I'm 59 and have been living with lymphedemia for more than 20 years. Currently I am in n a facility because I haven't been able to walk for almost 2 years. I get cellulitis often and the facilities I've been in don't treat lymphedemia. I've got the velcro wraps, the pumps, a vibration plate and not one place....

Recent diagnosis. I am over 2 years out from left mastectomy and diep flap reconsrtruction. My arm began to really hurt after Covid in Nov 2020. I went rounds of Dr's visits, 2 TIA admission to hospital for both times. Saw orthopedic for shoulder pain, 2 steroid injections and second one helped. I then followed up with Plastic Surgeon and they suggested therapy....

Three years ago, at the age of 26, I noticed a lump on my neck that slowly started increasing in size. I went to three or four different doctors who all thought it had something to do with a clogged lymph-node. It continued to grow and felt squishy so I had it drained countless times, but it would come back after....

My experience with lymphedema is with my 8-year-old son. When he was 9 months old I brought his leg swelling to the attention of his pediatrician. She misdiagnosed him, calling his condition hemihyperplasia. It wasn't until about a year ago that we found out through an MRI that he has primary lymphedema of his left leg, pelvis, and genitals. He....

When I get down or am in lots of pain, I write poetry to cope. HOW DARE YOU How dare you say I’m weak, That I should “walk it off”, That I’m lazy, worthless or hopeless, How dare you look, point and laugh, Stare at me with pity, disgust or disdain, How dare you....

My Mom was a warrior, a fighter to the end. After a diagnosis of metastatic breast cancer, she made it her job, her goal to live a meaningful and productive life. Lymph nodes were removed, and it would be years before the swelling would begin. Something we had no idea was coming. The truth is, and I only lived through....

Madelyn Grace was diagnosed with primary lymphedema when she was about a year old. She was born with swollen feet and hands at birth and is now undergoing occupational therapy along with wearing special garments. It is not an easy adjustment that takes getting used because we hate seeing her go through this. It's not easy as a mom....

My daughter Brylan was born on Christmas Day and was sent home from the hospital as a healthy baby. A few weeks later, my sister noticed that Brylan's foot seemed a little swollen. At her one-month checkup, her pediatrician also seemed concerned and thus began our journey for a diagnosis. I was continuously told to "wait and see" or ....

My story of lymphedema begins with the birth of my son. My son Dusan was born with lymphedema in both legs. The diagnosis was established when he was eight months. Due to the lack of education on lymphoedema in our country Bosnia and Herzegovina, we were forced to take our son to the other two countries to establish a....

I was 38 weeks pregnant and a health nut wanting my baby to have the best start possible. I craved fruit and was blessed with an easy first pregnancy (minus the morning sickness) and at a weekly checkup when I demanded my doctor confirm my daughter's positioning. I had a gut feeling she was breech and I couldn't drink....

I was 29 and on my way to a work Christmas party, when I was hit head on in a MVA. After 1 year in the hospital, 16 surgeries, 1 coma, 1 stroke, and teaching myself to walk 5 different times, I thought my struggle was over. Come to find out, it was just the beginning. I was diagnosed with edema, lymphedema, and pachyderma. About once....

For several years now, my neighbor Jane has been dealing with the crippling effects of lymphedema, which doctors had thought earlier was cellulitis, and/or a few other various possible conditions. The pain she deals with is ongoing, excruciating at times and debilitating - making it very hard for her to deal with everyday tasks and life supporting expectations, combined....

My daughter, Savannah was diagnosed with lymphadema when she was 17. It affects her right leg and she has been living with the condition for now 7 years. She is extremely self conscious about her leg even if the manifestation of the condition is barely noticeable some days (as you can see on her photo) and her case is mild so far.....

I had a mastectomy in 1984. Never bothered with lymphedema until October 2013, at age 84, when I moved to an apartment. I was diagnosed after an ultrasound and body scan with lymphedema caused by the trauma to my arm from heavy lifting etc. Have you ever heard of this happening 28 years after?

I just saw Kathy on "The Doctors," and, while I don't have a story, I heard her say it is hard to get the pressure bands on. Because of my husband's double knee replacement, we discovered that using "Biosilk" made the job easy.