December 16, 2020

Dear Dr. Madara,

I want to include you, as the CEO and Executive VP of the American Medical Association, in a troubling, yet all too common, representation of the inadequate lymphedema treatment received by a patient diagnosed following cancer surgery. The patient... me.  Read More >

On behalf of LE&RN and NAVBO, Brandon Dixon and Young-Kwon Hong, and all the organizers of the Lymphatic Forum 2021, my thanks to the 329 attendees who made this the most well-attended Forum to date. The virtual nature of this year's Lymphatic Forum had registrants from 24 countries attend.

Dr. Madera, my name is Leslie Brady. I'm a 55-year-old male with a rare Lymphedema diagnosis. I was diagnosed with Lymphedema in both legs, which is rare enough, but even rarer for men. I was diagnosed in 2015, and since I have spent thousands of dollars on stocking, glue, and treatments.

I

Subject: Please Support Lymphedema Patients

I facilitate a Lymphedema Support Group and nearly every new patient contact for years has begun with the same sad story of how they have been undiagnosed, underdiagnosed or misdiagnosed. They have been treated with disrespect and dismissed without

Subject: MILLIONS of People living/suffering with lymphedema need YOUR HELP!!!

Dear Dr. Madara and Dr. Collins,

My name is Dr. Sheri Prentiss and I was a successful practicing physician, overseeing the Occupational Medicine and Employee Health Departments of the largest healthcare system in

Dear Dr. Madara,

Every day I study my left arm and breast in the mirror, checking for redness, splotches, or swelling. I stretch, do deep breathing, perform 30 minutes of manual lymph drainage, and put on custom compression garments which I wear on my arm and breast 24 hours a day, 7 days a

Good afternoon,

I’m 33 years old and was recently diagnosed with primary lymphedema after seeing multiple doctors and having many scans done. The swelling in my left leg/labia began about a year ago while pregnant with my second son who is now 16 months old. I experienced the swelling in

December 18, 2020

Dear Dr. Madara,

My name is Francile Elrod and in 2011, at the age of 39, I was a vibrant person; a spouse and mother of three incredible children, a full-time employee at a near-by University with a bright future before me, and a very physically fit and engaged individual

I have been working with lymphedema patients for almost 20 years, providing them with education, compression garments, compression pumps and referrals to Certified Lymphedema Therapists.  

I am truly disheartened by the lack of or minimal benefits these patients are allotted by insurance