Dear Dr. Madara, 

My name is Olivia Eggers and I am a 23-year-old woman living with primary lymphedema (LE). I was born with this condition but was officially diagnosed with LE when I was 9 months old. I have an extremely rare form of LE as it affects my entire body due to my lymphatic

Dear Dr. Madara:

In December of 2020, I sent the email reprinted below to you. Sadly, I received no response, and it seems that the American Medical Association has remained silent about lymphedema. Why? Perhaps no one in the association members’ families or close friends has had the

This thought piece is curated by Lympha Press.

Cameron “Cam” Ayala is a LE&RN Celebrity Ambassador and was featured on the TV shows “The Bachelorette” and “Bachelor in Paradise.” He has primary lymphedema and is known for his bold, confident approach to living with the condition.

If you saw

Dear Dr. Madara,

I recently joined the LE&RN community. It's been a great place for me for access education and advocacy for lymphatic diseases. I'm writing to you to share my personal story and experience with lymphedema with the sincere hope that it helps to bring about change. 

In 2017,

A free online Symposium presented by Denise Adams, MD, and Kimberley Steele, MD, PhD. To attend, simply register at this Zoom link and tune in on Thursday, January 14, 2021, at 12 noon EST.

About the presenters

Denise Adams, MD

Dr. Adams is director of the Comprehensive Vascular Anomalies

A letter to the American Medical Association (AMA) from Brenda Elliot

Dear Dr. Madara,

I received an email from LE&RN regarding my chronic condition of Post-Secondary Lymphedema due to Breast Cancer Surgery. I felt compelled to write to you about my own experience with this debilitating,

TESTIMONY OF A FRENCH PATIENT WITH SECONDARY LYMPHEDEMA BECOMING AN EXPERT PATIENT, a guest blog post by Eleonore Piot - de Villars 

Hello, My name is Eléonore, I have become a “professional” patient expert! 

Ten years ago at the age of 36, I was diagnosed with cancer of the cervix, with

A guest blog post by Linda Anne Kahn, CLT-LANA, CIDESCO, NCBTMB, CMT, HNC. Ms. Kahn is a lymphedema, lipedema, and Dercum’s therapist and president of Lymphatic Therapy Services of San Diego. She has stage one lipedema. 

I'm a lipedema therapist, so I treat all kinds of conditions. One

Join us on Wednesday, November 11, at 12 noon ET (11am CT, 10am MT, 9am PT). Presented by Guillermo Oliver, Ph.D. Dr. Oliver leads the Developmental Biology Lab at the Feinberg School of Medicine, Northwestern Medicine. The Lab investigates lymphatic vasculature and the retina/forebrain.

To attend, just register on our Zoom page.