online Courses
    • Newsletter
    • Gordon Research Conferences (GRC) News
    • Stories to the AMA
    • Stories to the NIH
    • News Archive
    • Video Library
    • Walk to Fight Lymphedema & Lymphatic Diseases
    • Scholarship Winners
  • About Us
    • Mission
    • History
    • Your Investment
    • Partners and Supporting Members
    • About Our Founders
    • Leadership Team
    • Honorary Board
    • Contact Us
  • Living with LYMPHEDEMA
    AND Lymphatic disease
    • What is Lymphedema?
    • FAQs About the Lymphatic System
    • FAQs About Lipedema
    • Ask The Experts
    • Your Stories
    • Related Organizations
    • Find A Lymphedema Therapist
    • Resource Materials
    • Guest Blog Posts
    • Films on Lymphatic Disease
    • LE&RN Interviews
    • World Lymphedema Day
    • Virtual Expo
    • LE & LD Video Symposia
  • Research And Researchers
    • NIH-Researcher Database
    • LE&RN Postdoctoral Fellowship Awards
    • LE&RN Grants and Awards
    • LE&RN Travel Awards
    • Other Grants & Awards Programs
    • Latest Research
    • Clinical Trials and Studies
    • Publications
    • LE&RN-GRC Awards
    • Fellowship Opportunities
    • LE & LD Video Symposia
  • Membership and
    Chapters
    • Supporting Membership
    • LE&RN Chapters
    • Donation Options
  • News and
    Events
    • News
    • Press Releases
    • Legislative Action Alerts
    • From President & CEO, William Repicci
    • Events & Symposiums
    • Travel Awards
    • Conferences and Online Courses
    • Newsletter
    • Gordon Research Conferences (GRC) News
    • Stories to the AMA
    • Stories to the NIH
    • News Archive
    • Video Library
    • Walk to Fight Lymphedema & Lymphatic Diseases
    • Scholarship Winners
  • About Us
    • Mission
    • History
    • Your Investment
    • Partners and Supporting Members
    • About Our Founders
    • Leadership Team
    • Honorary Board
    • Contact Us
  • Donate Now
  • Become a Supporting Member

Your Stories

Post a New Story
Sponsors:
Sponsors

Read the stories of people affected by lymphedema and lymphatic diseases -- and share your own.

  • All
  • Friends and Family
  • Living With Lymphatic Disease
  • Living With Lymphedema
Ok, this is gonna be long. I'm 33 years old and both I and my mother (I think at least!) have either primary lymphedema or lipedema, but I believe for both of us it has progressed into lipo-lymphedema. I've had symptoms since puberty but it only really got bad within the last 10 years or so. My poor mother's....
Arielle

Langhorne, PA

I have been diagnosed with lymphedema,and lipedema. Lipedema is a chronic medical condition characterized by a symmetric buildup of adipose tissue (fat) in the legs and arms. The adipose tissue is different from regular fat. It is immune to diet and exercise. Lipedema is usually confused with regular obesity and lymphedema. I am glad I received a diagnosis in 2016.....
Kara

USA, USA

Elizabeth Basaca

US, US, US

Naomi Basaca was born with a lymphatic malformation. Here her mom talks about the family's journey and their hopes for the future. Watch her story on YouTube here.
Charisse

USA, USA

My name is Charisse and I have primary lymphedema. I'....
Living with Lymphedema and Lymphatic Disease
Research and Researchers
Membership and Chapters
News and Events
About Us
  • Home
  • Privacy Policy
  • Contact
  • Follow Us:
154 West 14th Street, 2nd Floor, New York, NY 10011 | Lymphatic Education & Research Network is a 501(c)(3) under federal tax guidelines. | © 2023 Lymphatic Education & Research Network. All rights reserved